Am I alone on stronger pain med from pain specialist, I feel alone

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Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/15/2008 8:16 PM (GMT -7)   
confused  I have been on an opiate for one year now, it frightens me.  Everytime I feel pain I panic in case it is the drug no longer working.
How long do they work? I think of the rest of my life and it frightens me and I feel alone but to know that I will be on one after another eventually is very frightening and not something you would willing do.  The docs meds were useless for me and made my colon bleed.
I hate it. I keep dose lower than pain man reccomended as well.  I feel different and very afraid of the future with drugs but there is nothiing I go do, cant go off, the pain is always there. I will have to ask pain spec my questions but it sounds like your after more drugs. Anyways just wondered if others feel afraid or alone with any of the meds they are on and worry about what the future holds
from  suez2 shakehead shakehead shakehead
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 8/15/2008 10:29 PM (GMT -7)   
NO, I am not afraid of the meds that I am on. HOwever, nothing has taken away all of the pain.

In addition, I really do not like to post my meds on the internet. I am sure that others feel the same way. Privacy is needed sometimes when one is taking care of themselves.

Donnaeil

QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 8/15/2008 11:02 PM (GMT -7)   
It doesn't bug me one bit to post what I am taking to let someone know what worls for me or doesnt work.  I too feel afraid sometimes of the future Sue but you can't always control everything that happens in the future so you have to make the best of the here and now.  I don't think most of us are every totally pain free and it's a matter of trial and error in figuring out what works best for you.  I have been on the same meds for 5 years now and I have to cut back in order to re-set my tolorance levels.  So far this has works for me but who knows if next week or next month it will work.  I can't worry about that anymore.  Instead I cherish good moments I have now with my loved ones.  I hope you find some peace soon Sue.
 
Soft Hug's,
Karen
Karen
 
Mom of one gramma to 4
 
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/16/2008 12:38 AM (GMT -7)   
Thankyou so very muchQTKaren, your response is much appreciated. I just find some of my symptems are worsening and it is frightening for me.  I will make appt with pain guy I guess.  Hopefully it will settle.  You are right nothing makes it totally pain free, only bareable.  Thanks heaps. :-) :-) :-)
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


twinsugarplum
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/16/2008 4:44 AM (GMT -7)   
Ihave had fibromyalgia for about 20 years now..
My pain got worse in the past year. I feel no one believed me when I tried to tell them what was going on. I could work all day as a cna and walk about 3 or 4 miles on the job. But when I got in the car to drive 30 min. home its like something happened to me. By the time I got home I could barely walk in. And the evening would just get worse. I had just got married and felt terrible I couldnt even cook and he would have to help me to bed. Yes there were days I cryed. And when I tried to talk to anyone they would tell me that they hurt to and that they are also forgetful. Cause I was getting to where my fibro fog was really bad. See it didnt help me to tell me you had the same systems, cause they didnt have fibro and unless you have it you dont know.
I took it for months on end and the dr. kept changing my meds. Nothing seem to work. So when I went back to Dr. needless to say I broke down and cryed. And told him I cant deal with the pain any more. He is a very sweet christian man. He told me ok we are going to start all over. He wanted to know what all meds I have been on. The truth I cant remeber all of them in 20 years. So he put me on Cymbalta and said we would try it.
I started off with a smaller dose and than went up a dose. This is the honest truth here, I took my first dose and the next day I could feel the differance. I was able to walk some. After a few days I was up walking again. this has been a miracle drug for me. I thank God and my Dr. for not giving up on me.
Sweetie you are not alone just hang in there. There will be good days and bad. You have to take them 1 day at a time. Dont think that far ahead.
I was checking into disability cause I couldnt walk. And now Iam the best I have been in a long time. Thanks for letting me express myself..CYMBALTA IS A MIRACLE DRUG........

Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/16/2008 6:02 PM (GMT -7)   
Twinsurgar plum, thankyou for your response, I was hoping people could use the posting to off load as well as help.  I have taken the name of the drug, dont know if they have in Australia.  The best thing I can do is talk to my pain specialist its just I dont want to sound like a druggie when I am actually opposite. But I know what the pain would be like without the meds so I have to accept i need them.  suez2

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/17/2008 9:53 PM (GMT -7)   
Hi Sue,

I can understand why some prefer not to share what they are taking and that's their choice. I respect them for that. But for me I don't mind sharing if it can help someone. We are anonymous here unless we care to divulge out identity to someone outside this forum, which some of us have done.

I also take narcotic pain meds and have a several years. It seems like I take tons but my doc and his nurse said what I take isn't very strong for someone in my condition. I have to believe them. I'm on a total of 80mg of oxycontin/day divided morning and evening. Plus I take up to 5 percocet/day that are 7.5 mg. Yes, I hate it and it does concern me but here's how I deal with that part. I have diabetes also and have been on insulin for nearly 14 years. Insulin is a scary medication. Just a tiny bit too much and you can end up in the ER or worse. People die from overdosing or not taking it at all. Do I feel guilty or worried about taking it? Heck no! I'm grateful. It allows me to have a life and good quality to that life. So why should I feel bad about taking a medication that also gives me quality to my life...pain medication.

Neither of us did anything to deserve this horrid pain nor is there something simple to stop it. If there is a medication that can help us live a life with less pain then take it. The only reason we feel guilty or get a bad image is those who abuse it. THEY ruin it for the chronic pain people who truly need this medication. If it weren't for the "druggies" out there no one would think a thing of us taking the meds we do.

So, lets you and I both work on being grateful for what we have instead of worrying about what others may think. We'll be just fine.

Hugs,
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/18/2008 1:49 AM (GMT -7)   
:-)   :-) :-) Thanks Clultz, you are a breath of fresh air.
I took the name down just in case i ever need to bring things up with the pain specialist.  thanks heaps.  sue2z
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 8/18/2008 8:17 AM (GMT -7)   
sue,
 
As I've said a million times, everyone's pain tolerance is different, so only YOU know how much you hurt.  Personally, I'm right there with you-most days I just manage-I'm never comfortable. cry   There is such a fine line between pain management and addiction.  Doctors are afraid to Rx stronger drugs.  In my opinion, there are 2 things you need to be aware and stay on top of. 
 
1. Are you taking the meds as directed?  Meaning, are you being honest with yourself, and not taking extra meds for something other than legitimate pain.
2. Do you or anyone in your family have a history of addiction?
 
FYI-I only suggest these things, because I have to constantly be aware and honest with myself about pain meds.  As I'm sure you know, I am a recovering addict, and sometimes I feel like it is poetic justice that I have fibro.  Like, I blame myself-telling myself that I deserve this because of all the things I've done in my past.  Deep down, I know this isn't true, but sometimes I just get trapped in that negative thinking. sad
 
Anyway, enough about me.  Depending on what you're taking, yes, you can build up a tolerance.  But, it sounds like you are not even taking the dose your doc recommended.  Don't beat yourself up about being in pain.  I suggest that you talk to your doc about the meds not giving you the relief that you need.  Like I've said before, some people need different meds, and what works for some people doesn't work for others.  You have every right to have your pain properly managed.  We all do.
 
OK, I have totally babbled through this post.  I don't know if I've made any sense.  I guess I should have just said-yeah, I agree with what everyone else said. blush    Sorry, I'm in a thick fog, today. rolleyes

FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
 
"I'll take the Chivas instead"
-Kelly Clarkson


breathofsighs1
Regular Member


Date Joined Aug 2008
Total Posts : 74
   Posted 8/18/2008 10:19 AM (GMT -7)   

Sue,

You are not alone in your fear. I too did not take anything strong for pain. Until I just could not take it anymore. My Doctor (bless his heart) was just waiting for me to finally accept his advice. I went on a strong opiate and have never regretted it other than having to take something that strong for pain. But, other than having to have it, I finally got the relief I so desparetely needed. I think society has us programmed to always "just suck it up and dont complain" Society was wrong. well, for me they were. Different people handle it (the pain) differently.One way is no more right than the other.  You are not alone in your feelings. I truly understand. I am sending you the most positive, kind, loving, healing thoughts I can.I hope you find your comfort zone soon for your decisions in your treatment. It is not a character weakness in admitting your pain or even having pain. Remember Sue, you are not alone.

Hearts, flowers, puppy dogs breath and babies laughing.

Breath


There is no class distinction for those who love, only for those that hate. ...Told to me by my Great Grandmother Grace loepke...... R.I.P. Grandma.


breathofsighs1
Regular Member


Date Joined Aug 2008
Total Posts : 74
   Posted 8/18/2008 10:36 AM (GMT -7)   
Hi QTKaren!
First of all I would like to introduce myself...I am Breath and I like long walks on the beach and ...lol (my sense of humor is very weird) Seriously I am 54 (I think) and have 3 gorgeous grandsons from my only child, a son, who lives about 2 hours away.I live alone with my companion solid black 95 lb Chab (chow and lab mix) who gives me a reason to get up in the mornings!
The posts I have read from you are so good. You seem so down to earth and honest. I am very interested in how you reset your pain meds. If and when you have the time and you dont mind I would like to hear more about how you do this as I have been on the same pain med for about 6 years and I would like to try that.I have been trying to taper off but i dont think that is the answer. (to come all the way off as the pain med has literally saved my life) as you can see I am a new member and I want to learn as much as I can from anyone.
Nice to meet you,
Breath
There is no class distinction for those who love, only for those that hate. ...Told to me by my Great Grandmother Grace loepke...... R.I.P. Grandma.


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 8/18/2008 11:10 AM (GMT -7)   
Sue2z,

I am new here, but not to FMS. I have dealt with it since I got Crohn's Disease 31 yrs ago. I have gone untreated, and treated. Being untreated made life very hard and depressing for me. The pain was intolerable much of the time. I am now under treatment at a pain clinic. I take the following for the pain;

Fentanyl Patch 50mcg
Oxycodone 5mg 1-2 / 4 times per day as needed
Baclofen 10mg 3 / day as needed
Lidocaine patches - up to 3 for 12 hrs

I am not ashamed of the meds I take. I have to work outside the home Mon - Fri. We own a shop, and if I don't go in, we get no money. It's that simple! My husband works on his business which is painting & roofing, which I did also up until around 6-7 years ago. I simply can't do that work any more.

I thought and prayed about the pain meds for quite awhile before I started them. I came to the conclusion, with the help of those who know & love me, that I have to be able to function! I will not sit in bed everyday. I am a busy, motivated woman and not Crohn's, FMS, arthritis or bulging discs will keep me down. I cannot allow that to happen, so I will do what I must to do what I have to do.

To be kept down in pain all the time is not acceptable to me. Will I grow dependant on these drugs? Probably. I am already dependant on my Crohn's drugs. Am I addicted? No. Will I be? No. There is a difference. Regardless of what society tells you. Diabetics are dependant on insulin. Not addcited.

Don't let people who know nothing of what you suffer tell you otherwise. People do what they must to function through the pain. That's what matters. You can function!
150mg Azathioprine
Lomotil
Iron
Nexium 2/day
Fentanyl patch
Oxycodone
Baclofin
 
Crohn's, Fibromyalgia, Several bad discs, bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Stricture
2 resections
 
Stephanie
 
When I am weak, then am I strong


ledaebel
Regular Member


Date Joined Jul 2006
Total Posts : 339
   Posted 8/18/2008 11:15 AM (GMT -7)   
I understand your feelings of feeling alone. My only child lives in the next town and I see her frequently and babysit for her girls.

I had my first huge "flare" that started about 3-4 weeks ago. The more I hurt, the less sleep I got and the more fatigued I got the more alone and unworthy I felt. My heart goews out for you and all the others who suffer like this daily. I'm fortunate I have a good Rheumy who increasing my arthritis pain meds to help with the FN pain. Muscle relaxants helped but they started me on a mild sleeper because they gelt most of my mental symptoms (I thought I was gettting Alzheimers)_ where do to loss of sleep.

What I mean to say is that maybe some of your feelings of being all alone or abdonment (sp.) are influenced by lack of sleep. Maybe you need a sleeper.
 Health History:  low thyroid, high cholesterol, hypertension, mild pulmonary hypertension. Ulcerative Colitis and now Fibromyalgia.

Prescriptions: Lialda , Bentyl, protonix, synthroid, zyrtec, avalide, nasocort, Miacalcin spray and Trazadone for sleep (doesn't work), flexeril & tramadol 3x day

OTCs: Usana multivitamins and multiminerals, Usana Procosa, Usana Mega Antioxidants, Omega 3, Vit. E, Healthy trinity probiotics, Calcium Citrate


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/18/2008 6:55 PM (GMT -7)   
nono  Kelly dont you ever blame yourself for this , I use to say what did I do in a past life, whatever it was Ive paid so take it away.
Doesnt work that way unfortuantly.  Thanks so much for your reply and honestly its so important to everyone.  hugs.  suez2
 
:-)  breatofsighs,  So glad to hear of someone on an opiated, was feeling like the odd man out. Peoples replies arm you for when you see docs ect and to tell people who dont believe as well , I am on half the dose im allowed.  I manage but only just, and so long as I do nothing. If I increase I start having problems as I have uncerated colon which bleeds.  I think everyone should take what they need though.
 
d2parrotperson , thank for reply and thanks for the list of meds, if ever mine stop being effective I can go to pain specialist with a bit of knowledge and its important because otherwise in the med field we are totally on own.  hugs :-)   suez2
 
Ledaebel, your are def not alone, its so awful when you first get it because you dont know how bad its going to get and its so scary I remember . At least now you know your not alone.  :-) :-) :-)    sue2z
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 8/19/2008 6:56 AM (GMT -7)   

O Breath...can I relate to you, having only one son of my own, and three grandson, all living 5 hours away by car. Not a world away, but certainly far away enough that I don't to seem them very often and I'm sure you can relate to that feeling. I don't know about you, but when I am with my grandbabies, I think my natural opioiates kick in, and the adrenaline, because I always feel better when I am with them...not perfect, but oh so much better.

I too take opioids - I take a form of Vicodin, but it has ibuprofen mixed in with it, called Vicoprofen and it has really helped me. Doesn't take all the pain away, but it allows me to do "most" of what I need or want to do. What I miss the most is my former exercise routine. I was an exercise nut...loved to take LONG walks...I'm talking 4 to 6 miles DAILY, then I'd go to work for 8 hours, then come home, walk my dogs another two miles, take care of dinner, take my son where he needed to be and this went on day after day and I loved it. I felt so healthy, so fit, until fibro hit, when I was 38 and well, you all know the rest of that story. Life just takes a real turn, doesn't it?

Anyway, I seemed to get off the subject here, another thing I do quite frequently, or forget what I'm saying altogether yeah ...really just wanted to say I have no guilt over what I take. I thank God there is something that can help me to at least live some of my life, on some days. Bad flare days? Well, I take those with a grain of salt and an extra pain pill and a good nap. I have learned over the past 20 yeares to give in to the flares...you won't win, not much other choice...

take good care,

Miriam

Fibromyalgia, Osteoarthritis, scoliosis, microdiskectomy C5/C6, bulging disks L3/L4, compressed nerve L5/S1, disc compression L5/S1, IBS, hypothyroidism (now FINALLY well controlled)

 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/19/2008 7:58 AM (GMT -7)   
Welcome Twinsugarplum and Breath to our family. I've been gone for a few days so I'm trying to catch up today.
 
As long as we have this forum you don't have to be alone with fibro, we are always here for you.
 
I don't think about the future when it comes to fibro, it's one day at a time for me. I'm sure there will be more meds coming out for fibro in the near future. It's a work in progress and who knows the next one on the market might be better than lyrica or cymbalta. I have to keep a positive attitude about the future or I would curl up and give up.
 
I have been lucky with the pain so far and can control it with 4000 mg of tylenol, tramadol and TENS unit. It's the fatigue that gets to me everyday.
 
All we can do is take what we have to until something better comes along, and it will.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
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getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 8/19/2008 9:10 AM (GMT -7)   
I have been taking norco for quite some time, I think the one that people frown upon is the adderall that I take for fatigue, yes it is an amphetamine, but it helps. Without it I would never get out of bed. I just don't usually tell others what I take. Then I don't have the conflict.

Best wishes to all of you. Have a wonderful day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 8/19/2008 9:53 AM (GMT -7)   
Good Morning Fibro Friends,
 
I got a few things to address today, one being the thing about blame and suffering.  I think no matter what rotten things some of us have done in our pasts there have probably been times that we have thought we brought this all on ourselves.  I have been dealing with chronic pain for many years,way before the fibro hit.  Kelly,there have been times that I have been in pain from head to toe and knocked to my knee's asking God "what did I do to deserve this?".  There have been times I truly beleived that if I had been a better person and made better choices in my life that this would not have been brought upon me.  I even tried bargaining with God.  Begging him if he only took away the pain right then I would do this that or the other.  First off you don't bargain with God,it doesnt work that way and I saw that when my pain eased that He had given me the strength to endure it.
 
If any of you have read some of my older posts you would know what dark places I have been in when pain had wrapped its arms around every part of my mind body and soul.  Do I feel guilty for taking narcotics to get through the day?absolutely not.  Eventually you get into survival mindset and all you want to do is find a solution to getting on some meds.  And believe me some of us even once we get on narcotic meds are in no way medciated to the point of no pain.  It puts us down to a dull roar on some days.  Are there days that I take more then the recommended amount? yep and as I have read these posts I have seen where others have said they took an extra pill.  The thing is that for ppl like me with pain hitting you from all sides and undermedicaited to begin with when I really bad day hits then you have no other choice then to take extra even though it shouldnt be called extra because every time you take that one more pill you have to make up for it somewhere else on a better day.
 
I was supposed to have "extra's" for breakthrough pain but it didnt work out that way.  So now for you Breath about the medication holidays.  First off it doesnt feel like much of a holiday when you start lol.  And if you are taking pain meds in capsule form you can't do this unless you are taking smaller amounts with more pills to make up the whole of what you take each day.  I start out the week by cutting my usual 2 vicodin down by one  half of a pill and do thats for several days then I knock my morning and bedtime doses down to just one pill and stay with the one and a half for my afternoon and evening doeses where I can't cut it too much because I am out running around during that time.  I stay at these lowered doses for about 10 days and then go back to regular dosing.  By the end of the 10 days I am right back to getting the good pain relief I did from when I first was taking the meds.
 
I am in not any way telling ppl they have to do this.  Some medications are meant to be taking in full dose at all times.  Meds like vicodin will many times say as needed for pain so its not going to hurt you to take less for a short time.  All I know is that the chance of me getting into a pain clinic is next to none now that most of them have switched over to private insurance.  Medicaid sucks in some ways but depending on some private insurances medicaid is paying for more treatment and meds then the private ones are now.  My brothers wife works in an exective position for a food service company that serves Boeing(the big plane makers) and thier insurance has been cut horribly the last few years.  I get more name brand drugs then they do and I dont have to have permission to have alot of exspensive tests or to see certain specialists that they have to.  But there are some doctors that wont deal with medicaid even though medicaid covers them and that is the thing I am dealing with trying to find a pain clinic.
 
I have had way more trouble with the guilt of easing up on myself then anything else since I got fibro.  For the last 30 years I was always working around one surgery or another and chronic pain left over but was able to keep it together most of the time.  All the sudden all my reg pain was way worse then ever before and I had all this new pain too and the horrible fatigue and neuropathic pain.  I tried for so long to keep up just as I had done for years but then came the flares and I had to finally admit to my family that I couldnt do it my way anymore.  Then I had to get my family on board with not asking as much of me since they continued to take advantage of my wanting to please well after I had explained fibro to them.  But they were selfish and would not let up on thier demands so I had to learn the word"NO".  I did that here.  And slowly my family is learning to do for themselves again.  I had gone from helping to enabling them to use me for a chore girl to the point where even on days that I was hunched in pain and crying they still wanted just one more thing.
 
You have to stand strong and advocate for yourself in all aspects of your life in order to have the best life that you can.  Ok time to get off my soapbox lol.  I am getting ready to spend 4 days at my daughters with my 4 grandchildren.  But I set this up on my terms and when I felt ready.  Still going to be a hard 4 days with all those kids wanting gramma time all at once lol oh and the weather turned and its now pouring!!! and will be the next 4 days so we will all be trapped inside oh yah!! lol.  Everyone take care and be kind to yourself.
 
Soft Hugs,
Karen
Karen
 
Mom of one gramma to 4
 
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain


dally
New Member


Date Joined Aug 2008
Total Posts : 7
   Posted 8/19/2008 10:29 AM (GMT -7)   
Hello all,
I am the new kid in the group. I am in my third year of doctors, pain meds and testing to try to put my complicated health issues in order. I am 50, had another child at near 47, also the mom of a 23 year old. After nursing done with my son, hormones, migraines came back with a slam. That started the cycle of pain (left side rear neck) and chronic insomnia. Over the years has spread to right side neck, upper back and now lower back. Oovarectomy took most of ovaries a year or so back so hormones really went nuts. So throw together hormone issues/perimenopause/migraines/insomnia and diagnosis of fibro in along with a toddler and I have been in hell. Have had many tests done, and been pursuing deep massage PT for tight muscles. Have been taking low dose of tramadol at bd and if needed during day but mostly at bt. Been taking Immitrex for 3 years for migraines and I also use off label sometimes for referred head pain/headaches from neck tension. Sleeping pills (Ambien/Lunesta) have been a disaster. They don't knock me out. Currently trying Sonata and having a lot of trouble getting relief I need. I like the fact that it is more flexible and leaves the system quickly as I must be able to get up in am and deal with my 3 1/2 year old. Only problem is I can't seem to get a comfort level with it as sometimes 10mg will knock me out for a few hours and other times not at all. Tried 20 mg last night and it was a disaster. Heavy head, headache this am and no real good sleep. To complicate things even further, my Dr. recently started me on Cymbalta for fibro/anxiety/etc. I am on a very low dose as I have a low tolerance to drugs so I am on my third week of 10 mg's. I am breaking caps which is ok with Dr. So far minimal side affects but some fatigue a few hours after taking. I do believe that it is affecting my sleep in a negative way, (as if it could be any worse, I have not had a really good 8 hours of sleep in over 3 years!). I really want to give it a shot and I will be updosing to 20 mg next week. I just can't seem to figure out the best time to take it. I tried PM and my sleep was very restless, so I went to early afternoon for the last week and my sleep still seems more funky and I have noticed that even after taking a sleeping pill, my system still feels revved up. at 4 am I am aware that my heartbeat is slightly elevated so this cannot be good for sleep at all. To top it off, I have become reliant on the Immitrex and tramadol for pain and headaches. The tramadol seems to take th edge off so I am not sleeping in pain and of course any sign of a headache and I just pop an Immitrex asap as my headaches go on for days if I don't and OTC's don't work. I have asked my Dr. numerous times about Seretonin Syndrome with regards to these three drugs and he has assured me that as long as I spread them out and not take together I will be ok.

Sorry for the major reply, but I am new to this. AT this point, here is my main question:

1) Is there anyone out there who is on a similar regiment of drugs as I am and if so any feedback? Have you combined these drugs with no ill effects?

2) any suggestions as to how to handle the Cymbalta which I really want to give it a chance?

My goal is to get off of the Tramadol and perhaps once the dust settles, lighten up on the Immetrex as well.

I have an MD, a neurologist, a rheumatologist, a psychologist, a psychiatrist, a Pt Group, a chiropractor, am on HRT, blah blah blah. I have covered every base with regards to specialists. Tried accupuncture, trigger point massage, amongst others. I continue to try to get to a better place as I refuse to accept this as my fate. I am convinced if I could just get some sleep, some serious sleep I could be so much better. A sleep study determined that my brain wakes up 30 times an hour most of the night. And yes, I am aware of all the things that help sleep like meditation, music, a good environment. I have read it all as well. That is a challenge with a 3 year old. I have been very active in the sense that I move all day. I do not sit at a desk 40 hours a week as I used to, however, I am not currently engaged in any specific exercise routine and am convinced that I MUST start somewhere even if I am hurting. I have always been very active physically, in good shape, strong, muscular, did biking, running, etc. At 42 I was in the best physical shape of my life. The last 4 1/2 years have kicked the heck out of me. And now at 50 I feel like I am just a shell of my former self.

Again, so sorry for the long thread. I will stop now as my hands are hurting from typing! Looking forward to any good input I can get with regards to drugs which have me really anxious.

Thanks to all and God Bless,
Dally

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 8/19/2008 11:05 AM (GMT -7)   
Hi Dally,

Welcome to Healing Well. I am sure that you will get the responses that you are looking for. I do meditation to help me sleep and it works. But also take ambien from time to time. I have noticed that you have to have an empty stomache when you take it and go to bed immediatly afterwards for it to work.

If your anxiety is getting high, maybe you should talk to your doctor about taking xanax. There are a lot of people here who take it and swear by it. Also are you drinking a lot of caffiene during the day? That makes it hard to sleep. I have cut back my caffiene by a third and noticed a difference. I notice that if I drink a coke or pepsi in the evening, I cannot sleep. I think that I have become more sensitive to it.

I am sure that you will get other replies as to what helps others here on the forum.

I think it is wonderful that you have a three year old. They are so prescious at that age.

Best wishes to you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


dally
New Member


Date Joined Aug 2008
Total Posts : 7
   Posted 8/23/2008 10:25 AM (GMT -7)   
THank you Karen for your thoughts. I am sorry that I did not get back sooner. I am quite caught up at times and I do not spend a whole lot of time on the computer. I am truly blessed to have this beautiful child in my life. I just wish I could have had more time to enjoy his "babyness" rather than being so caught up in my ill health. I am truly attempting to change my thought patterns, though I must admit I really get down. Maybe the cymbalta will be a godsend. I am willing to give it a shot.

I am not sure I understand how to use this forum to look for my threads and replies to them as well. I am so looking forward to exchanging thoughts, experiences and ideas with many of the veterans. Do I just jump into Fibro area and look for my threads? A little confused on how to utilize this site. I am new to this stuff, totally and pretty ignorant!!! Any help from members as to how to maneuver would be much appreciated.

Must run and check on my little Jack. Take care!!! : :
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