Nortriptyline failure

New Topic Locked Topic Printable Version
[ << Previous Thread | Next Thread >> ]

me1987lissa
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/10/2008 1:45 AM (GMT -7)   
Hello all!!.. Just want to say I am new to the board and look forward to reading and responding when I can..

I was diagnosed with fibromyalgia by my rheumatologist and was put on Nortriptyline 30mg at night. It worked for a couple weeks but now I am back to normal crappy self and can't get to sleep until late. I wake up feeling like a semi truck ran me over a couple hundred times and spend the day feeling exhausted. I'm also getting horrible nightmares too while on Nort.

I'm going off nortriptyline and I was searching for the forum for replacement drugs. It seems like low dose Xanax was a miracle drug for some people and I'm going to ask my doctor for it. Also I will look into the malic acid/magnesium combination therapy. For those people that were in the same boat as me, did going on Xanax and/or malic acid/mag help a little? a lot? none?

Thanks!

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/10/2008 7:30 AM (GMT -7)   
Hi and welcome. I have not been on nortriptyline but I'm on amitriptyline which is in the same family. I have never had bad dreams from it. I've been on it for 10 yrs and take 100 mg at night. They usually start you out at a low dose and raise it so perhaps you needed an increase.
 
I've also been on xanax for 10 yrs. I take the amitriptyline and xanax for sleep and sleep pretty good most nights.
 
I'm not able to take the malic acid but there are a lot of people on here having great results with it. It's worth a try.
 
Make sure you read the fibro 101 thread, second on first page, there is a lot of great info in it.
 
Read, ask questions and we are here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 9/10/2008 8:03 AM (GMT -7)   
Hi and welcome!

I take Zoloft for depression and it works well for me. Not sure if it helps me sleep. I get little or no side effects from it.
I had asked my Dr. about taking Xanax as I too had read posts where it has helped alot of people not only sleep well but helps the pain also. She would not start me on it as she felt what I am on now works. She was concerned about the dependency issue. I would like to push for this down the road to try it out and see if it makes a difference with my symptoms. I feel that if it is closely monitored between the Dr. and the pt. it would be safe.
Hope you can find something soon and it was nice meeting you! GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15520
   Posted 9/10/2008 8:04 AM (GMT -7)   
Welcome to the fibromyalgia forum!  I'm so glad you joined us!  I have never taken any of those medications.  I use ibuprofen (with food) and Tylenol and also the malic acid/magnesium supplements for my pain and fatigue.  Between that and pacing myself, I have been able to control the pain.  I still have pain but I also can still live my life.
 
As Marlee said, the Fibro 101 thread has a lot of good information in it about fibromyalgia.  Reading back posts is good too. There is a world of information in them too. 
 
Don't hesitate to ask questions.  We are here to help you and we do have some of the neatest people on this forum!  Hope to hear from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 9/10/2008 11:04 AM (GMT -7)   

I used to be on the Nortrypline(sp?) awhile back, had to get off it for a surgery, not sure why, but i did, and just never went back on it.    But it did seem to help me as I recall, cant remember having nightmares from it?

The Elavil Marlee was talking about is in same family and works quite well for some people.  I have not tried the malic acid/magnesium, i would probably have to speak to my Gatro first, not sure how that would agree with my stomach problems, but it sounds like it is worth a try. idea


 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06 Spondlylosis/Disc Degernation Disease severe arthitis lower back -08,implantedInterstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines
 Plz help HW to help others by donating: http://www.healingwell.com/donate/


augoldminer
Regular Member


Date Joined Jun 2006
Total Posts : 110
   Posted 9/10/2008 4:46 PM (GMT -7)   
I was put on amitriptyline years ago and it did nothing for the pain or sleep and the side affect were not good.

I finely got a doctor to proscribe neurontin (gabapentin) and for me that worked for the pain.
for sleep i take (OTC)benadryl.

With fibro you may have to try a few drugs till you find one that works.

Antidepressant only work in about 30% of people with fibro.

And for the most part it depends on the cause of the fibro.

I find many people with secondary fibro caused by a auto immune disorder, trauma, back troubles injurys.ECT have little luck with antidepressants.

yours looks like it could be caused by a auto immune disorder ( Arthritis, Positive ANA)
or the back problems or the surgery's
Autoimmune Sarcoidosis with neuropathy 2003
Secondary Fibromyalgia 2002
Heart Attack and bypass x5 2006
diabetes 2008
ex firefighter/EMT
ex US Navy


genniefstr
Regular Member


Date Joined Aug 2008
Total Posts : 97
   Posted 9/10/2008 6:16 PM (GMT -7)   
Hi! Welcome  there's alot of good people here that will help. I've never been on nortriptyline or xanax. I use nuerotin with malic acid and magnesium suppliments which works great for me. Good luck with your journey.Hope this helps.
                 Smiles,
                    gennie

me1987lissa
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/12/2008 1:07 AM (GMT -7)   
thanks for the great advice and concerns everyone. I contacted my rheumatologist and he prescribed trazadone 50mg, starting at 1/2 tab at night for 1 week and 1/2 increases every week until optimal dose is achieved. I'm also taking 1200 mg malic acid and 600mg magnesium a day.

Thanks again! I will report in a week with any updates.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/12/2008 9:25 AM (GMT -7)   
GamJill, I am still on the same dose of xanax I was put on 10 yrs ago. I did see a psychiatrist one time for the anxiety and he upped the xanax to 1 1/2 three times a day. My GP come undone when I told him that. I am rxd three a day but I only take 2 1/2 a day and 1 1/2 is at night for sleeping. It can be addicting but I knew that and have never taken more than rxd, you can control it. For sleeping it does a great job for me.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


packrat
Regular Member


Date Joined Jun 2008
Total Posts : 66
   Posted 9/12/2008 4:36 PM (GMT -7)   
0.5 mg clonazepam and 25 mg trimipramine about 1 hour before bedtime usually does the trick for me as long
as I also do some deep breathing exercises to settle down my brain :)
-------------------------------------------
Fibro, anxiety, depression, high cholesterol
Citalopram, clonazepam, amitriptyline, crestor
Curcumin, Q10, Vit B12
 


Joeyc
New Member


Date Joined Jun 2013
Total Posts : 2
   Posted 6/25/2013 6:06 AM (GMT -7)   
I was diagnosed with Fribromyalgia 5+ years ago and was taking 50mg of nortriptyline to take before bed. It did relax me in the beginning but did not help with pain. I also felt like I'd been hit by a Mack truck every morning and was so stiff I shuffled when I first got out of bed or if I sat for a period of time. I also had chronic tendinitis because I would always hurt myself whenever I tried to exercise or did repetitive movements - I would never fully heal. The idea behind the nortriptyline was that I was not sleeping well enough so my body couldn't heal.

I finally got sick of being sick and went to a nutritionist," Leap Into Wellness."I had a blood test to determine which foods I was sensitive to. The results were I was highly sensitive to my all time favorite drink, coffee and also eggs. I also had a few foods I was moderately sensitive too. (Keep in mind every person will have different food sensitivities from mine) I eliminated all foods on my sensitivity list and only ate "safe" foods for me. In a week and a half I noticed I wasn't shuffling anymore when I got up and that my muscles started feeling noticeably better. For me it was food sensitivities that was reeking havoc with muscles. I also want to mention my cholesterol levels run around 230 two weeks into the dietary change i had a blood test and my cholesterol went down to 164! I started Dec 1, 2012 and I still feel better today June 25, 2013. I gradually added back some of the moderate foods I was sensitive to but only on occasion. Some doctors will poo poo food sensitivity blood test stating they are not scientific but they yielded better results than the drugs doctors prescribed for me that only mask the problem and poorly at that. I have had real physical improvement with dietary changes - I now heal in a proper time frame - I can go to the gym but mix up my workouts and I stopped the the nortriptyline because there is no need to take it. I am a female age 55 and the only medicine I take now is levothyroxine. To this day i cant believe how foods were causing such trouble with my body, but it true. That's my story and I hope it helps you.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15520
   Posted 6/25/2013 8:30 AM (GMT -7)   
Hi, Joey, and welcome!  Yes, there are people with food sensitivities and also allergies and this needs to be checked out.  I'm so glad you are doing quite well.  Perhaps you really didn't have fibro after all!  Now that would be wonderful.  Many of us have been checked out, eliminated lots of things from our diets but yet still have a lot of pain and fatigue.  It's difficult.
 
I'm locking this thread now.  It is a very old thread...started five years ago.  We lock the older threads.
 
If you get a chance read Fibro 101...the first thread on the forum.  There are links to good info about fibro and you will learn a lot there.  The very first link is by a doctor that has been studying this illness for years and they say this is a neurological problem in how we perceive pain.  This might explain why some, that don't have allergies and sensitivies to food, don't get relief by changing their diets. 
 
I do hope you continue with such good health and I'm sure your post will help some people to get after their doctors to see if they have food allergies and sensitivities!  You might consider posting this in the Allergies forum where food allergies and sensitivities are discussed.  It could help many there, too.  
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 6/25/2013 11:10:07 AM (GMT-6)

New Topic Locked Topic Printable Version
Forum Information
Currently it is Wednesday, November 26, 2014 6:40 AM (GMT -7)
There are a total of 2,278,242 posts in 253,228 threads.
View Active Threads


Who's Online
This forum has 158687 registered members. Please welcome our newest member, Sarah_louboo.
278 Guest(s), 10 Registered Member(s) are currently online.  Details
Utahgal, deborahscinder, rey, lovif, soystud, Disabled1, violets, Red_34, CT 2014, Shaba.Doug


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer