I'm hyperthyroid also. Diagnosed with nodules. I take Levothyroxin 100mcg. I've thought the same as you. And pursued it as far as a specialist one time.
I just thought if someone would listen and take the right tests they could get to the bottom of it and help me!
The specialist decided what I needed was a needle biopsy of my thyroid. With my dislike of needles (chicken) Oh, my I hope Sherrine doesn't read this post. You know how she is about chickens.
Anyway, that day the good Dr. had a young Dr. in tow and I suspect he just wanted to impress him with his expertise. So they laid me down on the table and stuck a very long needle in my throat. I never received any test results, not even a phone call, but you can be sure we got his bill.
Since that time I've not tried again...what's the use? Sorry to be so negative. I've just been around every corner and turned over every rock looking for a cure. Now I just deal with the symptoms. And live for the day someone will really find out what is going on with us.
Most Common Cause of Fibromyalgia
The main cause of fibromyalgia has been determined. As I recently announced in France, in most cases, fibromyalgia is caused by inadequate thyroid hormone regulation of cell function. The inadequate regulation results from thyroid hormone deficiency and/or partial cellular resistance to thyroid hormone. Rigorous ="St(0);window.status='';return true;" onmouseout=Ht() href="http://drlowe.com/geninfo/hypothes.htm#">logical analyses of the available scientific evidence make it clear that this is the most plausible explanation of the cause of fibromyalgia. In The Metabolic Treatment of Fibromyalgia, I demonstrated that other proposed explanations of the cause of fibromyalgia (such as the ="St(1);window.status='';return true;" onmouseout=Ht() href="http://drlowe.com/geninfo/hypothes.htm#">serotonin deficiency hypothesis) are false. (See Dr. Lowe's recent summary of evidence supporting inadequate thyroid hormone regulation as the major underlying factor in fibromyalgia.)
Other Underlying Mechanisms
Other metabolism-impairing factors may also induce and sustain symptoms that lead to a diagnosis of fibromyalgia. All that is necessary is that these other factors impede the metabolism of the tissues from which fibromyalgia symptoms and signs arise. Such factors include a diet that contributes to impaired carbohydrate metabolism, B complex vitamin deficiencies, the use of beta-blocking drugs, and physical deconditioning. One such factor may not be enough to induce fibromyalgia symptoms. However, combinations of the factors may be sufficient. The fibromyalgia symptoms of most patients who come under our care are caused by a combination of such factors combined with inadequate thyroid hormone regulation of their tissues.
Basic Requirement for Effective Treatment
The metabolism-impeding factors responsible for fibromyalgia must be controlled or eliminated before a patient can significantly improve. When fibromyalgia results from inadequate thyroid hormone regulation, the proper form of thyroid hormone is indispensable if the patient is to improve or recover. The use of T4 alone (such as Synthroid) is seldom effective. Most patients require treatment with desiccated thyroid (such as Armour Thyroid), a synthetic T4/T3 combination (with 4 parts T4 to one part T3, such as Thyrolar), or T3 alone. Treatment is seldom effective when the clinician adjusts the patient's dosage according to blood TSH levels. Treatment results are likely to be no better when the patient's dosage is adjusted according to the free T3 level. Most patients improve or recover only when their thyroid hormone dosage is adjusted according to the responses of their tissues to thyroid hormone.
Anyway its something to ponder over. Not that I necessarily agree with everything he says, because I simply do not know. If I knew the answer, we'd all be better, LOL.
I'm still trying to decide if I truly have fibro or if its thyroid related. I do have some tender spots. I'm confused. How do ya'll know that you have both and that its not from your thyroid? Is there even an answer to that?
I have both fibro and hypothyroidism and take synthroid. From the literature I have read, synthroid when taken properly is converted easily by the body to T3. So there is no need to supplement synthroid with T3. I recently found out that I had been taking my synthroid wrong. It is to be taken first thing in the morning on an empty stomach, which I was doing, but, I was also taking my other meds at the same time. That is a no no. It is to be taken alone. I already knew that I couldn't take anything with calcium in it within 4 hrs., but I didn't know I couldn't take anything else.
Since I have been taking it correctly it has been working.
20 years ago, I was diagnosed with thyroid nodules and low level hypothyroidism. Meaning I was just "slightly hypo" according to the blood work.
I took Synthroid for 5 years or so, and I never noticed any change in myself, the nodules did shrink, tho. I finally got my doctor to give me Cytomel along with the Synthroid, hoping it would do something. It did not.
about five years ago, while still on Synthroid (NOT generic) I got a "bad batch" and went HYPERthyroid. It was one of the worst experiences of my life! I felt like I was going to jump out of my skin, it was just awful.
I stopped taking the Synthroid alltogether, because I was afraid of going hyper again. The hyper symptoms went away, and my body didn't seem to miss the Synthroid at all. I got a new doctor about two years ago, and she freaked out when I told her I stopped taking my thyroid meds. She ran the full battery of tests, and my levels were all still VERY slightly low. She ran a thyroid scan, and I still have small nodules. My reaction was "You mean I took that crap for 20 years, and it did nothing for me at all? And you want me to keep taking it?" I refused the RX for more Synthroid.
I believe that my thyroid was never an issue before. I think this whole time I have had fibro. I think the reason the Synthroid and Cytomel did nothing for me was because it wasn't what I needed.
So now I am really curious about all of you who take thyroid meds. Have you ever noticed a difference in the way you feel when you take them?