2 Drs.......different advice

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Tootiebug58
Regular Member


Date Joined Feb 2008
Total Posts : 378
   Posted 9/8/2008 1:55 PM (GMT -7)   
I saw my psychologist today and she wants me to try Lyrica for 2 weeks.
My Primary dr told me NO WAY, since I am highly sensative to several
drugs, like a lot of people with fibro.  I told her this and she kinda smiled and said he must be from the old school.  She then said " try one pill, but make
sure someone is there if you have a seizure or troubling breathing".
I couldnt believe my ears.  What kind of dr am I dealing with???  I was so upset when I left, and when I see my primary dr, I am going to tell him this.
Its almost as if she didnt care if I had a reaction.  She also said only 40% of
people with Fibro get relief from Lyrica.  So why should I take a chance?
Arghhhhhhhhh, I get so confused smhair
Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 9/8/2008 2:17 PM (GMT -7)   
Doctors don't usually go against another doctor's advice.  Your psychologist was acting very unprofessional.  Your PC doctor knows you and your physical problems and that's who you should listen to.  If that happened to me, I would never go back to the psychologist.  That's my humble opinion.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


jev
Regular Member


Date Joined Jun 2008
Total Posts : 168
   Posted 9/8/2008 2:41 PM (GMT -7)   
Hi Tootie! Wow......OK.......let me get this straight...... I F you have a "seizure" or "trouble breathing"? Kinda makes you want to run, not walk, out of there as fast as you can, huh? OK...OK...OK.... I F you grow a third eye or your arm falls off you juuuuuuust might want somebody around to assist you! LOL and not funny at the same time! Nothing like immediately being one of the statistics in the "adverse" side effects column.

No, in all seriousness, you should be INFORMED of all possible side effects before taking any medication. All meds have side effects and not everyone will experience the same side effects as others but throwing those 2 rarer side effects at you without fully taking into account your primary dr's concern (and personal knowledge) or an explanation of all side effects and percentages of patients affected is negligent on her part. "Old School" is still relevant knowledge and info as far as I'm concerned as long as it has not been totally disproven. Here is a link to a Lyrica forum where patients write in with their own experiences or lack thereof. I read all of this before deciding to try it myself for a little while per my PCP's suggestion. Take these with a grain of salt, however.

http://www.askapatient.com/viewrating.asp?drug=21723&name=LYRICA

Gentlest hugs,
John
*****************
John (53)
*****************
Dx'd June 2008 with Fibromyalgia & CFS  possibly caused by chronic Epstein-Barr virus (many years of ongoing symptoms.....recently worsening)......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & headaches (all types)
 
*****************
Several meds too numerous to list or remember!


Tootiebug58
Regular Member


Date Joined Feb 2008
Total Posts : 378
   Posted 9/9/2008 6:24 AM (GMT -7)   

Sherrine and Jev

Thanks for your input.  I have researched Lyrica and it says DO NOT TAKE WITH XANAX, and I do take xanax for my anxiety.  The psychologist prescribes the Xanax.  When I asked her if I could take it together, she said "absolutely".  I don't understand her at all, but will definitely talk to my PCP in October.  Sure gets frustrating with different drs.

Thanks again smilewinkgrin


Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


anonymouse
Regular Member


Date Joined Jul 2008
Total Posts : 40
   Posted 9/9/2008 6:42 AM (GMT -7)   
Oh my! I was one of the ones who had a bad reaction to Lyrica. Never again! I can't believe I fell for the commercial-hype. I was only on it for a few weeks and had to wean and I am so afraid of even the name of it now. :( sorry if it works for someone. please do not be offended but I just can't take a lot of meds out there. (and this one messed me up) Not all meds work the same for everyone. So I talk to my Dr.'s, pharmacy and really discuss any new things they try me on. I have learned to question everything and then re-question it. And when something has given me a reaction in the past I let all of my Dr.'s know and the pharmacy.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/9/2008 7:19 AM (GMT -7)   
Some of these doctors are unbelievable with their attitudes. Not their bodies why should they care.
 
I'm glad I didn't try it since I take xanax too.
 
These are our bodies and we can do the research ourselves and make our own decisions about what we want to put in them.
 
It will be interesting to see what your other doc says about this.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 9/9/2008 8:43 AM (GMT -7)   
Hi Tootie-
I filled my prescription for Lyrica but have not started taking it. I get so nervous starting something new because of my sensitive system too. When my Dr. prescribes something for me she trys to get it in tablet form (so I can cut pieces off) but when it does not come in a tablet she makes it the lowest possible dose. The Lyrica I have is a capsule but is only 25mg.
When I first saw the rheumy after the fibro hit, he prescribed Ultram. I take Zoloft for depression and when I told my Dr. this she said a big "NO" to taking it. You can have seizures when taking an SSRI and Ultram. So I know your frustration. I thought why would he prescribe something for me that can do that. No thanks! I was not impressed with him and I am seeing my Dr. only for the fibro now. GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


jev
Regular Member


Date Joined Jun 2008
Total Posts : 168
   Posted 9/9/2008 8:55 AM (GMT -7)   
Hi again Tootie.......I said earlier that I tried Lyrica after researching the side effects and patient responses. It actually worked very well for me.....it lowered all of my pain and discomfort.....even the burning pains and eye pain. Unfortunately, the ONLY side effect I had was a biggie (no pun intended)........it caused me to gain about 10 lbs in 3 weeks with no change in eating habits. So I, somewhat regretably, gave it up and decided it was not worth easing one set of problems while creating another.

Gentlest of hugs,
John
*****************
John (53)
*****************
Dx'd June 2008 with Fibromyalgia & CFS  possibly caused by chronic Epstein-Barr virus (many years of ongoing symptoms.....recently worsening)......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & headaches (all types)
 
*****************
Several meds too numerous to list or remember!

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