When you say Flare ups.....

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kaymac
Regular Member


Date Joined Jun 2008
Total Posts : 40
   Posted 8/22/2008 12:39 PM (GMT -7)   
Those are you that say "when I'm in a flare" ....what are you like when you are NOT flaring?
 
I mean flares are extra painful, and most double or take extra sleep, and or pain meds, go to bed, heating pads, etc...but when you are NOT flaring...how is your life?? Can you go to work, do housework, socialize, do you have energy, feel almost normal??
 
I'm asking because I can only remember briefly when the lyrica first began for me that I felt almost normal. Now that is't almost a year and I"m displaying new possibly arthritic symptoms...I feel horrible all the time. Is anyone else in a never ending flare??

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/22/2008 12:56 PM (GMT -7)   
Kaymac, I don't know what "normal" is anymore.  I always have pain, but, when in a flare, I have PAIN!  It is more pronounced, more painful, and makes things far more difficult.  That's why I try as hard as  I can not to get in a flare.  Sometimes it can't be helped.  I'm in a flare right now.  It is caused by the summer weather in Florida.  We get a lot of rain and humidity.  This happens every year.  But, I know that soon I will be better.
 
I pace myself...especially when in a flare.  You don't want to cause more problems by trying to carry on as usual.  I just slow down.  I do house work but pace myself.  For example, I'm having a friend over for dinner on Monday.  I did the grocery shopping today.  I'm making the main course on Sunday and will cook it on Monday.  That way I'm not trying to do too much in one day.  That's how you have to plan things in a flare.
 
I hope this explains it a little.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 8/22/2008 1:59:55 PM (GMT-6)


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 8/22/2008 2:06 PM (GMT -7)   

So what you are saying is: there are times when you can do things like everyone else and times when you must pace yourself more?  But if you overdo it, you will get a flare?  By "like everyone else" I mean people who aren't overachievers and work themselves silly.  That is what it is like for me. 

What happened to the rolling emoticon?  he was cute!

smhair Sue

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/22/2008 2:30 PM (GMT -7)   
No.  I always pace myself with fibro.  I can get more done when I'm not in a flare, though.  I've had fibro for over 20 years and I now know how much I can do without causing a flare from overdoing.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
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Date Joined Sep 2007
Total Posts : 40576
   Posted 8/22/2008 2:59 PM (GMT -7)   
I don't think with fibro we ever feel normal. It becomes normal to have pain and fatigue every day. But that is for us. When I am in a flare, I can't get out of bed and I am in a ton of pain. The fatigue bothers me more than anything though.

hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


mamanan
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Date Joined Jun 2008
Total Posts : 846
   Posted 8/22/2008 5:32 PM (GMT -7)   
This confuses me too. I don't have a dx, but everything seems to point so much at fibro... except that I'm not always in pain or fatigued. Most mornings, I get up with a bit of stiffness that works itself off after I move. Most mornings I ask myself why all the doctor's appointments, why am I making all this fuss? Then by lunchtime the fatigue hits and I feel like I am carrying a backpack full of bricks around. My face hurts pretty much every day, and my legs arer usually sore at some point, to a greater or lesser degree. But I can work, although on bad days I drag myself around. I waitress 3 days/week, I work 6-9 hours without a break, constantly walking, even working up a sweat during the peak rush. So maybe my fibro (if that's what it is) is mild? But then I remember the flare I did have a couple months ago when I first joined. I can't remember what the pain felt like, but I do remember thinking that I would never survive this, so it must have hurt a lot.
in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 8/25/2008 1:21 PM (GMT -7)   
When I flare the pain is over the top. There is never a day when I don't hurt, but there are days when I can "function". I always have a limit as to what I can do. I don't always cave in to that limit, however. I overdo, frequently. You'd think I would learn after all these years. When a flare hits though, it's all I can do to get in to work. I can't think well; fog don't ya know. I take extra pain meds, muscle relaxers, etc. I try to sleep, but...
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


kellieak
Regular Member


Date Joined May 2008
Total Posts : 68
   Posted 8/25/2008 5:48 PM (GMT -7)   
hi kaymac. when I was first dx'd, I didn't understand "flare". I felt so bad, all the time. a few yrs after I was dx'd, I began very intensive therapy for post traumatic stress. a side benefit of working on my emotional help was I experienced a HUGE improvement in my health. I began to have good days for the first time in yrs. now I understand what flares mean. I have good days. I have flares. sometimes the flares last a few days, and sometimes but not often they can last a month or more. that is what has been going on lately, a month long flare.

here is how I describe it for me: a good day is a day that I have flu like feelings, achy all over. I can get very tired if I over do it, but in general I usually have strength to work a full time job. never have much more energy then that. a flare day is I am in so much pain I can barely move. and I am so tired, so completely exhausted that I have fallen asleep at my desk at work. ha! it's like the volume gets turned up full blast. all my symptoms which are just kinda troublesome while not flaring, become so intensified that it is really hard to even get out of bed. I have stairs in my house and when I am flaring, the stairs are hard for me.

my life has pain every single day whether I am flaring or not. it's just unbearable to me when I am flaring.

kellie in alaska

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 8/25/2008 6:18 PM (GMT -7)   
One thing to be aware of is that other symptoms from other problems can prolong a flare. I have degenerative joint disease in my spine and the arthritis that accompanies it can be excruciating. When I ran out of my celebrex I was in agony and then went into a full blown fibro flare. Once I got a new supply of celebrex I was human again and the flare in the rest of my body subsided. Fibro sure is wierd.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


luvmyboxer
Regular Member


Date Joined Apr 2005
Total Posts : 155
   Posted 8/25/2008 6:31 PM (GMT -7)   
Normal for me is PAIN. Every moment of every day.
I have learned to "live" with the pain and function despite it. I just do things differently than a "normal" person might do them (pace myself *sometimes*, go slower, etc...)
 
When I am in a flare (these last for months with me), I have so much pain that it is hard to concentrate on ANYTHING besides the pain for the majority of the day. I become even more forgetful (if thats possible!) and I tend to slow WAY down and don't do any socializing. I work and come home. Any additional activity other than normal every day life/work tends to become nearly impossible. I almost hibernate!
 
 
Susi
 
The more time I spend with people, the more I like my dog.
 
 


Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 8/26/2008 7:49 AM (GMT -7)   
Kaymac it took me a long time to figure the whole flare thing out too cause mine stayed the same for a long time. Sadly, I now know what a flare is. For me the fog gets a lot worse, the pain gets a lot worse and I feel like my body is fighting off a horrible virus or something. I have a feeling of not being well.
 
On a normal day I get up usually with little pain and it gets worse the more I move and I have more energy in the mornings and it is gone by 3:00 in the afternoon. I was very proud of myself Fri when we had company that I went til 10:00 pm, that was a very good day.
 
I do remember what normal is and I haven't felt normal for years. More because of the fatigue than pain. But now even on a low fibro pain day I'm dealing with painful osteoarthritis in my hands that is worse than the fibro pain.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
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AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 8/26/2008 7:51 AM (GMT -7)   
I think it is different for everyone, which is one of the reasons that this is such a difficult condition to pin down.  I pretty much hurt all of the time.  If I over-do it (and what constitutes over-doing it for me fluctuates greatly), I know I will pay for it that night or the next day (or week).  But then sometimes, I will just be in excruciating pain for no discernible reason. 
 
I think a "flare" for me (and I would say I've been in one for the past couple of months) is when it takes very little to send my pain skyrocketing.  I've had a hard time lately just doing the everyday things that need to be done (like just getting out of bed).  :-)
 
I actually went to Disney World a couple of years ago, and did really well.  I couldn't imagine doing that today.  I'm hoping my "flare" dies down and I can get back again to where I was even a few months ago. 
 
One of the things that makes Fibro so hard to deal with is that it is so unpredictable.  You get used to one set of symptoms and limitations, and then it changes (sometimes for the better, sometimes for the worse).  You constantly have to re-evaluate and adjust.
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 


Ingenua
Regular Member


Date Joined Jul 2008
Total Posts : 82
   Posted 8/30/2008 6:07 AM (GMT -7)   
A flare up for me.. is when i have bad pains.. and i can't do anything.. cuz i'm so sore.. and it just hurts so bad.. and i can't even lay down without hurting. that's the time when i drug myself up. A LOT lol i consider that a bad flare up. they usually leave me in tears.. and i'm bedridden. the last time i had one was well over a month ago.

I'm not in pain everyday though.. but i have extreme fatigue often.. like.. let's just say.. i tire out really easily and my energy is gone quickly. i use it up fast.. cuz i'm pretty hyper.. and my job is very physically demanding. and i work 40+ hours a week sometimes. i know i shouldn't be working where i do.. but i don't mind it and it's very social too.. and i really hope that the day doesn't come when i have to stop working there.

i do wake up stiff every morning.. and i have this *burning* kinda sensation happening in my wrists and arms.. that would be my mildest forms of pain i would guess. it feels like tired muscle i guess.. i have no idea. some days it's more.. and it bothers me.. but some days.. i barely notice it. my feet hurt too.. and my ears.. and my legs sometimes.. (mostly at my joints though).. but sometimes i think the leg/feet thing are partly cuz of my weight and not 100% cuz of the fibro.
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