NEWBIE please be gentle with me

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lasenzagirl
New Member


Date Joined Aug 2008
Total Posts : 7
   Posted 8/8/2008 10:09 AM (GMT -7)   
just wanted to introduce myself really ........im 25 and for the last 3 months have been getting a right old mixture of problems and i think i may have fm confused my symptoms are redface pains in my knees,elbows,hand,wrists,feet and ankles ,my joints seem to throb ,i get shooting pains up my arms (starting at wrist)and also up my legs ,my leg muscles feel really tight like iv been on the running machine for to long ,also my arms feel the same when trying to hoover and do other housework ,i have to stop half way up the stairs as it feels like my legs are gonna cramp and go all tight ,i have probs holding my son as i feel my arms are week and i will drop him and then my arms really hurt i think cus iv tried to hold on to him to tight ???i cant hold a pen and write for long as my arms and fingers kill me (mainly my middle finger and thumb) my neck and shoulders hurt like iv slept funny (cant explain how they feel sorry)my legs feel tender to touch ,my main prob is my feet ,legs and ankles i feel like my right ankle is gonna snap at any moment ,my feet burn when i put pressure on them ,i feel like my toes are squashed like iv got tight shoes on even when i dont ,my legs feel like they will give way sometimes and im shatered i can sleep forever and still go bed and sleep .somedays iv slept from 3.30 in the afternoon right through until the next morning and it still took me ages to feel awake ,i have constant headaches worse than ever .everyday is differant and a differant part that hurts except the feet they hurt everyday ,i have started getting bad stomach cramps and unmentional toilet probs .i have had a full blood test done and all is fine and also iv been tested for the RA  factor all was fine and my dr is baffled he prescribed me lycria 75mg once a day for a week and then twice a day for 3 weeks ,so far i have no relief from these tablets altho my pains do ease of around lunchtime and then come back in the evening so i dont if its the lycria kicking in at that time or if the pain would have eased anyways .anyways though the best people to ask would be those who have this and have a better unstanding of it ,do you rthink its possible that its fm ???.thank you for reading this far tongue   hadnt realised how much id rammbled on .thank you xxxxxxxx

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/8/2008 10:47 AM (GMT -7)   
Hi, Lasenzagirl, and welcome to the fibromyalgia forum!  I'm so glad you joined in!  Unfortunately, it does sound like fibromyalgia to me.  I've had nearly all those problems at one point or another.  I don't get the headaches, though.  But, there are plenty on this forum that do!
 
Check out the Fibro 101 thread.  It's the second thread at the top of the first page of the forum.  There are links in there to good sites about fibro.  One of the links is to a list of fibromyalgia symptoms.  You could print that out and check the ones that pertain to you and take this to  your doctor. 
 
You may need to see a rheumatologist to be diagnosed.  Sometimes it takes a while before you are finally diagnosed.  There is no blood test that tells if you have fibromyalgia or not.  They are actually trying to rule out other illnesses.  They usually use a tender point test.  They will lightly push on certain areas of your body.  If you are sensitive there, you most likely have fibromyalgia.  You do need to be diagnosed though because fibro mimics other illnesses and you want to rule them out. 
 
Try using moist heat for the pain.  I like hot showers and I have a rice bag that I heat in the microwave and that gives off moist heat for over a half an hour.  Gentle stretching exercises are very good too.  There is a link to them in the Fibro 101 thread.  Walking is very good for fibro, too.  You need to keep moving to stay flexible and this helps keep the muscles from tightening and causing more pain.  Having a small child like you do will MAKE you active!  I also see a massage therapist that understands fibro and gives me light massages.  That has helped me too.  If you read some of the posts on this forum you will learn a lot.  There is a world of information in them.
 
Don't hesitate to ask questions.  We are here to help you.  I'm sorry we have to meet this way but I'm glad that you joined in.  We can help you, with good ideas, to lead a full and enjoyable life with fibromyalgia!  Hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 8/8/2008 11:24 AM (GMT -7)   
Welcome to the forum Lasenzagirl,
 
Sorry to hear you are having such a rough go of it right now.  One good thing is that you are looking into the reasons for why you feel this way.  I had fibro symptoms years ago but back then fibro wasnt even something anyone knew about so I just dealt with the pain and figured it was just something that I was dealing with.  I too get the leg cramping specially when walking uphill and on stairs.  I feel like I just cant go another step and have to stop and rest. It is really hard for me to have to hang on the phone on hold.  It feels like my arm is going to drop off and it gets so tight and sore around my neck and shoulders.  I have just recently started getting the all over joint pain.  I feel like if I move my wrists or anckles around enough that they will "pop" but it doesnt help.  There is this pressure  and cramping that makes you constantly flex the joints.  I do have issues with headaches too.  I can go for weeks with nothing then its back and stays for weeks on a daily basis.  I dont have as much trouble with fatigue as others here but I have my days where I am fighting sleep all day long and all I can think about is going to bed.
 
Sherrine gave you some very good advice.  She is right on top of anything you need to know so if you follow her advice you will be going in the right direction for sure.  Feel free to come here and ask anything that is a concern to you or to just vent on days when you feel like you cant take it anymore.  I have found that just to talk with ppl that understand what your going through is so helpful and they have been there or are going through some of the same things as you right now.  Take care and I wish you luck in getting that diagnoses.
 
Soft Hug's,
Karen
Karen
 
Mom of one gramma to 4
 
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain


lasenzagirl
New Member


Date Joined Aug 2008
Total Posts : 7
   Posted 8/8/2008 11:52 AM (GMT -7)   
thank you so much for your replys [img]http://www.pic4ever.com/images/bighug.gif[/img] its lovely to find people that understand as i do feel like people think im a winger .it all started with just achey feet like id had a busy day shopping(i wish)all day everyday and so i just shrugged it off wondering if i had been extra busy or not but the last month or so it seems like everyday its something new or a pain is getting worse .thanks for the advice on the links i will have a look ,iv only had these probs for 3 months and there mild to alot of yours i guess so how do you cope and keep yourself smiling ??? im at my wits end and i cant see no light at the end of the tunnel and i worry will it get worse and if so how much worse .the only thing that helps is a hot [img]http://www.pic4ever.com/images/bathtime.gif[/img] but as soon as i get dressed and come down stairs the pain is back ,this morning i got my foot spa out and have sat with my feet in that and it was great ,would have been better if i could fit my whole body in it tho .as for diagnoses it would be nice to just have a name for whats wrong ,i have anice dr but my list of symptons just had him scratching his head sad .i have heard of flare ups and was wondering is it normal to have one bad day and the next day a good day or is it a week or so bad and then gradually it eases of ??? i have so many questions but i will read the links first and hopefully they will ansswer lots and i wont have to bother you tongue thanks again ,you have made my day replying and you are lovely lovely people [img]http://www.pic4ever.com/images/bighug.gif[/img]  [img]http://www.pic4ever.com/images/16.gif[/img]  .please excuse the spelling or the way i ramble ,i cant blame it on fibro fog ?? as im not diagnosed yet so will have to just admit that iv always been this way tongue   xxxxxxxxxxxxxxxxxxxxx

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/8/2008 1:04 PM (GMT -7)   
Lasen, you can have flares for one day or for many months!  We just never know.  The key is to find what help you feel better and do it!  We may be able to help  you in that department.  I've had fibro for 21 years and have had a very full and happy life.
 
It does really help to keep a positive attitude.  Things could be worse.  You aren't going to die from this.  When you are having an especially bad day, just think.  Tomorrow could be great!  Just take one day at a time and please, please, please, keep  your sense of humor!  This will get you through the bad times.  Don't focus on the pain.  Focus on something else and many times the pain will fade a little because you are not thinking aobut it.
 
Get busy reading and come and ask questions.  We all learn a lot on this forum.  There are some wonderful people here that are always willing to help.  Have a good day!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


lasenzagirl
New Member


Date Joined Aug 2008
Total Posts : 7
   Posted 8/8/2008 1:43 PM (GMT -7)   
thank you again ,today been a good day so instead of waiting for the pain to come back and be down about it ,i made the most of the day and played with the kids and.........my house is clean oh and so am i tongue is eating something and then within mins your stomach cramps and it comes back out IBS  (tmi)sorry .i havent had a chance to read through much yet as im being the ref to my kids who should be in bed mad   xxxxxxxxxxxxxxxxxxxxxx

Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/8/2008 6:49 PM (GMT -7)   
I had severe leg cramps until they were like lumps of petrified tree , burning through arms , neck, joints felt like someone had tried to pull limbs from socket,  you will now be on the long path of docs, specialists ect .  goood luck :-) :-)    It took me two years but now am on the right meds and are alot better but it took 2 docs, 2 pain spec, 1 reumy.  Lyrica in large doses help me plus I was put on a narcotic patch which made huge diff but took alot of time to get them to take it seriously, I wish I had of known about this forum earlier but only just fouond out .    Big welcome , look forward to conversing with you. 
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 8/8/2008 7:12 PM (GMT -7)   
Welcome!
This is a great bunch of folks who really care. You have come to the right place
Carolyn
I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


lasenzagirl
New Member


Date Joined Aug 2008
Total Posts : 7
   Posted 8/9/2008 1:43 AM (GMT -7)   
thank you for the welcomes ,i can see me having another website addiction coming on tongue   today iv woke up and oh god its a bad day ,feet ,ankles,legs ,fingers,wrist and elbow today im hoping as today i up my dose of lycria maybe it will have some effect on me ,we will see .im glad i found this site altho i wish i didnt have to as im sure all of you do aswell ,cus when i looked into on medical sites where they list the symptons they dont go into much detail and it confussed me cus it feels like its my ankles,elbows,wrists and hands that hurt aswell which i know fm isnt to do with the joints but pain can be ffelt in them ??? is that right ???  xxxxxxxxxxxxxxxx
 
ps those with kids how do you cope ???

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/9/2008 6:52 AM (GMT -7)   
Lasenzagirl, sadly your symptoms sound only too familiar. I hope they rule out everything else right away and you get a dx. Make sure you have a doc that believes in fibro, that is sooo important.
 
You said your hands hurt especially your thumbs and middle fingers, could you describe the pain for me???
 
We do have many mothers on here, some with four children.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


lasenzagirl
New Member


Date Joined Aug 2008
Total Posts : 7
   Posted 8/9/2008 5:36 PM (GMT -7)   
hi marlee2 ,its really strange how they feel but i will try my best to describe the pain they ache like a headache would feel and throb and also a bit of a sting with it ,but at the same time theres a slight pins and needles (hadnt noticed that b4 but as im sat here trying to figure out what it feels like im noticing more)in the end of my thumb it sometimes feel like someones poking a pin in it but a fatter pin as its a big area that hurts also when i try to straighten them they feel a bit stiff but like its the skin that is tight .i hope this makes sense i dont think lyrica agrees with me ,it does nothing for the pain and since starting on two a day today its wrecked my head ,i really hope the dr dont up the dose to help the pain cus my head couldnt handle it .as long as im concentrating on something i dont feel so bad ,so i may do lots of posts tonight tongue   xxxxxxxxxxxxxxxxxx
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