physical therapy

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Kythe
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Date Joined Jun 2008
Total Posts : 261
   Posted 9/11/2008 6:30 PM (GMT -7)   
After I saw my rheumy, he gave me a fibro pamphlet. One of the things it said was that physical therapy might be necessary to help with learning how to exercise in a way you can handle. Have any of you ever tried physical therapy for your fibro and has it helped?

I was looking into trying it myself. My mother's in physical therapy and I had her ask them if they worked with fibro patients. They told her that they didn't do treatment for fibro because there was no treatment protocol for it. They said that it was just recommended to do walking and other aerobic exercise. I can't really look into any other practices because that's the only one my insurance works with.

I dunno, even if all I'd be doing is walking on a treadmill, I still feel like I could use a physical therapist for that. I have a tendency to overdo things and I just have no idea when I've had enough until I start to get sick, so I really need a professional to supervise me when I exercise. Somehow I doubt they'd take me on just for that though.
~Kythe
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kelly71
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   Posted 9/11/2008 7:41 PM (GMT -7)   
Kythe,
 
I go to PT, but my doc sent me for back problems-which are made worse by the fibro.  LOL, I don't know if that makes sense.  Anyway, I do a lot of torturous exercises that are supposed to be good for my back.  MY PT knows I have fibro (she's really cool), but I don't think my exercises are "fibro related."  Honestly, there are some days when I think that they help, and then there are days like today where I think it makes it worse.  Really, I can't remember when I hurt THIS much. cry
 
Anyway, I DO think it helps to some extent.  LOL-I just read what I wrote and it makes no sense.  I must be in a thick fog.  My opinion?  It can't hurt to try it. :-)
FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix to try to quit smoking (started 08/20/08)
 
"I'll take the Chivas instead"
-Kelly Clarkson


Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 9/11/2008 7:45 PM (GMT -7)   
I probably should be in physical therapy for my back as I've had back problems for a long time, just never got around to it. Now after what you've said I'm kind of afraid to, just going out grocery shopping puts me into a flare, not sure if I could handle therapy for my back.
~Kythe
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Chartreux
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Date Joined Aug 2006
Total Posts : 9622
   Posted 9/11/2008 7:55 PM (GMT -7)   
I go to physical therapy twice a week and it does help, they use the ultra sound and have a stronger tens unit than my home version. I
would highly recommend physical therapy, but one that does not push too hard! Most physical therapy places push hard to get you back and going,
but thats not always stuff that works, mine takes it easy with me cause for me just moving helps...
Hope you find a good Physical Therapist.
Keep us posted and lots of soft hugz
Also, a moist heating pad helps too......
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Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 9/11/2008 8:00 PM (GMT -7)   
Well Chartreux, I doubt I'll be able to find any physical therapist because as I said the only practice that my insurance works with doesn't treat fibro.

*sighs* Really can't use a heating pad at all until winter time since I get overheated very easily. I swear I get too hot just from sitting next to a lamp that's turned on.
~Kythe
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Dagger
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Date Joined Apr 2008
Total Posts : 1522
   Posted 9/11/2008 8:04 PM (GMT -7)   
Do you have a particular body part that causes you more problems? Maybe shoulders or upper back? Lower back or legs?

They may be more willing to help you with a specific body part or problem instead of just fibro pain. They (and the insurance company) like to have a goal and something they can fix in x amount of visits. While there, they may be able to advise you and help with a total body program. Even if they only help with one area, that's still a help.

A personal trainer could help guide you with excercise although it would be expensive and most likely not covered by insurance.

I used to see a chiropractor that had a rehab center in the office. They had a full-time excercise physiologist on staff. I only had to pay my co-pay and I had my own personal trainer 3 times a week for an hour. It was literally a life saver. I really believe this therapy is the reason I can still work and function today. I wish I could find a similar setup where I live now.

I attend a local fibro support group and someone is always looking for an excercise buddy. Someone who understands fibro and helps keep you motivated yet helps you know your limits. Do you have a fibro support group near you? You may even be able to find a buddy in a support group for other chronic illnesses such as Lyme Disease, Lupus, MS, arthritis, etc. You could even consider starting your own fibro support group, yes it takes work but it's something to think about.

Check with your local Arthrititis Foundation and other chronic disease foundations to see it they have excercise classes or groups that are affordable.

Local churches may have classes for seniors and may allow you to participate even if you don't belong to the church and are not a senior. Stretching or beginner chair yoga classes are wonderful.

There may be options out there for you.

Good Luck.

Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 9/11/2008 8:17 PM (GMT -7)   
My pain is really random and I can never predict what is going to hurt and when so it would be extremely hard to set up any kind of specific goals. I know how the stupid insurance companies are, I've had to deal with them enough for psychiatric therapy. The shrinks constantly have to get more visits approved because the insurance just doesn't get that my problems are chronic and it's never going to go away.

I could probably use a personal trainer, but no way I can afford it. Right now all I can do is free and there's no co-pay for the physical therapy, but I just don't think they'd be willing to treat me.

I don't know if there are any local support groups for fibro or similar diseases, I'd have to look into it. I just know that starting my own is out of the question. It's just too much responsibility for me and I know I wouldn't be able to handle it. I've tried to start online clubs before and I couldn't even handle running those. Even the thought of attending a support group regularly is a bit overwhelming. Most days it's so exhausting just leaving the house.

Sorry if I sound really whiny right now, in the middle of a flare and just don't feel good at all.
~Kythe
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Dagger
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Date Joined Apr 2008
Total Posts : 1522
   Posted 9/11/2008 8:43 PM (GMT -7)   
You don't sound whiny at all. You are in a place full of people who understand.

Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 9/11/2008 9:03 PM (GMT -7)   
Well on the plus side I was able to find a support group that is very close to home. I was so afraid that they'd all be too far away for me to even consider going. It meets once a month which is something I think I could commit to. Just hope there aren't too many people in the group, darn social anxiety.
~Kythe
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Dagger
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Date Joined Apr 2008
Total Posts : 1522
   Posted 9/11/2008 10:28 PM (GMT -7)   
You don't need to commit at all. You just need to get there once. If you feel better when you leave, it's the right place for you. Actually, I suggest going twice because you may like the second meeting more. All support groups are different and hopefully this group will fit your needs and personality. If you are nervous, bring a friend or family member to your first meeting.

It is wonderful to be in a room with people who understand you and can offer support. A group of people all with fibrofog can be interesting. People leave early because they are exhausted or arrive late because they are having a rough morning or just forgot about the meeting.

Many times I leave my meeting with sore muscles from laughing so much. It's a great feeling.

Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 9/12/2008 6:49 AM (GMT -7)   
Wow, that would take some adjusting to, people arriving late and leaving early. It's really a big peeve of mine being late and I always show up to places early and get very annoyed when other people come late. It's like I think, if I could drag myself here on time, then everyone else should be able to. You'd think I'd be more understanding since I have the fibro, but I guess I also have some OCD tendencies and being on time is big thing for me. Will try not to let it bother me too much, but it's just very disruptive to a group setting when people come and go whenever they please.

And I wonder why people have such a hard time getting on with me. eyes
~Kythe
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GamJill
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Date Joined Jun 2008
Total Posts : 1279
   Posted 9/12/2008 6:55 AM (GMT -7)   

Hi Kythe-

I go to Physical Therapy and it has helped me. The first 6 to 8 visits were awful. It gave me so much pain afterwards where I would almost be in tears and did not want to go back again. After that I started noticing less pain and more mobility. I'm fortunate that they have a gal that specializes in fibro. I would not let anyone touch me that does not know anything about it. Our bodies are different. And yes, there is specific treatment for it. We begin with a warm up either on the treadmill or crosstrainer- 5 to 10 minutes. Then it is myofacial release massage- our ligaments and tissues are all knarled up and this gently stretches the tissues and gets them back to as normal as possible.

She compares our tissue to the Chinese finger pull. The one where you put a finger in each end of the tubing. If you struggle hard, tugging on it, it just makes it worse. If you relax and gently back out, your fingers come out easily. So any gentle stretching exercise, be it yoga, some pilates, walking, water aerobics. She states our fibro bodies want to work for us - we just have to learn a new way to exercise.

So heck Kythe I would go ahead if I were you and get a very easy yoga DVD or start out walking slowly. Sherrine emphasizes the gentle stretching exercises on a post they have here too. I'm just slowly learning my routine too. We can fumble through this together! GamJill

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 9/12/2008 7:07 AM (GMT -7)   
Well I do some stretching exercises when I can, and I walk around the house and around my front yard some. Just can't walk any further than that because my neighborhood is full of hills and I can't handle walking up hills.
~Kythe
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Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia


kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 9/12/2008 8:04 AM (GMT -7)   
Kythe,
 
I was reading your comments, and OMG, you sound exactly like me (or maybe I sound exactly like you).  I have crazy anxiety about being late to places.  I always say that if I'm on time, then in my mind, I'm late.  Sound familiar? rolleyes
 
Anyway, I did want to make sure you knew that I was being sarcastic when I said that the exercises I had to do were "torturous."  Yes, they are uncomfortable, but LIFE is uncomfortable for me these days. sad   Also, like I said, I don't think there are any specific exercises for fibro, but for me, sometimes the stretching helps.  I have noticed since I started PT that I can crack my back the way I used to be able to when I was a kid.  BTW-a lot of my back problems come from me being really large in the chest area.  I am trying to lose weight (try doing THAT while quitting smoking) and then maybe, hopefully, fingers crossed, I can get that breast reduction that I've wanted since I was 16 years old.
 
BTW-I can never remember where anyone lives, but I'm taking a guess.  You're in the UK, right?  I have a good friend that lives there (near London).  I've always wanted to visit.  OK, yeah, that was random, but try to remember who is talking. LOL wink
Good luck with finding some pain relief.  Ah, "to PT or not to PT.  That is the painful question." tongue
FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix to try to quit smoking (started 08/20/08)
 
"I'll take the Chivas instead"
-Kelly Clarkson


Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 9/12/2008 8:14 AM (GMT -7)   
Nah, I'm in the USA. I wouldn't expect anyone here to remember where I live since I don't think I ever mentioned it, lol.

I've actually had a breast reduction done two years ago. It helped a little bit with the back pain but not as much as I would have liked. The surgeon didn't make me as small as I asked him to. He was more concerned about me looking proportionate rather than giving me the size I asked for. I really don't give a darn about looking proportionate, I just wanted to be small enough to get more improvement with my back than I did.

I really had to fight to get my health insurance to pay for it. They said that if I only lost weight my chest size would decrease. I had to go through two appeals and finally met with them in person and had to explain that I once lost a ton of weight and my chest didn't get any smaller, and neither did it get bigger after I gained the weight back. So finally they agreed to cover the cost.
~Kythe
____________



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Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17098
   Posted 9/12/2008 10:56 AM (GMT -7)   
Try the stretching exercises found on the Fibro 101 thread.  They can be done sitting down and will help keep the muscles flexible.  And walk.  You could probably walk partially up a hill and then back down again. That would help build up stamina.  Same with stairs.  If you can't, walk around your house a lot...both inside and outside.  Walking is one of the best exercises we have and it costs nothing!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 9/12/2008 11:00 AM (GMT -7)   
Kythe,
 
Sorry about that-I never can remember where people live. blush   Maybe you said you lived in the south?  I have CRS, lately.  You know, "Can't Remember ****!" smilewinkgrin
 
Yeah, I doubt insurance will pay for a breast reduction for me either, but I'm still gonna try.  And that whole, "If you lose weight your boobs will be smaller" thing doesn't work with me.  I lost about 70 pounds a while ago (gained it all back, BTW sad ), and my boobs didn't get smaller at all!  I did lose weight around my back, but my cups still runneth over! wink
 
Anyway, it sounds like we are a lot alike.  If you ever want to talk, my email address is available.  Write anytime.  I'll always write back. :-)
FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix to try to quit smoking (started 08/20/08)
 
"I'll take the Chivas instead"
-Kelly Clarkson


Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 9/12/2008 11:39 AM (GMT -7)   
No, I have never before mentioned anything about where I live, so there is no way you could remember it. lol And nope, don't live in the south.
~Kythe
____________



Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia


kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 9/12/2008 11:51 AM (GMT -7)   
Kythe,
 
LOL-I told you that I can't remember anything! shakehead   Ok, I get it, you don't live anywhere! smilewinkgrin   BTW-I wasn't trying to be nosy.  I really do respect everyone's decision to decide how much (or how little) they want to reveal anout themselves.
 
However, my email offer still stands if you ever want to talk. :-)
FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix to try to quit smoking (started 08/20/08)
 
"I'll take the Chivas instead"
-Kelly Clarkson


solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 9/13/2008 7:03 AM (GMT -7)   
Kythe, I have been to 4 physical therapists since I was diagnosed with fibro 3 years ago by 2 board certified rheumies. Even though it isn't their place to diagnose, three of the pt's said I didn't have fibro and the fourth one didn't have an opinion because he wasn't up on fibro. Actually I got more help from the one without the opinion. Maybe pt's don't like to take on something so elusive as fibro? Anyway, if you think you could use the supervision, maybe you could talk to your dr. about it and he can write the prescription in a way so you can get what you want and need even if the fibro label is never applied. I'll be keeping my fingers crossed for you. Lisa

Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 9/13/2008 9:00 AM (GMT -7)   
Interesting idea, I'll try to remember to talk to my rheumy the next time I see him about that.
~Kythe
____________


Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia

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