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Regular Member

Date Joined Jun 2008
Total Posts : 59
   Posted 8/22/2008 8:56 AM (GMT -6)   
i'm in st. louis and yesterday was unbelievably awful...the humidity was off the charts (my windows had condensation on the outside) and it rained a fair amount.  was exhausted most of the day, but couldn't nap, could never really get the edge off my pain; but it was kinda my stupid fault, as i failed to take my morning meds before i went to dierbergs.  shocked lesson learned.  'nuff said.  i pushed myself to get what i could and was thankful that yesterday was my son's last day of summer; and he was a dream and unloaded the car for me.  i put the cold stuff away and left the rest on the counter for most of the day.  i try to let those things go, but i've always been a little bit of a nut about the appearance of my house...i stay home w/ the kids (9 and 13) and i feel obligated to live in a clean home.  i was proud of myself to let that stuff sit on the counter...that was a HUGE step for me...i'm one to almost always make my bed (maybe 3 days a year i don't), but am not an enabler, either.  i do make the kids help...my 13yr boy old took my "laundry 101" course this summer.  he's gotta learn sometime, right?  they are very helpful, and don't whine too much anymore; i guess they have realized it really won't get them anywhere. nono
i digress...today's weather is no better and i think it's not expected to get any better over the weekend.  i really wish i had a hot tub or the extra funds to get a regular massage.  this economy is killing us and while we live in a nice home in a nice neighborhood, it's getting tougher and tougher to live on one income.   my medical bills/meds and my daughter's medical bills/meds are really taking a toll; not to mention gas, food, etc.  i don't think i could hold down a part time job if i wanted to.  i do a lot of volunteer work @ both schools, am a girl scout leader and a carpool  mom.
how do i get out of this exhaustion?  i slept well last night; only woke up a few times (numbness from lying in same position for so long), but went right back to sleep.   my pm won't give me anything else for pain even tho my pain has worsened.  he seemed irritated w/ me last visit even tho i was the one who was kept waiting an hour to see him.  i don't even know why i had to come in, really.  he asked how my pain was, i said not very good and he basically said, too bad, i'm not changing anything.    smhair i start pt soon; hopefully that'll help.
thanks for listening!

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 8/22/2008 9:32 AM (GMT -6)   
Hurting, I live in central Illinois and yesterday and this morning has not been that great for me either. I'm expecting company today and I'm so not in the mood. DH did some cleaning and went to the grocery store. I don't think tomorrow is going to be any better, weather wise.
It took me a long, long time to let go of the perfectionism but I'm there. DH is getting pretty good at cleaning, not the way I would do it but.......... he has the energy and I don't so it's not worth stressing over. Believe me I have come a long, long ways with this. yeah
luv and hugs
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Forum Moderator

Date Joined Apr 2005
Total Posts : 17058
   Posted 8/22/2008 12:06 PM (GMT -6)   
Hurting, it sure sounds like you are on the right road.  I live in Florida and summers are the worst for me because of the rain and humidity so I'm very easy on myself during this time.  If I really push myself, I pay for it big time!
I'm having a friend for dinner on Monday.  I went to the store today and bought what I needed.  I'm making a lasagna so I will make it on Sunday and bake it on Monday.  I can't do both cooking and entertaining on the same day when I'm in a flare.  Pacing yourself will help.  As Marlee said, give up the perfectionism.  It doesn't work with fibro!  shakehead I keep my home straightened and clean enough.  It's not the way I want it but it is better than other homes I've been in and the people were healthy, to boot!  I have a sign in my kitchen that says, "If you've come to see me...Welcome!  If you've come to see my home...Make an appointment!"  tongue
I'm glad you are having the kids help out.  It's good for them and teaches them good work ethics and  how to budget their time. 
So, keep up the good work!  Don't push yourself when you are feeling so poorly.  You might try the malic acid/magnesium.  It may help you, too, since your doctor isn't doing much.  Hope you feel better soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 8/22/2008 7:58 PM (GMT -6)   
hurting, you are giving me hope. The kids will eventually clean up after themsleves? Really? lol! They have some chores I assign to each, but the whining never stops during that time, and the questions, asking for help, redoing, checking, etc...it woudl be easier to do it myself sometimes. I hear you about rising prices. Things are tight again now, but I'm not sure where we can cut back. Gas and groceries are a neccesity, and so is internet ;) I'm sorry to hear about your doctor. Why are they liek that? I used to like mine, but he's fast going downhill. Hopefully the weather breaks for you soon, and you can get some relief. Can't say I've had that problem this year, it has been unseasonably cool all summer. (((HUGS)))
in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!

Regular Member

Date Joined Jun 2008
Total Posts : 59
   Posted 8/22/2008 9:30 PM (GMT -6)   

thanks for the kind words.   the weather wasn't quite as humid today (i think). ..i stayed in the a/c most of the day.  mamanan...how old are your kids?  i endured my share of whining and finally said that for each whine, i'd add an extra chore, followed thru and it nipped it pretty quickly.  my oldest started school today, so i only made my bed and emptied the d/w and of course, made dinner...but pretty much just chilled most of the day.  had it not been so darn humid, i would have gone for a short walk just to be moving a bit...hopefully tomorrow morning when it's not so hot.  thanks again...was just feeling so down and hate to be so lethargic and exhausted...it's just not who i am.  i'd really be a mess w/out my adderall!!!

be well! smilewinkgrin

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40401
   Posted 8/22/2008 9:48 PM (GMT -6)   
I hear you Hurting on the adderall. I take it too and if it wasn't for that, I don't think that I would make it out of bed.

I can handle the pain, but not the fatigue. I spent two years in bed before I found a doctor that helped me. I consider myself lucky to have it.
It has been hot and humid here to.  Suppose to cool of on Sunday.  But I imagine tomorrow will be tough.

Hugs, Karen

  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

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