-If it's my neck, it will feel like someone is trying to rip my head off of my spine because the neck muscles are pulling on themselves and hurting so badly. It will usually spread to one side of my face and make it impossible to chew because my jaw will be unable to open, or unable to shut, depending on my luck with which area of my face muscles get affected and end up locking up.
Oh, good questions, I should have thought to include that in my original post. I have been having pain problems for about 20 months, mostly off and on until recently. It was usually just isolated to my face, and affecting my jaw, or it would only affect my right leg, and those areas being hurt and locked up would last for months and the doctors would load me up with steroids and send me to physical therapy and it would get better for maybe 2-3 months but come back again. Occasionally my back would experience the someone-is-tearing-me-in-half feeling and it would go away after a couple weeks. My hands would get the stabbing problems and the excruciating thumb pain but it would usually only last for a day and then magically go away. For some reason in this past month I started to get all of the muscle problems together, only they wouldn't go away, and it eventually got to the point where I had horrible pain in every muscle and joint except for my right hip, so the doctor was like umm ok you should go to the rheumatologist, like...now.
The rheumatologist said I almost certainly have fibro and that I might have developed fibro because I had a major surgery back in december, and that surgery was also while I was experiencing a severe illness that took months to recede, and that my nervous system could have become over-sensitized from all that constant attack and trauma to my body and it may be reacting very badly to any small pain stimulus now. He said since I wake up a lot in my sleep from it hurting to lay down, that the flexeril should help with sleeping and with relaxing the muscles when they lock up and hurt so badly. Although the flexeril did not help my face or leg problems in the past, for some reason it seems to be helping now. I only take 10mg right before bed. Like I said, I feel much better than when I wasn't on flexeril, but I still seem to develop a locked-up muscle each day and it hurts a whole bunch.
I have tramadol for when I'm in lots of pain, but I don't have any refills for it so I save it for when it feels like I am being murdered, and it really helps relieve the pain. If it just really really hurts and I want to cry, I don't take the tramadol because I have a limited supply, but that is frustrating in itself.
I didn't understand why it would hurt so badly, I wasn't sure if it is normal or not. I kind of gathered that most fibro patients have pain every day, but "it feels like someone is amputating parts of my body" didn't seem to be a type of pain level that is common. If it is normal, I am going to ask the doctor if I can get a refill of the tramadol, otherwise I am afraid of sounding like a drug addict if I ask for more pain pills I can't take tylenol because I am horribly allergic to it, and I have crohn's disease so whenever I take ibuprofen, aspirin, etc it makes my stomach or intestines bleed. It's hard to get any medicine at all that I can even safely eat, let alone help with the pain, so I am not sure what to expect.
Post Edited (Enochroot) : 9/2/2008 4:57:49 PM (GMT-6)