travelling pain?

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mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 8/30/2008 9:52 AM (GMT -7)   
From all the reading I've done on the board, I understand that fm pain is never static; what hurts can change from day to day, even hour to hour.  OK.  But what about pain that only lasts a few minutes?  Is this "normal" too, or as normal as fm gets?  Lately I've had a travelling pain that usually affects both sides of my body, and it only lasts a few minutes before it moves on.  So one minute my ankles hurt, then I get pain in my back, then the arms, back to my calves, etc, etc.  The longer I have this, the more convinced I am that it's fibro.  I used to think more ms, b/c so many of the symptoms felt neurological, like numbness, hot sensations, pins and needles and short stabbing pain with dizziness.  Those have all but gone now, and the pain is left.  It really does feel more like the muscles too, not phantom pain anymore.  But with such varying pain so often in the day, how do I keep up my pain journal?  I started it up again for when (if ever) I get to see a rheumy, but I'm finding it really difficult to keep it concise.  Right now I'm breaking it up in AM, afternoon, and PM, where I hurt and a number factor.  Should I try to include how the pain feels too?  Once it's gone, I have a tendency to forget how it felt.  My last appointment with the doctor left me really doubting how to describe how I feel.  Oh, and did I tell you that after prescribing me the amitriptyline (that was supposed to be monitored weekly until I saw relief) and saying that he was referring me to a rheumy, he didn't get back to me the next week, then went on holidays for two more weeks.  I am NOT a happy camper right now.  cry
in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/30/2008 12:25 PM (GMT -7)   
I have a place on my head that I get little shooting pains in sometimes. It is sore to the touch and caused from the muscle in my neck. Some of these little pains that don't last long could be referred pain from a trigger point somewhere else in your body when you move. Myofascia pain syndrome causes referred pain elsewhere. There is an article in the fibro 101 thread about fibro and MPS.
 
I know it can get complicated trying to figure all this out. So yes you can have pain in an area for a short time like that.
 
I wouldn't be happy either. Were they suppose to up the elavil dose with time???
 
I fired my rheumy after my last visit cause I think I know more about my disorders than he does, literally. I see my GP next week and I'm going to get a referral to a woman rheumy that treats fibro and MPS and give her a try. It will be a long drive to see her but that's the way it is around here.
 
I do hope you get answers soon.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40598
   Posted 8/30/2008 1:58 PM (GMT -7)   
Hi Mamanan,
 
If I were you, I would try to write everything that you can think of at the time when you write in your pain journal.  What you were doing even as to when the pain is bad.  It is so easy to forget how it felt.  Even how bad it was after it is gone.  I find keeping a journal of things helps so much.  With fibrofog, it is so easy to forget things.
 
Good luck at the rheumy.  When you get there, right?  I hope that the visit goes well.
 
Best wishes for a wonderful day.
 
Luv and hugs,  ...Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 8/31/2008 6:30 AM (GMT -7)   
Marlee, I did read the article on MPS, but I can't make heads or tails about it. I want to get a book that may help me understand all this better, but I'll wait for a dx before I spend my hard earned money, lol. Besides, no need to fill my head with preconceived ideas until I know for sure. And yes, they were supposed to increase the elavil. He had me started at just 5 mg. It knocked me out for the first 2 nights, but now I think I'm used to it enough. But, I do have to remember to try to take it earlier. I've been taking it at bedtime, which for me is about 11pm, and I have a hard time getting up in the morning. I'll never make it once the kids are in school. I also have to figure out what to do when I work. I decided not to have my dose last night because I didn't get home until past midnight, and I needed to get up this morning. I ended up having a really bad night, I didn't realize how bad my sleep used to be. But since my pain has increased, I do think I need more. Although.... I have had only very mild facial pain for the last week. This is the first time in 4 months that I don't want to rip my face off!!! woohoo! :) Good luck at you new rheumy's appointment. I don't have the luxury of firing my doctor, I'm one of the lucky ones that even has one!

Karen, pain is so easy to forget. It's fascinating, isn't it? I struggle with that almost every morning. What? I feel ok, how can I be sick? lol. Have a great day :)
in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/31/2008 7:24 AM (GMT -7)   
Mamanan, with elavil you can't skip doses or stop it abruptly. I've been on 100 mg for 10 yrs and tried cutting back this spring a little and ended up in a flare of burning searing pain for two weeks. I do have less pain than most people it seems so I don't know if it is the elavil/amitriptyline but I do know what happened when I tried cutting back on it. The side affects should go away. I do wonder if it contributes to my fatigue but unless they come up with something to replace it for the pain I will never know cause I'm not cutting back on it again.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 8/31/2008 7:41 PM (GMT -7)   
Mamanan-
I get pain that I feel in an area of my body and then it goes away to have another area hurt, must be normal.
It's good to hear your face pain was mild this past week, mine has gotten better too. It was bad there for awhile. GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 8/31/2008 9:40 PM (GMT -7)   
When I get severe pain, it can last anywhere from a few minutes to a few days. So yes, this happens to me as well. It's so strange to feel a sharp pain and then almost as soon as you've registered it, then it's gone. It seems to happen a lot with my feet. My foot decides it doesn't like the way I've stepped down on it and I get a sharp pain hurting enough to make me gasp and then it's gone.

I also have times where the pain will move from one spot to another, and it's so frustrating because I never know what's going to hurt next. It's also hard when you get pain in two different spots at the same time. Once day I was having bad pain in my right ankle and my left knee. I didn't know which leg to limp on and I think I was lurching around like the Frankenstein monster! shocked

Another thing that happens is that I get something called icepick headaches. This is when you get sudden severe pain on one spot on your head and it hurts so much that you literally have to stop what you are doing and ride the pain out. There have been times I've actually screamed from the pain and scared other people in the room. Luckily these kinds of headaches only last 10 seconds to a minute or two. I'm so glad that I've only had this happen a handful of times in my life. I've no idea if this is related to the fibro or not, but thought I'd throw it out there.
~Kythe
____________



Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia

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