Good Day Everyone!
I am new to this, not sure what is going on with me… and was wondering if anyone could help me. I did post on the Lupus forum, I am so confused. Here goes….
2 years ago I had a colonoscopy ~ after months of passing blood I decided to get checked out. I should add that I hardly ever go to the doctors, if I am there its for the kids. At first my doc said crones (misspelled) as my older sister has that, then intestinal cancer…. At this point I am still waiting to get in for this colonoscopy so you can only imagine what my mind was going thru as well I had gained over 80 pounds which I think was totally stress related… I had never been like that (even when pregnant I’ve only ever been 132 not 180). Long story short, turned out to be pollops – not cancer, they were removed and I was supposed to be good to go….hahahaha
Since then I have suffered with severe headaches, so bad at times I have slept on the floor of my closet, hair loss (sometime worse then others) loss of appetite, up and down with weight, sleeping problems ( want to sleep when I shouldn’t and up when I should be sleeping ), extreme tiredness, loss of interest in many things, joint pain, stiffness in my neck and shoulders are very bad, and even a back rub either hurts or doesn’t even help, sensitivity to lights ( could live with sunglasses on all the time – also the sunglasses helps with the headaches) a cough that I have not been able to shake, hyper-sensitive ( one minute I am happy go lucky, next minute I am mad, angry or upset… and I can’t tell you why, bruise easier, ringing in my ears, swelling in my ankles, feet and hands, dizzy, trails when I turn my head to fast or flashes, redness in hands, feet and hands always cold, legs and feet fall asleep when sitting for too long, back ache, and I am sure there are a few more I have not mentioned. Overall I am a 28 year old who feels ( not to be rude) like a 90 year old woman. I just wish sometimes that someone would take a baseball bat to every bone in my body, break it, and then set it again… maybe it would make it feel better… does that make sense???
My second pregnancy did not go well at all (Nov 07)– was horribly sick, morning sickness at all times of the day, not gaining weight, LOTS of stress, lost a few loved ones in ’07,severe headaches.. doc gave me some excuse but monitored me and said that I was fine. Ended up having an emergency c-section ( we almost didn’t make it ) and since having my son, my body feels more broken then ever – that sounds so bad…. L Also I find it weird that my incision still has not healed all the way – it is still rather raised, red and numb to the touch…. Doc says we all heal differently…
After returning home I noticed that my right arm was numb from the elbow – down the wrist and around the thumb. On one of my son’s visits I mentioned this to my doc – he said it was a pinched nerve… its been 10 months and my arm is still numb. Sometimes it tingles, burns or itches so bad... Lately I have found that the strength in this arm is depleting – somedays I can hardly open a pickle jar or hold a pen long enough to write a letter.
My lack of faith in my doctor could possibley be the worst thing for me – but its hard to switch doctors – not all doctors have available space, and walk in clinics are a waste of time.
I guess my guess my question is does this sound at all familiar to anyone???? I will admit that I have good days and bad days.. but the general stiffness and joint pain is always there.. and Tylenol is just not working anymore… I think now after writing this I will go make a doc appt – let see what he says this time.
Thank you for taking the time to read this – I do appreciate it.
Hi Chevyrane, First of all, Welcome to the forum, just sorry you are feeling so badly. Going to your dr is a good idea, but may I suggest you go to the thread on the first page here called Fibro 101. You will find a lot of good info, including a list of symptoms of FMS. Copy that out, you will see so many of your symptoms, check them off, bring them to the dr. visit.
I had a lot of prob w/ my pregnancies, also. Lost the first baby, deathly ill for the second, couldn't eat, always vomiting from the beginning till the day I had my son. Bled thru my 3rd preg, plus all day 'sickness' again. Also, each surgery I've had the scars are fierce and the whole area is numb. I was told that I should get some feeling back by 1 yr. If not, it isn't coming back - It isn't coming back!!! I have had 3 surgeries, tubal ligation, gall bladder, hysterectomy, I can't feel my skin under my belly button. Any clothing rubbing against the skin sends me into a fit.
I'm having a prob w/ my shoulders/hands and my knees right now, so I know how miserable that is, I would suggest some gentle stretches. They won't make your pain go away, but if you don't move, believe me you will feel worse. I could have written your post, so I do understand your pain.
Read over some of the other posts, for one you will see that you're not alone. Secondly, you might get some ideas that may give you some relief. Hope you feel better soon. God bless. Alice.
Just wanted to say thank you to all that replyed to my post - all the information I have received has been more than helpful - and it sort of takes the edge off till I can get to my doctor on tuesday.
Yesterday I thought maybe what ever was in me had disappeared... I almost felt better - I thought too soon. My fingers and feet started to swell and get itchy - this time tho no blisters on hands and feet like before. And of course I did get a small rash on my elbows and knees - not sure what thats all about.
This morning i wake up stiff as a board, rolled out of bed, to find that my face and neck are flushed - my head is POUNDING and my right arm feels so heavy and dead as well my fingers are stiff and swollen...seems like something new each day.
Well enough about me, how is everyone else doing???? Take care to all and god bless!!!!