I'm new here, Hi All!!!!

I'm new here
2
multipal illnesses - 33.3%
2
Pain - 33.3%
2
Fatuige - 33.3%

 
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Chitababy
New Member


Date Joined Sep 2008
Total Posts : 7
   Posted 9/1/2008 3:14 PM (GMT -7)   
Hello everyone, I'm new here, actually I'm new to Fibro.  It seems like I have everything, RA, Heart Bypass, COPD, Lupus, Sensory Nuropothy, Clinical Depression and now this.  The pain clinic said I have 14 out of 18 pressure points, boy that wasn't fun.  Leave it to me to score high on something I didn't want too.  LOL
Anyway he started me on Lyrcia, after a special dispension from God so my insurance would pay for it.  Forgive me if that offends anyone but it seems anymore to get anything other than asprin you've got to jump through so many hoops. 
I've been feeling bad for so long now I can't remember being well.  I just turned 65 and the last 14 years have been hell.  I had to laugh when he asked if I excersize.  I take care of a family (mine) of seven including 9 yr old twins.  I do all the cooking, shopping, laundry, and cleaning.  Not ike I used to mind you, but it does get done, mostly.  LOLOL 
My hubby is retired and is a big help, but I do't know how much longer I can go on like this.  Day after day it's the same thing, pain, pain, pain.  Anyone out there in the same boat or have any suggestions?

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40595
   Posted 9/1/2008 4:42 PM (GMT -7)   
Hi Chitababy,
 
Welcome to HealingWell Fibromyalgia Forum...
 
I think that we are all in that same boat at one time or another.  It seems like the pain and fatigue are never ending.  But mine is tolerable with the help of medications and being stubborn.  Sometimes I am able to mentally fight the pain.  But the fatigue is a different matter.  When it takes over, I am done for. 
 
There are tons of wonderful threads you can read to see that you are genuinly not alone.  One is fibro 101.  It is the second thread on the forum.  There are multiple fantastic threads on there.  There is a thread on malic acid/magnesium.  It has helped many people including me.  I think that you will find the information very interesting.
 
Feel free to post on any thread that you find interesting or that you can relate to.  I hope to hear more from you here on the forum.
 
Best wishes for a fantastic day,
 
Hugs,   ...Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 9/1/2008 4:42 PM (GMT -7)   
Hi. I'm new here myself, but everyone seems so nice and caring.  Only those who suffer from fibro (and all of the other nasties that go along with it) can truly understand what it is like to live in these bodies day in and day out.
 
I told my husband this morning that I think I've finally found my people!  smilewinkgrin
 
The only suggestions I have are to listen to your body and don't over-do it, try some gentle stretching, and be very kind to yourself. 
 
I've also tried massage, heat, magnesium/malic acid combo, vitamin D, relaxation tapes, Lyrica, muscle relaxants, and ibuprofen (not necessarily all at the same time).  Some of it has helped, some not so much. It's been trial and error for me, and sometimes what works today, won't tomorrow.
 
I hope you find some relief. 
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain.
 
 
 
 
 
 


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 9/1/2008 5:31 PM (GMT -7)   
sad  I hit rock bottome around a year ago, sat there and just couldtnt imagine a future, then I saw a rheumatologist and he gave me something decent for the pain and now at least I cope , but barely .  The pain is much less but still always some pain and always this rotten tiredness.  I am always the odd one out because I cant join in wth the family.  I hate thinking ahead it is so depressing, you shoud question to see if they can give a decent pain killer,  cant remember if you had a list of your meds .  I dont know how you manage, I take my hat off to yu because I know I couldnt.   One day at a time,  hugs and welcome  sue2z :-) :-) :-)
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


Waterbaby
Regular Member


Date Joined Aug 2008
Total Posts : 96
   Posted 9/1/2008 11:53 PM (GMT -7)   
Hey Sue2z can you tell me which meds. on your list are for pain? I am seeing a rheumatologist on Friday and was curious what helped you. Thanks! Waterbaby
bulging discs in neck & thoracic region, low back pain, arthritis in lumbar region, diabetes, high blood pressure, depression, anxiety,
meds: enjuvia, pristiq, actos, amaryl, lyrica, hyzaar, vicodin


Waterbaby
Regular Member


Date Joined Aug 2008
Total Posts : 96
   Posted 9/1/2008 11:57 PM (GMT -7)   
Hi Chitababy, I just joined the forum too. I am 49 years old and there's no way I could take care of all those people in your family! 9 year old twins too! I applaud you for all you do. Welcome to the forum!

Waterbaby
bulging discs in neck & thoracic region, low back pain, arthritis in lumbar region, diabetes, high blood pressure, depression, anxiety,
meds: enjuvia, pristiq, actos, amaryl, lyrica, hyzaar, vicodin


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 9/2/2008 4:43 AM (GMT -7)   
Hello Chitababy, and welcome!! I'm so glad you joined our group, I'm sure you will love it here. Everyone is so supportive and helpful. My doctor said the same to me too, I need to exercise. So running after a toddler and 3 other young kids, as well as running the house isn't enough? lol. I hardly sit in a day as it is. Actually, I think I feel worse when I sit, because my fatigue always hits hard right after lunch. maybe it's because I take a break then? Yours must be one busy household! Does the noise level get to you? I find that's the hardest part of having a larger family.
in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 9/2/2008 5:18 AM (GMT -7)   
Hi its me suez2.  The med that I get from my pain/rheumy specialist is a patch that gets changed weekly, it delivers a certain amount of the drug into my system every hour for the week its called Norspan patch buy its medical name is Buprenorphine.  I live in Australia so you might not have that one but there are others.  I see a pain specialist who specialised in rheumatology .  Before the patch I truly thought of self harm, but since the pain has lifted I can be rational.  Every ones pain levels are different so its important to tell them if you are having a bad time and dont let anyone make you feel guilty for needing stronger meds,  this forum is really good though, really supportive.  Good luck.  let me know.     suez2 idea idea :-) :-)
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/2/2008 5:49 AM (GMT -7)   
Hi Chitababy and welcome to our fibro family. I'm sorry you have so many illnesses. You do have a lot on your plate taking care of such a large family. You have been given some good advice already. So read, ask questions and vent when you need to we are here for you.
 
luv and hugs
Marlee
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 9/2/2008 6:52 AM (GMT -7)   
Hi Chitababy and Welcome-

Oh, are you busy!! I watch my 3 year old granddaughter for a day or an evening and I'm worn out! And twins! I have twin nieces that are grown up now but I know they kept my sister on her toes and she didn't have fibro! Thank goodness your hubby helps. Maybe start recruiting help from the rest of the family? My 16 year old is a big help when I ask him to pitch in.
My worse pain is under control (just got diagnosed this past spring) but I do have pain everyday to some level. It's a day by day thing for me.
Nice to meet you and I hope the Lyrica will give you some relief. GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 9/2/2008 8:27 AM (GMT -7)   
Hi, Chitababy, and welcome!  I'm so glad you joined us.  You have ocme to a good place where people genuinly do care and help one another.
 
You have been given good advice.  Check out the Fibro 101 thread, as Karen said.  I'll bump up the malic acid/magnesium thread for you.  I didn't put that on the Fibro 101 thread.
 
Read, ask questions, and we will help you.  Hope to hear from you  soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 9/2/2008 4:47 PM (GMT -7)   
sue2z again , I posted a forum quest on pain meds a couple week ago and her are some mentioned, lidoderm patch, fentanyl patch, licocaine patch, vicodin, baclofen and oxydone. Maybe look them up on the net.  Good to have info at hand before.  Dont feel bad to ask if you need stronger meds,  some of us do.   Docs make you feel bad for asking though.  luck sue2z  hope ive helped. :-) :-)
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


Southernlady
Veteran Member


Date Joined Jun 2008
Total Posts : 844
   Posted 9/2/2008 7:28 PM (GMT -7)   
Hi Chitababy!  I just wanted to welcome you to our family.  I'm 60 years old and still trying to hold down a full time job, but I don't know how you keep going.  It wears me out to think about what your going through. 
 
You've come to a wonderful place to meet a lot of caring people. 
 
Hope you start feeling better.
 
God Bless!
Shannon
Of all the things that I have lost, I miss my mind the most!!!!


Chitababy
New Member


Date Joined Sep 2008
Total Posts : 7
   Posted 9/5/2008 1:25 PM (GMT -7)   
Thank you everyone for such a warm welcome, I will check out Fibro 101 and the mag/malic acid combo.  It's sad that in this day and age we have to go around being in pain because we can't get the drugs we need.  Not drugs to get high but to take away this awful 24/7 pain.
I went to the pain clinic and the first thing he asked me was what I expected from this clinic?  I told him I want to be free from pain, he told me that it woudn't be possible, maybe take away 40-50% at best.  He said I wasn't doing enough for myself like excersize, mind over matter, positive attitude, stuff like that.
First of all I'm on oxygen, should be 24/7 but I only do it at night or when I really need it.  My endurance is nill.  RA is crippling my hands, nuropthy is crippling my feet, my back is in spasims.  He did say I should be getting shots in my back but since I just had heart surgery and am on Plavix, they won't do it until I'm off, which is a year. 
Am I asking too much of the medical profesion?  Is it possible to be pain free? 
He took me off the Gabapenten and now I'm on the Lyrca, I'm hurting more than ever. 
Your right about noise mamanan, it bothers me more than I can say, but whacha gonna do?  Kids just aren't quiet.  LOL
Who do I talk too, where do I go?  My medical plan suggested I go see a physicrest, am I nuts too along with everything else?
 
 


Chitababy
New Member


Date Joined Sep 2008
Total Posts : 7
   Posted 9/5/2008 1:35 PM (GMT -7)   
Oh I almost forgot,
I've got:
RA, Fibromylaga, Sensory Nuropthy in my feet, Bad heart, high blood pressure, clinical depression, Lupus, and foggy brain
 
meds:
Lyrca, Sunvastatin, Leflumomide, Quinapril, Predisons (Prn), Plavix, Hydroxychlor, Klor-Con, Effexor, Diltiaz, Asprin, Temazepam, Spiriva, Enberal, Fish Oil, MultiVitam, B Complex, Oxygen
 

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