numbness in fingers

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Date Joined May 2008
Total Posts : 68
   Posted 8/25/2008 11:46 AM (GMT -6)   
about 8 yrs ago, before fibro dx, I had pretty severe carpal tunnel syndrome and eventually had surgeries on both sides, which really did help me for a long time. recently I have been in a bad flare going on close to a month in duration now. which is why I haven't been around much, I was struggling to work all month and coming home and just crashing hard. it's been awful, last week I cried every morning on the drive to work. thank goodness I am feeling better this morning! afraid to even say that!

anyway, I have noticed the I keep losing the feelings in my lower arms and hands and fingers. not quite like that totally asleep feeling, but weird and uncomfortable. I am a beader, crocheter and a crafter, so when I am off work and I have energy I am constantly using my hands. at work I use my hands on the computer all day long, or writing, or doing something with my hands, so I do understand that maybe the carpal tunnel has come back. I read that lots of us with fibromyalgia have carpal tunnel problems. I can't afford to lose the use of my hands again like I did the first time. and I don't have insurance to help me pay for medical help at this time.

I keep hoping it's just one of those strange fibro problems that I get that come and go on occasion. like the strange rashes I will get or the jaw pain. not constant, just showing up occasionally, lasting for a week or two and then going away for a long time...that is what I keep hoping. that it will just fade away soon!

I have missed you guys so much. I was reading on occasion, but I think my last post was a thank you for the ribbon.

kellie (cold in alaska)

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Date Joined Aug 2007
Total Posts : 6067
   Posted 8/25/2008 2:11 PM (GMT -6)   
I'm sorry your having such a hard time right now Kellie. I haven't had any numbness in my hands but I'm getting more numbness in my feet. Doc said it was neuropathy. We can get nerve entrapment in the knots in the muscles so that is an idea. I have not had CT so I really don't know how that feels.
I have had to give up a lot of crafts due to osteoarthritis in my hands.
I hope it goes away and you continue to get better.
luv and hugs
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Date Joined Jun 2008
Total Posts : 44
   Posted 8/25/2008 2:35 PM (GMT -6)   
Dear Kellie,
You are the first person that I have ever talked to in Alaska. I don't know if this has anything to do with fibromyalgia, but my forearms where they collect blood are numb all the time. I found it out because a tech couldn't get blood out of my veins. She was almost in tears until I told her that I couldn't feel a thing.
I told my PCP about it, she told me to tell my rheumatologist-he had no idea why they would be numb-no one else got excited about it, so I decided to wait and see if it gets worse or changes in anyway in the future.
Personally I think I get more help from looking things up on the internet. Just one time I would like my doctor to say "I don't know, but I will find out." I'm not holding my breath until they do. wink
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Date Joined Aug 2008
Total Posts : 320
   Posted 8/25/2008 3:00 PM (GMT -6)   
I have CT also. It could be one of a few things. Possibly scar tissue has formed causing problems; Neuropathy could be the problem; The CT has returned. That is about all I can offer you. Do you ahve neck issues? That can cause CT also. I suggest you get some good quality braces and wear them while you sleep. This can help enormously during the day.
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Date Joined Apr 2005
Total Posts : 17053
   Posted 8/25/2008 4:38 PM (GMT -6)   

Kellie, I get tingling in my fingers but my arm doesn't get numb like yours does.  But, a pinched nerve in the neck could possibly cause that.  I have been told I have carpal tunnel but it comes and goes.  When I have a flare, my hands do act up.


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Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 8/25/2008 5:17 PM (GMT -6)   
Kellie, like you I had carpal tunnel then surgery in both hands. My hands started getting numb again in May, when all this fun started in earnest with me. It IS different then the CT. My doctor keeps shrugging it off and telling me it came back. But I know how it feels, it's a different quality of numbness. This starts about the elbow and goes down progressively worse as it gets to the hand. CT starts at the hand and stays there. That is the best way I can think of explaining it. Oh, and I do have CT again, but now it's the other nerve, the one that controls the pinkie and ring fingers. This one only bothers me when I sleep (on waking I mean :P)
in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!

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Date Joined Jun 2008
Total Posts : 844
   Posted 8/25/2008 6:13 PM (GMT -6)   
Kellie, Good to hear from you again.  I have numbness in my fingers but I was afraid it was because I stay on my computer too much and use a mouse for so long at a time.  I also play piano and they are starting to even give me trouble playing. 
I also have some numbness in the first two toes on both feet.  I thought that was from double knee replacement but perhaps it is from my Fibro.
How cold is it where you are?
God Bless!
Of all the things that I have lost, I miss my mind the most!!!!

Regular Member

Date Joined May 2008
Total Posts : 68
   Posted 8/25/2008 6:46 PM (GMT -6)   
shannon, it isn't that has been a cold summer compared to what we usually get. july's average temp this year was 55 degrees! that isn't what we are used to, it is usually warmer. we also have gotten about double our rainfall this summer. it has been gray and damp for months now. global warming you know! devil yesterday morning I ended up putting longjohns on under my pjs, a big hoodie with the hood up, thick sweater socks and slipper booties, and my fingerless gloves and I was still cold. it's only getting down into the 40's at night right now, it really isn't that cold. I think it is just because I have been flaring for so long that I am reacting to it so much.

mamanan, I am glad to hear from you. I was thinking it felt different then the carpal tunnel. I don't remember having the numbness in my lower arms, it was mostly hands and fingers before. my left forearm and palm of my hand is numb right now.

bev, I KNOW I am better educated then my rheumy. I was thinking perhaps of looking for a different one, but I have this weird sense of loyalty because he was the first doctor who listened to me and believed me and dx'd me. I probably know more about fm then any doc up here. shakehead someday I hope there is enough research done that that won't be such an issue for all of us.

and thanks everyone else for responding. I think I will go get some braces, I know how much that did help me way back then. and some B vitamins are supposed to be good for CT. instead of ignooring the symptoms, like I did 8-9 yrs ago, I should recognize the problem and do something about it!

kellie in alaska

Sera Smiles
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Date Joined Nov 2006
Total Posts : 671
   Posted 8/25/2008 7:14 PM (GMT -6)   
Kellie, I am dealing with much the same thing- this IS different from CT, the numbness and pain seem to originate from above the elbow. I have a pair of craft gloves at a local craft store that I use when doing needlepoint. They weren't pricey and they do provide support. I hope you can find the cause of this new ick and feel better.
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