yet another doctor's appointment, update

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mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 8/13/2008 9:58 PM (GMT -7)   
Today I had to see the doctor my NP refers to, so he could get more info before my NP sent me for the CAT scan.  Turns out the NP wasn't listening so well to my complaints... he latched on to my headaches, why the CAT scan.  After further questioning, he got it straight that my face and legs hurt more than these mild headaches.  My reflexes have gone from a +3 to a +4, which concerns him a bit.  Also, the doctor has ascertained (sp) that my facial pain is mostly neurological.  But all my other neuro tests are normal, so not enough evidence for an MRI yet.  I am finally getting my referral to the rheumy, and my NP has prescribed... I don't know what.... it's an anti depressant, can't remember which one.  I think they will also send me to a neuro if it doesn't help the facial pain.
 
I don't really want to go the med route, but I can't live in limbo and in pain.  Until they have it straight what is wrong, and how to best help me, I need to do something.  He still hasn't ordered the blood work so I could take the malic acid/ magnesium.  I might just go ahead and take it anyway.  I was so discouraged at the appointment.  The doctor started asking again how I was feeling emotionally.  I already went the depression route at my last visit.  He was saying that depression can make you fatigued.  I tried to tell him I wasn't depressed until I went through 3 months of constant facial migraine, and my legs so sore and achy that I couldn't rest.  So the doctor said he had to talk to my NP.  I thought they were done, and I was in a black mood, thinking it all a waste of time and I'll have to wait another month.  I left.  When I got home, there was a message from my NP, turns out he was coming back to talk to me about the meds, lol.  Oh well.
 
And I think I jinxed myself when I said I was feeling better yesterday morning.  After that, the deep aching in the legs came back, along with the restlessness, and pain in the hands.  The face has been hurting non stop since then too, as bad as before, into the teeth too again.  I'm taking 6 xtra strenght advil and 8 tylenol a day, and it doesn't touch it.  I think that is why I was so eager to take the meds when he asked if I wanted to go that route.  I'm picking up the prescription tomorrow night I think (unless he hasn't called it in yet).
 
As always, thanks for listening.  (((HUGS)))
in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/13/2008 11:37 PM (GMT -7)   
Doctors always jump on the depression wagon what they dont realise that when you are in pain of course your going to be depressed.In some cases the depression comes after the pain and if not then even if depressed before obviously your going to be more depressed, it is a dance me and my doc go through every visit.  I dread docs visits. sad sad sad
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


Ms. Tify
Regular Member


Date Joined Apr 2008
Total Posts : 70
   Posted 8/14/2008 4:20 AM (GMT -7)   

GRRRRRRRRR, don't get me started on doctors!!!!  Mine is always pushing antidepressants, too.  Is that all they know how to do, pass out pills?  Ridiculous!!

Mamanan, I can so relate to the leg pain.  It is so frustrating when you have to struggle just to walk around. 

I am still experimenting with various homeopathy and vitamin supplements.  I will find a magic bullet for this yet, and when I do, I will share it with you all.


here's all my issues:  fibromyalgia, osteoarthritis, pinched nerve in neck, high blood pressure, sleep disorder, Raynaud's disease, food allergies,
("but you don't look sick!")
 
what I take:  three different meds for high blood pressure, vitamins, magnesium and calcium. 
 
**slightly confused, all of the time!**


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 8/14/2008 5:33 AM (GMT -7)   
Ms. Tify, the antidepressants are to help with the pain of fibro, taken in low doses. Right now I'm viewing it more as an experiment to see if it will help me, therefore leaning more towards a fibro dx. Maybe a warped sense of logic on my part? lol. And I'm also at the point where I'm ready to do anything to help with the facial pain.

Sue, I saw in another post you were asking me about the facial pain. Mine has been moving around a lot. At the best, it is a slight pinch in the cheekbone area that comes and goes. At its worst, it's a constant, dull deep ache that goes into the bone of the cheekbone, down the jaw, into the teeth, the ear, up in the temple and behind the eye with sharp, stabbing pain in the fleshy part of the cheek and the chin. Advil and Tylenol seem to help with the tooth part of it, but that is it. It's debilitating, isn't it? How can your face hurt so much? I posted a few times on this subject, trying to figure out what was goign on. I had done research on TMJ, but it didn't really feel like that. Someone replied with info on Tprs and unexplained tooth pain is linked to fibro and myofascal pain. I'm not sure I understand it all still, and I'm trying to let the doctors figure it out. It also doesn't fit with trigeminal neuralgia, but I did think it could be atypical, the doctor yesterday did mention it too. Still, with everything else goign on, a link to fibro makes much more sense.

Here are the links to the earlier posts I mentioned. Maybe you will get some different info or ideas from them.
http://www.healingwell.com/community/default.aspx?f=24&m=1175187
http://www.healingwell.com/community/default.aspx?f=24&m=1195918
And here is a link to a site that explains the different neuralgias and symptoms. http://www.drshankland.com/pain_disorders_tmj.html


in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!

Post Edited (mamanan) : 8/14/2008 6:39:33 AM (GMT-6)


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 8/14/2008 6:44 AM (GMT -7)   

Hi Mamanan-

We've talked before about TMJ etc. I know this is frustrating for you, the face and teeth pain. My right side (lower teeth and jaw) hurt also and it is not fun!  shakehead I have been taking alot of Tylenol (my max for the day) for two days now. I've been staying as busy as possible so I don't think about it. With mine it comes and goes.

I think once you have an MRI or some type of x-ray that will help with some of the "wondering" on what this is. And the anti-depressant will not hurt you if you don't need it so what have you got to lose except a "bunch" of PAIN. shocked I would go ahead and give it a try, you can always stop taking it if it doesn't agree with you. And it would be nice if it did just the opposite and helped.

Did you start a journal? GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 8/14/2008 9:42 AM (GMT -7)   
Hi GamJill. How is your jaw today? Does the tylenol help you? Mine hasn't let up since Tuesday afternoon. Last time it got this bad, it lasted 2 weeks. I have such a hard time eating or drinking anything. As soon as anything touches my left teeth, the pain rages. Hey, maybe I can lose weight like this! ;) I had been keeping a journal, but found it redundant, so I gave it up. I probably should start again for the rheumy. The worst part of the visit yesterday I think was having to repeat myself and goign over the symptoms over and over again. And there are so many and varied, it's easy to get tripped up. I felt like I was in an interrogation room :(
in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/14/2008 12:53 PM (GMT -7)   
Mamanan, that sounds like a miserable experience!  I did try the antidepressant but it didn't do a thing for me, but many have had good results.  You never know unless you try it.
 
When my husband died suddenly, my new doctor was insisting that I take Zoloft for depression.  I told her I knew I was depressed but I had a reason to be depressed and that isn't my normal state of mind.  I told her I would work it out without medication...and I did.  But, she didn't let me leave the office without a month supply of Zoloft.  It went in the garbage and I never went back to her again.  You know yourself better than anyone.
 
I really hate it when doctors question you like you are crazy or something!  You shouldn't be "interrogated" by anyone.  Next time, write out your list of symptoms so you don't have to continue to repeat them.  The doctor can put it in your file so when you go the next time, you can refer him to your list.  You can say that nothing has changed or, if you have a new symptom, have him add it to the original list.  I know my doctor goes over how I feel and what medications and supplements I take every time I see him.  Also, print out information about fibro and take that with you, too, to prove you aren't making up these symptoms.  Always write a list of questions for your doctor, too.  I can never remember what I want to ask him so I now write out a list and he doesn't leave until he has answered my questions.  After all, that's what I'm paying him for. 
 
I hope the medication your doctor calls in helps you.  It looks like the facial pain is definitely caused by stress among other things.  You were feeling better the day before but, after your doctor visit, it's back again.  Try to do deep breathing exercises and relax a little.  Try to focus on something else.  I know it's hard, but you can learn to do this.  I hope you feel better soon.
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/14/2008 4:53 PM (GMT -7)   

Mamanan and anyone else with the facial pain.   Ive had tmj for longer than fibro but since fibro my whole side of face, jaw , TEEEth, ear , cant talk , cant eat , pain excruiting and it take s sooo long to go.  Thought I was alone.  So glad im not,  its like it now and I know also it could take a couple weeks of eating mush, not talking.  Its the side I sleep on also.  Sooo tired also.

Is there anyone else..... mad mad mad   suse2z


Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 8/14/2008 7:43 PM (GMT -7)   
Mamanan-
The pain was still bad till this evening and I have been taking 4,000 mg of Tylenol again today. Hope that is a sign it is letting up! How about you?
I usually feel rushed at the Dr's office and than I get flustered. And always forget to ask my Dr. one of the questions I have written down. My Dr. is a gem and I have had to learn to not get anxious because of my past experiences. She takes her time and is very thorough.
When I get the teeth and jaw pain it is usually on my right so I can usually chew on my left side.
Sue2z-
Your not alone! I too have had TMJ for years! GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex

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