Does Fibro lesson with time

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Date Joined Jul 2008
Total Posts : 368
   Posted 9/4/2008 1:00 AM (GMT -6)   
confused  Mucked up last posting so this will prob come up twice.  Just wondering, I hear off people having fibro for such a long time and I was wondering whether it lessoned over time.
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
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   Posted 9/4/2008 10:11 AM (GMT -6)   
It fluctuates, Sue.  Some times I'm doing better and other times I'm worse.  Overall, it has worsened with time...but not to the point I can't control the pain.  Thanks to malic acid, I could type that last sentence.  yeah
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   Posted 9/4/2008 10:40 AM (GMT -6)   
It had worsened witth me too. Sorry!
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   Posted 9/4/2008 11:05 AM (GMT -6)   
Everyone is different but for me it has gotten worse in the past 16 mos but I suffered a great loss that may be contributing to it. Our bodies don't handle stress well and I have had plenty of that. I don't think anyone can predict the future with fibro.  I like to think there is help right around the corner for all of us.
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   Posted 9/4/2008 11:12 AM (GMT -6)   
My fibro seems to have lessened, but I think that is due to the medications that I take and the malic acid. I don't know where I would be without the help of meds. When I first got it, I spent two years pretty much in bed. The pain and the fatigue was overwhelming. But thanks to the help of the meds and the malic, I am doing much better.

I hope that yours doesn't get worse. Only better.

Hugs, Karen
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   Posted 9/4/2008 11:37 AM (GMT -6)   
I'm sorry to say that mine has gotten worse over the past couple of years.  I've had it for at least 10 years, but the increasing pain and fatigue drove me to finally get an official diagnosis last year.
I know it is different for everyone, and I hope yours goes the other way. :-)
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Regular Member

Date Joined Jul 2008
Total Posts : 82
   Posted 9/4/2008 1:09 PM (GMT -6)   
I've only just been diagnosed.. but from about 13 months ago when it all started to now.. i do notice that my symptoms are more and for longer periods of time.

Stress, unfortunately, is one of the worst triggers for Fibro. Which probably explains my recent flare ups.
: (

It kinda sucks cuz you want to try and get some good and proper sleep to feel better.. but it doesn't work for me cuz I can't sleep well at all. Any night! : (

But there are things that make it better. You get in tune with your body (at least i'm learning to). You know when not to push yourself... there's medications.. change of diet helps a bit. and getting some good exercise helps.

i find when i'm in motion.. i hurt less... but when i'm sitting still for long.. i get more stiff and sore.
for me anyways.
just don't overdo it
: ))) <3

Regular Member

Date Joined Jun 2008
Total Posts : 168
   Posted 9/4/2008 2:34 PM (GMT -6)   
Hi Sue! I guess I have to echo what all the others have does seem to fluctuate but, overall, has gotten worse with time. I think that natural aging may have something to do with that as well as environmental changes and, most definitely, S T R E S S ! My symptoms have improved greatly since June with glutathione/atp injections (and, possibly, Monavie.....unsure on that one however) and, except for a couple of mild flares, have not approached how I felt before then.

I can trace the beginnings of symptoms all the way back to my teen years......I'm 53 it has been a most uninvited guest in me seemingly forever. I was also dx'd with cfs and cebv at the same time. Most interestingly, cebv (chronic Epstein-Barr virus) seems to be ever-increasingly considered by rheumys as a trigger for both cfs & fibro. Since my first rheumy visit in June this year and through subsequent visits, my active ebv count has remained very high with each round of blood tests verifying the "chronic" part of it (meaning pretty much mono-like symptoms in a continuous, recurring manner...................which just so happens to fall into the same categories and types of symptoms as cfs & fibro.......hmmmmmm!) It's the count in ebv activity tests that determines this, not the count in exposure/contraction tests (almost everyone shows a count in this area). I'm now an ever-increasing believer in a direct tie-in between the 3.

I mentioned all of this about cebv because it might be worth checking out with your doc if you haven't already. I'm sure not that many people can list this as a possible tie to their fibro/cfs.......only the combined ebv tests can show if that is a possibility!

Gentle hugs,
John (53)
Dx'd June 2008 with Fibromyalgia & CFS  possibly caused by chronic Epstein-Barr virus (many years of ongoing symptoms.....recently worsening)......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & headaches (all types)
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Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 9/4/2008 8:26 PM (GMT -6)   
cry   cry I was so hoping to hear the other way.  How dreadful and for so many to have for such a long time. I am going to get hubby to check out the malic acid  for me, im in australia but I imagine we have same here.   BIG SIGH,  Thanks everyone.  suez2 cry cry
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

Regular Member

Date Joined Sep 2006
Total Posts : 213
   Posted 9/5/2008 5:39 AM (GMT -6)   
Hi Sue
Well I can say that, while my FM hasn't gone, I can certainly manage it alot better than I could in the past.  I couldn't work for a couple of years, and now I'm working full time.
It has taken a lot of hard work, learning how to pace myself, getting my meds right, and understanding my body better, but I can manage a lot better than before.
Good luck
They say life is a bowl of cherries........... we just have to learn how to spit out the pips!

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 9/5/2008 7:24 AM (GMT -6)   
Thanks,  I feel a bit better these days , though I suspect it is just the meds but I figure it doesnt matter why.  Ive only had it for three years though, but hopefully with right manangement I can hang in there.   suez2 smilewinkgrin smilewinkgrin
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

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Date Joined Jun 2008
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   Posted 9/5/2008 8:56 AM (GMT -6)   
Well, I'm new to this DD, but I woudl say that it is getting worse with time. I had these same symptoms of fatigue, achy legs and pain in my hands about 3 years ago. They all went away until this spring when I started feeling the same symptoms again. Annoying, and leaving me wondering if I shoudl see a doctor, but never enough to really make me go. Until May when my symptoms worsened and I got a bunch of new ones. These last few weeks I'm seeing the pain get worse too.
in the land of Limbo, taking OTC meds (which don't work).  Started at 5mg of amitriptyline.
Waiting for referral to rheumy to get a dx. waiting, waiting, waiting....

New Member

Date Joined Sep 2008
Total Posts : 19
   Posted 9/9/2008 11:15 PM (GMT -6)   
I was diagnosed several years ago. While I don't feel fantastic, I do feel a whole lot better than when I was first diagnosed. I seem to get more exercise now than I did then. I think that has a lot to do with it.
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