Hmmm, how much longer should try this?

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Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 9/4/2008 4:19 PM (GMT -7)   
Well been on the malic acid for about a week now. Been taking 1 pill with breakfast. Unfortunately I have been getting the whole diarrhea thing and after a week it hasn't gotten any better. My mother said I should give it another week to see if I get used to it. What do you guys think? Should I quit on it after one more week, or should I give it more time than that? *sighs* I just really wanted this to work since I'm scared to take any prescription pain meds. Though if I can't even handle one pill, it's not going to do me any good.
~Kythe
____________



Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 9/4/2008 6:21 PM (GMT -7)   
Kythe- I am taking this and it isnt really doing much for me, but I don't have the problem you describe. If you are taking only one pill per day with food, maybe then this won't work for you. Lets see if you get other responses from those who are taking it with no problems and with sucess.
DX- FMS 2003; Hypertension; Depression; PTSD; IBS
 
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RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 9/4/2008 8:07 PM (GMT -7)   
Kythe , I also really, really wanted this to work for me, because I have taken almost every med possible in 24 years and they have done almost no good. Especially for fatigue. I know some have really had good results, I just didn't. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 9/5/2008 7:08 AM (GMT -7)   
Kythe, I'm not sure how to answer this.  I'm not a doctor so this is just an educated guess from my experiences with malic acid.  I didn't have any problems taking this.  Now, there is a difference between loose stools and flat out diarrhea.  If you are having several loose stools a day, I would just try eating things like bananas and rice that are binding and continue with one supplement a day for one more week.  If it continues this way, then I would stop taking the supplement.
 
I know we have had a couple of members that had what they called diarrhea at first and then things settled down.  Their persistance paid off.  Unfortunately, malic acid doesn't work for everyone, though.  I hope things get better for you so you can continue to build up to where they could help you.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 9/5/2008 7:41 AM (GMT -7)   
When I started taking malic acid I started at 2400mg a day because that was the lowest dosage that had been found to be beneficial to fibros. I'm now up to 3200mg a day during busy wedding cake season. The benefits for me far outweigh the diarrhea that I occasionally experience. In fact, my body has become so accustomed to it that I can now become irregular.

If you are not taking the amount necessary to get relief then you are not doing yourself any good. It's kind of like taking a low dose aspirin for a migraine. Wouldn't touch the pain. I wish that I could tell you the difference in my life with and without malic acid. I can tell you that I forgot to take it on vacation with me last year and ended up driving 40 miles round trip to the nearest town with a health food store to replenish my supply. I thought I could do fine just relaxing without it and within three days of stopping I was a physical wreck. This stuff has been my lifeline. Here are some links where you can read up on study results of malic acid and fibro:

Missing Nutrients Linked to Fibromyalgia and Chronic pain
Malic Acid Reduces Muscle Pain While Increasing Endurance in Chronic Fatigue Syndrome (CFS) and fibromyalgia (FM)
Malic Acid, Energy, & Fibromyalgia
Malic Acid - Helpful For Fibromyalgia Pain

This doesn't work for everyone but before you discontinue I hope you will try the higher dosage that should be more effective. Good luck with this.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 9/5/2008 7:46 AM (GMT -7)   
Sorry to highjack...

I know you were both saying to take it with extra calcium, how much do you take? Would it be better to take just calcium, or a multi vitamin? Thank you!
in the land of Limbo, taking OTC meds (which don't work).  Started at 5mg of amitriptyline.
Waiting for referral to rheumy to get a dx. waiting, waiting, waiting....


Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 9/5/2008 8:15 AM (GMT -7)   
Well Sherrine, as I've had two colonoscopies already in my short life and have had to do prep for them, I certainly know the difference between loose stools and flat out diarrhea. I'd say that I'm experiencing both, sometimes one, sometimes the other, and sometimes it's actually both in the same sitting. It's happening at least once a day, sometimes two or three times.

I guess it's not that terrible as it is, but I know it will get worse if I up the dosage which currently only 825mg. I've been debating whether or not to buy some imodium for it, but everytime I try to take that medication I just end up constipated(which I think is actually worse than diarrhea), not to mention the fact that it's not meant for long term use.

*sighs* Just feeling so frustrated. I was really counting on this supplement to help me function better. I hope things clear up in the next week.

I'm also curious about the calcium what is the benefit of taking it with malic acid and how much is necessary to take? Currently I get 500mg from my multivitamin. I also get more on occasion everytime I have heartburn(1000mg of calcium in Tums). I also eat a fair amount of dairy so I get more calcium from that source.
~Kythe
____________



Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia

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