Thanks so much for the info. I've been battling the unknown off and on for quite some time. The 3 years with the neuro was exhausting and I never did get an answer. I was supposed to go back for another MRI of cervical spine, but never went. I have been feeling good for about 3-4 months and then it just hit me again. The foggy feeling/pain/my jaw is tight and hurts - weird pains in my head and shock feelings in my side and arm. I have never gone to a rheumy and think I will make an appt. I know my family dr thinks I'm a hypochondriac and I've tried to stay away from the office. He said that I'm "hyper-sensitive" - huh???
Thanks again for the info and input Im not sure about the EBV being chronic - he never said - I also had former human parvo virus in the blood too. Neither was active at the time of the test. I get migraines, tension headaches, back pain neck pain, muscle aches and stiffness/burning feeling. RLS, gerd, IBS, fatty liver, bulging discs. I had gotten a very bad infection when I gave birth to my daughter 9 years ago - Strep B - which settled in my hip joint and ate away the cartilage. Eventually, I had to get a hip replacement (4 years ago), but sometimes I wonder if that experience triggered something.