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Mr.T
Regular Member


Date Joined Sep 2007
Total Posts : 133
   Posted 8/6/2008 6:36 PM (GMT -7)   
Well, I went to another hospital to get a second opinion about me having fibro and it was more confusing than ever.  I met with the nuerologist who spoke even less English than the last ospital so we had to play charades and write thingd down.  She could write English fairly well.  She said I have myofascial pain syndrome and gave me a list of what meds I will need to take.  I still don't understand the difference.  I looked it up but it is very confusing.  My pain is horrible and the meds she prescribed don't help at all.  She also gaveme amitriplyne and Zolam to take before I go to bed to help sleep.  i told her this doesn't work and refused it.  last night I slept maybe an hour.  I am going back today with a translator to hopefully help.  Has anyone delt with myofascial and is it related to fibro.  Sorry for the ranting, but I am in pain and I have no one to speak to right now that would even remotley understand me.  I try to put a smile on, but it is getting harder and harder.  Thanks for listening.

RoseCrone
Regular Member


Date Joined Aug 2008
Total Posts : 71
   Posted 8/6/2008 7:22 PM (GMT -7)   
Hi Mr. T-
I was diagnosed with myofascial pain syndrome (by an oral surgeon) years before the fibro dx. Myofascial pain is related to the fascia, a skinlike membrane surrounding muscles. Usually in MPS, knots form in the muscle, called Trigger Points. I have dozens of them, mostly in my back, shoulders, neck, and jaw. They are treatable to an extent, but in the years I have been trying physical therapy, chiropractive, trigger point injections, etc., I have not found a way to make them go away and not come back. My husband has learned to locate the trigger points and apply pressure which relieves a lot of the pain. Sometimes they are "active", sometimes they are not. They also cause referred pain - a TP in my back might make my jaw hurt, for example. There are a few good trigger point self help books out there. You can have MPS with or without fibro. Not everyone with fibro has MPS. Drugs only help the pain, they do not get rid of trigger points. Some theories are that diet plays a role, and some people have had luck with other lifestyle changes. Supplements for muscles can help too, like magnesium (I take cal-mag-zinc every day).
All I can say is keep trying...I have been through many doctors and specialists and therapies, as most people seem to do when they have fibro, or MPS. Yes it is hard to keep smiling, sometimes you really do have to allow yourself some sadness.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 8/6/2008 8:36 PM (GMT -7)   
Mr.T,

I think that Rose gave you some very good answers here. It is kind of like, the mfp can be a part of fibro, but you can have it by itself too. Also the magnesium for muscles is a very good tip. It makes your muscles feel more normal.

I hope that you feel better soon. Keep posting. We are all here for you.

hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Mr.T
Regular Member


Date Joined Sep 2007
Total Posts : 133
   Posted 8/7/2008 1:33 AM (GMT -7)   
Thanks for the replies.  I will be looking for another doctor or just hold off for as long as I can.  It is just so difficult to get them to understand. They give me meds to help me sleep which is fine and then they try to give me tylenol w/codiene for pain.  It just doesn't work and I don't know if I have a high drug tolerance or what but the pain just doesn't go away.  I think the only reason I have a headache is because of clenching my jaws due to the pain.  I don't know.  Right now I just feel like giving up until I can get to Bangkok and go to a big hospital, but then 
it's difficult for follow up appt. and they always want those.  Well, I better get back to work.   Thanks again for the tips and advice.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 8/7/2008 5:55 AM (GMT -7)   
HI Mr T,

It is hard to find anything that helps with fibro pain. I take norco which is hydrocodone and tylenol. I still have pain, but it isn't as bad as without.

Some doctors believe that nothing works. Have you read the thread about malic acid and magnesium? I started that and it really seems to help me, so that is something that you might want to concider. I noticed the first day that my muscles felt normal again. That is due to the magnesium in it. I really think that it is something to think about.

Best wishes for getting your pain under control.

hugs, Karen...
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/7/2008 8:35 AM (GMT -7)   
Hi Mr T, I found a great article about MPS and FMS that Sherrine included in her fibro 101 thread. I have both MPS and FMS. I have knots and trigger points all over my body. I get massage therapy to break up the knots but they come right back.
 
Rose's post is very good about MPS. It is strange when you can push on one TRP and have pain some other place on the body but it happens.
 
Some doctors believe FMS and MPS is the same thing. You could very well have both. I'm sure there are a lot of people with fibro that does have MPS and haven't been dxd.
 
I hope you have better luck with a translator. That would be frustrating when they don't understand what you are saying.
 
Try not to stress over all this. Stress is going to make fibro and or MPS worse.
 
I use xanax to sleep cause I really don't want to try the sleep meds that are out there. The only thing I take for pain most days is 4000 mg of tylenol. Try taking a nice hot shower or bath before you go to bed, moist heat is our friend. Turn soft music on or the tv to distract your mind at bedtime so your not thinking about all this. I sleep with the tv on but I don't know what tv is like over there.
 
Good luck and stay calm.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/7/2008 9:15 AM (GMT -7)   
Mr. T, here is another article about myofacial pain syndrome and fibromyalgia.  Hope this helps you to understand both of them.  I have both fibro and myofacial pain but am doing good.
 
 
 
Welcome, Rose!  I'm so glad you have joined us and have joined in on the discussions!  You will learn a lot here and I'm sure we will learn from you, too.  Hope to hear more from you soon.!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Mr.T
Regular Member


Date Joined Sep 2007
Total Posts : 133
   Posted 8/7/2008 8:49 PM (GMT -7)   

Thanks guys,   I guess it is just up to pain management.  I tried to see if they had a center here and that is a Big NO, but the good news is you can get pretty much any drug at the pharmacy without prescription.  Things are a bit different here in Thailand and dealing with local doctors is out of the question.  They don't belive in pain med. or sleeping meds.  That's why I have to go to the hospital all of the time.  There most doctors have training overseas, but my file is so thick from past surguries, illness ect. that I am embarrased to go.  I really want to go and tell them I just need someone to understand the pain I am having and try to help, but I am reluctant to do so.  They probably think I am a hypocondriach.  One question I do have for you all.  I had open Fundo surgery for GERD about 20 months ago and was in the hospital about a month recovering.  The inciscion starts in the center just below the diaphram(I think, middle chest just below middle connection of ribs.  It is actually right in front of the middle back pain I get.  Do you think it could be involved.  Just reaching, but you never know.  Right now anything will help.  Also how do you get comfortable while watching TV or working at the office?  Well, have a nice day.  I'll give it a whirl.

 

 


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/7/2008 11:13 PM (GMT -7)   
I was diagnosed fibro and if any of the trigger points have pressure I jump a mile high and suffer severe pain for days I have heard of several diff things that all have overlying symptoms.  my doc just refers to it as nerve pain do to my nervous systom not operating as it should and sending out false signals.  I am on an opioid from pain specialist who is also rheumy and took 70% pain away.  I just thought since you are dealing with these people you could ask them for a trial patch.  Im on 10mg.  I was at wits end before things started to fall into place and it was my second pain guy and reumy, others didnt want to know about it.

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 8/8/2008 8:14 AM (GMT -7)   
Hi Mr. T and I don't think I have welcomed you, so Welcome-
I have fibro and Myofascial Pain Syndrome. I am going to Physical Therapy and my therapist does a type of massage that is specifically for this. And it should only be done by someone who is trained about fibro. It is more a stretching and pushing on pressure points. She has been working on my upper back, shoulders, neck and head. I am in pain for 2-3 days after but it is beginning to loosen up. I know it was just a mess. She stated that most people (not just ones with fibro) the stress hits in these areas the most.
Yes, and the pain can be horrendous. I have never felt pain like this in my life. Stay persistent. I don't envy you being in a different country and trying to get this under control. Keep posting and we are here for you- GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/8/2008 8:50 AM (GMT -7)   
Mr. T, it's hard to tell with the middle of the back pain.  I have that a lot and I haven't had GERD surgery.  I do sit in a hard chair, put my right hand on my left shoulder and twist my body to the left.  I do the reverse for the other side.  This stretches that muscle in the middle of the back.  It doesn't get stretched with other exercises.  This does help me.  So, why don't you try doing that and see if it helps loosen up that muscle and help with the pain.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/8/2008 9:28 AM (GMT -7)   
I had surgery for GERD years ago but it wasn't open surgery. There are still somethings that bother me to eat but I know that feeling and it's different than fibro or MPS.
 
I have to agree with Sherrine in the stretching exercises. We have to keep stretching the muscles or they really knot up. I can actually feel when my muscles need to be stretched. It may sound weird but they start itching, especially in my shoulders and back.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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