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Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 8/21/2008 12:21 PM (GMT -7)   
Is hair loss associated with fibromyalgia? My rhematologist asked about hair loss in the long list of questions he was asking me, so I guess that kind of implies that it is. I've had issues with hair loss for the last 10 years and I'm only 24. I'm so self conscious about it and I used to always wear bandannas to cover it up but I had to stop because it scared one of my birds. I know that it's normal for women to get thinning hair but it's not supposed to happen to people when they are as young as I am.

I know it can be a symptom of PCOS which I also have, but if it's also a fibromyalgia problem then that would explain why it's so bad.

If any of you are experiencing hair loss, what are you doing to try to treat it, and has anything helped? Doctors have basically told me that all I can do for it is use Rogaine. I tried that stuff and it did look like it was starting to help, but it made my head extremely itchy and I couldn't keep using it. All other topical remedies I've seen are far too expensive. I also once tried a supplement that was supposed to promote skin, nails, and hair health. It did make my nails grow faster but didn't do a thing for my hair.

Another thought I had was that perhaps hair loss might be associated with the malic acid deficiency. I mean it does seem plausible that if your mitochondria aren't functioning properly then it might cause your hair to fall out. If there are any of you that have problems with hair loss and are taking the malic acid, did it improve after taking the supplement for awhile?

BTW I went to a natural pharmacy near me to see if I could find the malic acid. They had malic acid and magnesium separately but not in the same pill and I'm not even sure it was the right kind of magnesium. I think I'm just going to go ahead and order it online. It would be cheaper that way anyhow.
~Kythe
____________



Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/21/2008 1:00 PM (GMT -7)   
Kythe, I haven't had a hair loss and I've never heard that to happen with fibro people.  I could be wrong, though.  Your rheumy could just be trying to rule out other illnesses.  I'm sure other members will be along soon with their input.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 8/21/2008 1:04 PM (GMT -7)   
I haven't heard of the hair loss thing, either. One of my friends has hair loss problems and finally started wearing wigs all the time. Now she gets comments on how beautiful her hair is! Wish I could help.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 8/21/2008 2:10 PM (GMT -7)   

Hi Kythe, I haven't heard that hair loss is associated w/ FMS. There are reports that thyroid problems can cause hair loss. My pat G'ma and pat aunt both had thyroid removed and had lots of health issues but both had thick hair. My hair is thick and about shoulder length and white. It started going gray when I was about 11 or 12. In my early 20's I started to color it, did that into my 40's. I decided to frost my hair to start bringing it down. As I looked at the results, I realized my hair was white. Not gray streaks in my hair, but white. I thought about coloring it again, then thought, why bother. My understanding is that the thyroid can cause your hair to turn white. I'm concerned about the possibility of cancer w/ the dyes, and cancer is a big threat in my family. So I will just keep the white.

You might want to ck w/ your dr. re your thyroid, just in case.  God bless.  Alice.


ledaebel
Regular Member


Date Joined Jul 2006
Total Posts : 339
   Posted 8/21/2008 3:15 PM (GMT -7)   
I understand your greiving for your lost hair. While going through a Ulcerative Colitis flare which took about 2 years, I lost significant amounts of hair leading to a bald spot. Sick as I was, I found myself still vain about a shiny white area with the surrounding hair a thick dark brown. I cried over it. My GI said stress from what the body is going through can cause hair loss which makes me wonder the stress from FM can do the same thing.

My dermtologist had me take something usually reserved for those on dialysis called BIOTIN FORTE.  That you can get from behind the pharmascist's desk.  She also had me use ROGAINE on the spot.  2 years later I still use biotin.
 
My hair came back but it is now very, very thin and fragile but there is no longer a bald spot.  I have become creative in stying my hair and have it cut short in the back to help hide the thinness.  Hope this helps.


 Health History:  low thyroid, high cholesterol, hypertension, mild pulmonary hypertension. Ulcerative Colitis and now Fibromyalgia.

Prescriptions: Lialda , Bentyl, protonix, synthroid, zyrtec, avalide, nasocort, Miacalcin spray and Trazadone for sleep (doesn't work), flexeril & tramadol 3x day

OTCs: Usana multivitamins and multiminerals, Usana Procosa, Usana Mega Antioxidants, Omega 3, Vit. E, Healthy trinity probiotics, Calcium Citrate

Post Edited (ledaebel) : 8/21/2008 4:20:52 PM (GMT-6)


Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 8/21/2008 3:29 PM (GMT -7)   
Well I used to have hypothyroidism, but I don't anymore. My thyroid levels have come back normal the last couple of years without any thyroid meds. Basically my hypothyroidism was caused by an iodine deficiency so I took some iodine supplements and it made made it all better. I'm glad I don't have to be on synthroid anymore because that actually made my hair loss worse.

I guess if it's not a fibro thing then it really just is the PCOS. I guess maybe I was just grasping at straws hoping that it might get better after I start trying the malic acid.

Hmm interesting about the biotin, I know that my multivitamin contains that.
~Kythe
____________



Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/21/2008 4:57 PM (GMT -7)   
Kythe, sometimes medication can cause a hair loss, too.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 8/21/2008 7:27 PM (GMT -7)   
My hair has been falling out in globs but that is pretty normal 6-10 months post-partum. I think it has to do with the hormones or something.
So far I don't have any bald spots.
I am pretty sure I have fibro. At least that's what my Rheumy told me
Carolyn
I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


alicat72
Regular Member


Date Joined Jun 2008
Total Posts : 79
   Posted 8/21/2008 9:09 PM (GMT -7)   
kythe-

since i started having symptoms of fibro, my hair has changed a lot.....when i was young my hair was so thick and curly.....i had spirally curls. they were gorgeous.......

now my hair is super thin and practically straight...i have spots that are almost bald.....it sucks.

i have considered all the possibilties.....hormones, nutrition, stress....

sorry to say i have not found any cause or cure.....

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/22/2008 7:12 AM (GMT -7)   
My hair has gotten thinner and fine over the years but stress can cause hair loss. Our bodies are under stress all the time with fibro and all the other things we all have.
 
I think taking good vitamins are our only defense and try to eat right which is a biggy for me.
 
I have thought about getting a good wig for the simple fact that I don't have the energy to do my hair everyday. The only time my hair looks good is when I get it trimmed and styled every five weeks. I've never been very good at doing hair and my hairdresser can do more with my hair with his fingers than I can do with every tool out there. eyes
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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