How should I feel while taking Lyrica?

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crooked river
Regular Member


Date Joined Jul 2008
Total Posts : 23
   Posted 8/8/2008 9:05 AM (GMT -7)   
I know this is a pretty general question and meds affect people differently, but I'm confuzzled. I apologize in advance if this is rambling and whiny :)
 
A week ago, my pcp started me on Lyrica as a 2 week trial. I felt I'd hit the wall with Cymbalta and it wasn't giving me any relief, if it ever did. After reading of some of the side effects posted here and fearing the weight gain, I decided against taking it. My husband was kind of disappointed with my decision and said how do you know what it will/won't do unless you try it. He thought maybe it'd be my "miracle" drug. After we talked I felt the least I could do was give the Lyrica a 2 week shot.
 
I started taking it on Saturday (50mg, 3x a day). Sunday I felt great and we went for a 2 hour ride on the motorcycle, unheard of since I was diagnosed with fibro. We had a great time and I was praising Lyrica to anyone who would listen. I continued to feel pretty darn good until this morning. It seems that all my pain is back, and worse than ever in my neck, although I was very careful not to overdo it when I was feeling good.
 
Is this the way Lyrica "acts"? Several good days in a row, then feeling like I've been hit by a ton of bricks again? My neck problems stem from arthritis, but taking the Lyrica even made that feel a lot better. Will Lyrica ever make me completely pain-free, or does it just make the pain manageable? Currently, Tramadol is the only drug I take for pain, but I'm never completely pain free. It's so frustrating. Today all I want to do is cry. I was so sure that Lyrica was the answer.
 
Thanks, all of you, for your help, support and understanding.
Nancy
 
Fibromyalgia, type II diabetes, COPD
Cymbalta, Tramadol, Flexeril, Avandia, Metformin, Advair
 
What do we live for, if not to make life less difficult for each other? TS Eliot
 


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 8/8/2008 9:19 AM (GMT -7)   
HI Crooked River,

Sadly I must say that we are probably never pain free. Like you mentioned it is managable, but never completely gone.

I am happy that you got to go for a motocycle ride, especially one that was two hours. That is fantastic. I hope that you have more good days like that.

Don't get discouraged, for every bad day we have there is another good one just around the corner. You will have many ups and downs. Once you accept that it is easier to deal with.

I hope that you have many more good days than bad ones.

Best wishes to you for a wonderful day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 8/8/2008 9:28 AM (GMT -7)   
I do not take Lyrica but we have talked a lot about it on this forum.  You might try typing "Lyrica" in the Google custom search box at the top of the page below the yellow bar and you can read all that has been said...the good and the bad.
 
I know some people love Lyrica and others hate it.  Some have taken it for a while and then the effects wear off and it seems to not work anymore.  I'm not sure what is going on with you.  I do think you should still take it and give it a chance.  You may just be having a flare and not much helps when that is happening!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/8/2008 9:45 AM (GMT -7)   
Nancy you said you didn't over do it when you felt good, don't you think a two hour motorcycle ride was over doing it??? That is using a lot of muscles. I don't think we always stop and think about the muscles we use when we are feeling good and doing things. I've been on the back of a motorcycle and it made my body hurt thinking about it. tongue We use muscles riding in a car or driving. So you may have over did it without realizing it.
 
I have not tried lyrica but it sounds like you didn't have a lot of the side affects many do when starting it.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


its_chelle
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 8/8/2008 10:06 AM (GMT -7)   
You see, this is what is so weird about Fibro. We have flares. So even when we take something, how do we know we're not in a flare? How can you tell the difference between a flare up and the medicine working? When I take something for the pain, I'm always thinking in the back of my mind, 'ok am I feeling better b/c the medicine is working, or is the flare just going away'  I don't know. I haven't tried Lyrica because I'm scared of the side effects.
 
Chelle

crooked river
Regular Member


Date Joined Jul 2008
Total Posts : 23
   Posted 8/8/2008 10:40 AM (GMT -7)   
LOL Marlee, I knew someone would give me grief about the motorcycle ride :) Thank you! You know, though, I never thought a ride on the back of a bike would be overdoing it, since I'm basically sitting there, enjoying the fresh air, sunshine and scenery. But why, I wonder, am I'm feeling the aftereffects so many days later? Usually I get off the bike saying "well, there's something I'm not gonna do any time soon" because it hurts!

The only side effects I had, and only for a couple of days, was lightheadedness and mild dizziness. It felt like my head was on the end of a string, like a balloon! I thought the mild side effects was another point scored for Lyrica.

Sherrine, I got my Malic Acid supplements and started taking that toward the end of last week. I'm on 4 tablets a day (done gradually, and with a calcium supplement), so now I'm not sure if that's helped because I started the Lyrica shortly thereafter. I'm going to continue taking both the Lyrica and the Malic Acid. I guess I just needed to vent today.

Chelle, I was scared of the side effects of Lyrica too, but so far haven't had any that will make me stop taking it. If you decide to try it, I hope you'll be as fortunate as I was. By the way, welcome to our group :)

Karen, thanks for your encouragment. It's nice to know we have a place to go for gentle hugs and advice. I'm going to chalk this up as being just another flare, and try not to let it get me down.

Happy weekend, everyone!
Nancy
 
Fibromyalgia, type II diabetes, COPD
Cymbalta, Tramadol, Flexeril, Avandia, Metformin, Advair
 
What do we live for, if not to make life less difficult for each other? TS Eliot
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 8/8/2008 11:21 AM (GMT -7)   
Nancy, riding on the back of the motorcycle can be hard on the muscles.  If you went over any bumpiness, that will play havoc with the muscles.  Also, when the bike is making a turn, you have to lean and that uses muscles you don't usually use.  In a car you are just facing straight ahead...unless you are a speed demon!  nono   So, those muscles are worked and then they start to tense up and in a few days you really know it!
 
It took me several weeks before I knew for sure the malic acid was working for me.  It take a while.  Let me know how it goes!  I really hope they help you like they did me.  It may be hard to tell since you started the Lyrica.  I didn't take anything like that.  I only take ibuprofen, Tylenol and the malic acid supplements.  So, I KNOW they helped me...for sure!!!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 8/8/2008 1:01 PM (GMT -7)   
The thing with lyrica is that they usually start you on a small dose. Then after a time, for me it was a week or so, I had to go up on the doseage. Some people go up to 450mg/day. Maybe you just ran into a situation where it was time to increase your doseage. Of course discuss this with your doctor and see what he/she says about the matter.

Hope this helps.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/8/2008 11:16 PM (GMT -7)   

Lyrica works as a mild relaxant and is particularly good for burining sensations which why I was on it but I have a large dose of  300mg per day and am allowed more.  On its own however its not enough. Its a matter of addressing sleep & pain. and taking it very easy even when feeling good and eliminate everything that causes stress in your life.  Today I went on a two hour clothes shopping spree. When I got home I grabbed my cuppa and have done nothing rest of day.  Some drugs that work well can be gotten from rheumatologoist, pain specialist and even phyc is very good as they deal in meds to do with nervouse system and I did find a wonder drug called Zyprexa and there are others that work on nervous system.   Be prepared that you might need to go further a field than doc is pain is to bad.  I also wear norspan patch for pain from pain specialist that was  my first wonder drug .  There are alot of drugs out there its a matter of finding them and balancing your lifestyle.  have a good day

suez2 :-) :-) :-)


Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 8/9/2008 12:16 AM (GMT -7)   
I take Lyrica and am on 600mg a day and started at 75mg at bedtime. Even on lyrica you still can have flares. Lyrica in more for neuropathic pain such as burning and coldness in your feet, legs and back. It does help me with all over muscle pain as well. Before the lyrica by the end of the night my body was screaming with horrible burning pain. I could barely walk up the stairs to bed. I still have pain and take other pain meds for those kinds of pain. I noticed too that it seemed that the lyrica wasnt working anymore but it was just time to titrate up to a higher dose. My doctor told me when I stayed pretty comfortable then I would be where I needed to be and for me its the high end of the scale. I do still have flares most times from over doing and sometimes out of the blue when I havent done anything but the first time it happened after being on the lyrica I was thinking hey how come I hurt so bad? But its a flare,they hurt no getting around it. I do know even though I still have pain that it would be unbareable if not for the lyrica. It does feel like a miracle at first because the drug is so new to your system it wipes out just about all pain of any kind and it would be nice if it would stay that way. And I agree about the bike ride,you said if you hadnt been on the lyrica that no way would you have been on a bike with the fibro so you wouldnt have been on a bike cause its hard on your body. I used to have a boyfriend that I rode with all the time and you do have all your muscles tense as you sway and turn with the bike plus the constant rumbling of the bike on the road. So I hope you stick with it and it works but its not a free ticket to do whatever you want. I learned that the hard way and payed for it dearly. Good Luck...........

Karen
Karen
 
Mom of one gramma to 4
 
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain


TeeB
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 8/9/2008 12:00 PM (GMT -7)   
I have been on Lyrica for about two years now.  I find that it does help with the RA and fibro.  I haven't found anything yet that has given me pain free days just managable days.  In the beginning I didn't think Lyrica was working therefore I quit taking it to my surprise it was working much better than I thought.  It does take time to get into your system and get your dosage correct.  My doc has me taking 100mg in the am and 150mg in the pm with the sleep meds.
 
Good luck to you and hope you have some good days ahead real soon!
 
Take care of you,
 
Tee
Trust in the Lord with all your heart, And lean not on your own understanding; In all your ways acknowledge Him, And He shall direct your paths.  Proverbs 3:5-6
 
Dx:  Rheumatoid Arthirtis, Fibro, Asthma, IBS, Migraines, TMJ, Insomnia, Ischemic Colitis, Neurocardiogenic Syncope, Allergies, Bladder etc...
 
 
 

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