Sherrine and Jeannie

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mamanan
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Date Joined Jun 2008
Total Posts : 846
   Posted 8/25/2008 6:36 AM (GMT -7)   
I hope it's ok to top post, I didn't want my answer lost in the original post below :)
 
Thank you for the reassurance on the malic acid.  Yes, my NP has absolutely no clue on the effects of this, he said he wanted to do some more research.  And being the good little patient that I am, I always follow doctor's orders! lol.  Well, I've given him his chance, I will go ahead with it now.  We spoke about this 2 visits ago, and at the last one, I reminded him again about checking my vitamin levels (I've had b12 checked, but not much else I don't think.  He had also mentioned checking D especially.) but there is still no requisition made for blood work.  I am tired of waiting.  At my last appointment (1 1/2 weeks ago), he said he was referring me to a rheumatologist, and he prescribed 5mg of amitryptaline.  This was to be monitored weekly to increase the dose until I saw relief.  I've had no call for an appointment to the rheumy (which I'm sure will take at least a couple months once I do) and no call to monitor the drug.  And now he is gone for 2 weeks on holidays.  I really liked him when I first started seeing him, but not so much anymore.  Siince my first visit at the beginning of May, he has done nothing but told me to wait and monitor my symptoms.
 
Couple more questions; once I start taking the malic acid, how long until you start to see effects?  And will this cover up any symptoms/ or make it harder for the rheumy to diagnose me once I get the appointment?  I don't have a dx of fibro yet, does that make a difference?  Thank you so much for your help!!!
 
Oh Sherrine... I bought myself some Birks, knockoffs, lol.  I do find a difference with the heel pain, but now the rest of my feet hurt.  Like cramping all over the top of the foot.  Did it do this for you until you got used to them?  Or have I developed a new symptom do you think?  I've had them for about 2 weeks I guess, and the other pain has started for about a week. confused
in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/25/2008 7:24 AM (GMT -7)   
Mamanan, it varies when and if the malic acid starts helping you.  The average is two weeks, I think.  The thread on malic acid explains how to take it...gradually.  The links explain how it works in the body so you might print them out and give them to your doctor so he can understand it, too.  There is even a link to a scientific study done on malic acid and magnesium supplements.
 
I hated my Birkenstocks the first month I owned them.  I could only wear them for an hour or two a day.  Gradually I was able to work up to a full day.  I'm not sure if I had upper foot pain since it's been 14 years ago but I do remember my back hurting more and my feet, in general, hurting more.  The shoes have you carry yourself properly. 
 
I'm not sure if the knock-off are doing it, either.  Birkenstocks are made a specific way with specific material that give support.  The knock-offs don't do that...that's why you can get them much cheaper.  So, I can't answer your question about that.  Hope this helps some.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 8/25/2008 10:27 AM (GMT -7)   
Funny, I wear Birks, too. I've been taking the malic acid for so long that I can't remember how I felt before, except that I was beyond tired and in lots more pain. I took 2400mg a day for about 3 years and then last year in the middle of an exceptionally busy wedding season I upped it to 3200. I noticed a vast improvement in about three days. Less pain, less muscle aches, more diarrhea (LOL!) Oh well, guess we can't have everything. tongue
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 8/25/2008 11:38 AM (GMT -7)   
Sherrine and Jeannie, I started on Malic Acid/Magnesium in April, but I finally quit yesterday because I didn't notice any improvement. I was so hopeful. Maybe Marlee won't feel so bad about not being able to take it, now. I was on 3300 mg. a day for three months. I guess if I start to feel worse now, I'll know it did some good. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40565
   Posted 8/25/2008 12:12 PM (GMT -7)   
Diane,

I am so sorry that the malic didn't work for you. It has helped me tremendously. I feel so much better. And my muscles feel better too. Maybe you just didn't need the nutrients. I really hope that you find something that works for you.

Luv and hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/25/2008 2:53 PM (GMT -7)   
Diane, this is the worst time of year for me with fibro.  In Florida we get a lot of rain now.  I've been in a flare for several months, but I'd just hate to see where I would be without the malic acid.  So, maybe it is helping you but this is a bad time of  year for you.
 
It doesn't help everyone, though.  I'm glad you gave it a shot and I hope you find something that helps you.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 8/25/2008 3:08 PM (GMT -7)   
thanks for going over this yet AGAIN! lol. I had read through the posts on it, but not the articles the last time it was bumped. I am really excited to try it. Diane, I'm sorry it didn't work for you. But like Sherrine said, maybe you would be worse off if you weren't on it?
in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!

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