Fibromyalgia & pain clinics

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New Member

Date Joined Aug 2008
Total Posts : 1
   Posted 8/26/2008 4:48 PM (GMT -6)   

Hello I am Kellie & am new here,  I was recently diagnosed w/Fibro. I have been livin in pain for

10 yrs. I was given antidepressants- which i was already taken because my brother died sudenly

He was only 21 & drowned at Nelsons ledges Quarry. I go to the Cleveland Clinic which is a great place~!
 But the trouble is i havent been prescribed anything for pain, I am NOT a drug seeker but am treated as one. THis really upsets me.

I would love to go to a pain clinic in the Cleveland area who could prescribe vicodin. the doc tried givin me Cymbalta which i wanted but i am uninsured & it was 144 $ even the effexor was 80$ If you know of a specific place i can go (self pay) & get some real pain relief medicine please let me know. I feel awful today & the fibro fog is kickin my butt!@ THANKS SO MUCHHH!

Veteran Member

Date Joined Jun 2008
Total Posts : 903
   Posted 8/26/2008 4:55 PM (GMT -6)   
I'm sure you need something for pain; my mainstay was motrin and muscle relaxers, but the most effective med they gave me was elavil an old tricyclic antidepressant. More popular now is Lyrica. I would warn you against using the Effexor, it is incredibly difficult to stop using, sometimes taking 6 or more months to wean yourself off if you have been on it for a while.

It sounds like the people at CC are following the conventional route; you may ask them for something like motrin; they may be more receptive.

I would contact the manufacturer of Cymbalta; most pharmaceuticals now have programs where you can get the meds for free or cheap if you don't have any insurance. Look it up on line and there generally is a button to click on that mentions assistance with prescription costs.

Good luck.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17059
   Posted 8/26/2008 5:19 PM (GMT -6)   
Lexi, welcome to the fibromyalgia forum.  I used to live in Cleveland and the Clinic is a terrific place.
Now about pain.  I use ibuprofen and Tylenol for my pain and I also take malic acid/magnesium supplements.  They have helped with the pain and the fatigue of fibro.  I'll bump up the link about that and you can read all about it.  There are links on that thread that explain how the malic acid and magnesium work in the body.  They are not that least where I get them.  Check that out.
Also, check out the Fibro 101 thread...the second thread on the forum.  There is a world if information in it that could help you.
Try hot showers, rice bags that you heat in the microwave, and gentle stretching exercises.  There is a list of those on the Fibro 101 thread and they are done while sitting down.  Keep moving.  If you sit for long periods of time, you will be stiff as a board.  Lastly, try to calm down.  The stress will make the pain worse. 
You definitely cannot go to a doctor and ask for pain medication.  That sets off red flags for them.  When you do see a doctor, explain your pain and how it is affecting the way you live.  Maybe keep a daily journal of your pain and take that with you, too.  Let THEM make the decision about the stronger medications.
Let us know how things go.  We do care.  Hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 8/26/2008 10:50 PM (GMT -6)   
I think we are all made to feel like we are druggies.  I couldnt manage without the med that the pain management guy gave me.  He is very good but it took two before I got one who took the pain seriously, im lucky because the pain guy specialises in rhuematoloogy issues as well.   YOu may need to try both.  It is very time consuming I can onnly suggest that you ask your doctor for muscle relaxants.  Welcome to the  group they are fabulous.  suez2 :-) :-)
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 8/27/2008 10:16 AM (GMT -6)   
Hi Lexi and welcome to our family. I'm not on narcotics for pain I take 4000 mg of tylenol a day and I take 100 mg of amitriptyline at bed time. One of my biggest sources of pain is osteoarthritis in hands and I use lidoderm patches for that. I do take tramadol sometimes but can't say it helps that much. I use a TENS unit to interrupt the pain signal to the brain when it gets real bad. I use all the moist heat mentioned.
It is sad that fibromites are made to feel like drug seekers but you do have to be careful how you ask for help with the pain. Maybe someday it won't be like that.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

New Member

Date Joined Sep 2008
Total Posts : 8
   Posted 9/1/2008 8:03 PM (GMT -6)   
Hi i am julia in australia and have had CFS 25 years and Fibro for 10.Earlier this year i went to a pain clinic,we get alot of help in oz free,and cheap meds for the poor.I have 4 interveiws with 4 different specilaists and was put on Norspan Patches 5mg.
They really helped,my 100% body pain and burning left and i could move around a bit more,still pain at times and cant do a lot.
Last few days my patches feel like they are not working and i am in screaming agony once again,i am on antibiotics so wondering if they are interfering at all.
If you can get into a pain clinic,(2 years wait here)do go,doctors know that fibro is real and painful,after years of misdiagnosis with CFS you can get help with fibro good luck julia
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