Unfortunately its a bit diff for everyone. I was on 9 diff drugs at one stage and felt they were doing next to nothing, finally after trial and error I am on the right drugs and try to avoid stress where ever you can. I found a doc was not enough so I see a pain specialist who specialises in arthritus, rheumatology. so got the best of both worlds. Now thanks to Norspan patch I am almost pain free but its always there even in the way you move to try avoid pain, sitting, sleeping everything still there but at least now its manageable.
I just wrote you and I forgot what I was writing about. The ulcerative colonitus. I have it bad. I have to live on laxatives and bulking agents because the pain drugs affect it. I can never even leave the house until I have moved my bowels, it is a constant nuisance and actually a big worry to me. Wish I could get off the meds,
Maybe one day I will be able to cut it down. It literally leaves me Have a good day wont you, Im in australia so you'll be asleep sue2z
Everyone, thank you for your support. I'm in Northern Illinois, US.
Last Wed. I thought it was getting to be the end. I couldn't think clearly, this was severe, and I hurt all over. Then my dentist ordered a medrol dospak that made the isomnia so much worse. The good side is the pain is mostly gone. I guess I went thru my first flair! The Lord help me, not sure if I could go thru this again...........pain, confusion, severe fatigue, insomnia, hot flashes accopainied by brief anxiety and all. It even started my UC acting up.
I now praise the healing power of a good night's sleep, actually 2 good nights.
Now I ask how Malik Acid works? I bought some.
Searching for answers, the docs are able to prescribe much more than they make out. Its other name is buprenorphine , I have 10mg patch on my back which gets changed weekly, I got it through my pain specialist, rheumy, he is both after I couldnt take other meds because of colinitus. The pain virtually went, 70% improvement. I was upset to find out my doc could of prescribed anyways but they like it to cme from a specialist I guess. I think there are many meds we never hear about it and it makes me angry when I read about everyone in so much pain when there are meds that may be of help. There is another patch I have heard of which I will look up.
I hope you have a manageable day and a great weekend. bye for now sue2z
Thanks everyone. You helped me get through another bad stretch of life. The other one was during 9ml of a UC flare.
I woke up feeling great today. Strang isn't it? I guess the dreaded steroids did its job but it made my insomnia worse. Think I'll go out and trim some grass. And after reading some other threads I'll try to take it easy.