Welcome Equine Lover,
Yes, we do know how you feel, all to well. We have been there and done that many timewith doctors and family members not understanding some because they are scared and some because they just think you want everything to be about you. (my family).
I is hard to know your self that you have a disease that is not cureable but at the same time it is good to finalle a name on it to.
I have known that i had fibro and CFS, but, just found out about the osteoarthritis and the Psoriasis. I am on so many pills now that i get sick thinking about having to take them. it really helps to read the letters here as you know you are not alone in this, i think what you should do is get some info on fibro and give it to your husband and family to read that way they see it in print and it makes it more real to them.
My husband reads up on everything he can get his hands on when i have a flare or a new disease so that he understands what to expect and how he can help me through it. So feel free to ask what ever and they will be here to help you.
Take care and i hope your day is better Sunday and it is today.
You will love this forum, I do! So much good advice and support!
It is wonderful to have the diagnoses. I had conflicting feelings myself, I didn't want FM but I was happy that someone finally didn't think I was insane.
I was diagnosed about 2 years ago and my husband is just starting to try and understand what is going on. He thought I would be fixed by the meds too. If only that was the way it worked. My husband and I have a long way to go but I'm hopeful that we can get to better understanding of how this affects me. One day at a time.
Hi Equine and welcome!
Finally a diagnosis! Those brick walls can be painful.
My diagnosis was fast because the fibro and depression hit me so hard. I am going to stay on anti-depressants the rest of my life now that I have this.
Just do whatever is "comfortable" as far as your family is concerned and how much you want to tell them. I'm close to my family so they know everything. My family and I are just stumbling through this together as it is still quite new. Please be gentle on yourself and do not be ashamed! You did not ask for this.
When I would hear about people that had fibro I didn't understand it either. I know Sherrine stated in a past post when some of us were saying how our family/friends, significant others had NO CLUE- she stated to give them "time" and that they will never totally understand it because they don't have this disease. That helped me to put myself in their shoes.
You've come to the right place- they are the best here and they understand exactly what your going through! Nice to meet you! GamJill