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kelly71
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Date Joined Jun 2008
Total Posts : 726
   Posted 9/13/2008 10:35 AM (GMT -7)   
Does anyone else ever think that they are going crazy?  I have no idea if fibro causes neurological problems, but I've been having a lot of them, lately.  BTW-I know that neuro problems are common in people with lupus, but since I still don't know if I have lupus, I thought I'd ask about neuro issues & fibro.
 
My symptoms include "migraine" headaches.  I don't really know if they are actual migraines, but I get horrible pain in my head, and then I see bright spots.  I also am losing my balance a lot-just sort of tipping over when I'm not even moving.  But, the thing that is really bothering me is my memory problems.  I've always considered myself to have a really good memory, but lately, I feel like I can't remember anything.  I find myself not remembering the easiest things-like, what channel a certain show is on, or even the name of the show-and believe me, I am a TV junkie.  I forget other things, too.  When I'm writing or talking, sometimes I can't think of the word I'm trying to say.  Also, I scared myself this AM because I momentarily forgot that a green light means "go" and not "stop."  Yes, I stopped at a green light.  I'm just glad I didn't go at a red light.  Also, this AM, I spent about 30 seconds trying to open my car door with my house key.  FYI-not only are they 2 different sizes, they are 2 different colors!
 
I know all of these things sound funny, but they are freaking me out.  I've been told that it's fibro fog or it's because I'm getting older.  But, I really am scared.  This has been going on for at least 6 months.  BTW-I have a lot of other "symptoms," but I didn't want to go into everything.
 
Anyway, I was just wondering if anyone had anything similar happen to them, and/or if you have any advice for me.  I really am starting to worry that there is something wrong. sad
FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix to try to quit smoking (started 08/20/08)
 
"I'll take the Chivas instead"
-Kelly Clarkson


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/13/2008 10:47 AM (GMT -7)   
Kelly, I have had all those problems but the migraines.  It sounds like migraines because of the pain and lights.  I get migraines with no pain...just lights that look like lightening.  Migraines are a symptom of fibromyalgia.
 
I used to have a memory like a steel trap but not anymore.  Just read my post on fibro fog that I wrote yesterday!  There are times I really have to concentrate to even think.  It is like a fog.  You  know the info is up there someplace but just can't quite reach it.  It can be really frustrating but the more you think about it, the worse it seems to get. 
 
Go to the Google custom search at the top of the page and type in fibro fog.  We have had lots of discussions and laughs over the dumb things we do.  BUT, we are definitely NOT crazy!  This is really real and happening to us.
 
By the way, Kelly, I tried to start my car with the key to my freezer!  smhair
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40571
   Posted 9/13/2008 11:02 AM (GMT -7)   
Sherrine,

I also have the migraines without the headache. I get colored light patterns in my perifriel (sp) vision and they work from one side of my vision to the other, it takes 20 - 30 minutes for it to go away. Then I feel weird the rest of the day. The last time, I did get the headache, that was a long time ago. Haven't had any problems since.

Kelly,

Sometimes I wonder if we get these headaches due to the tightening of muscles in our necks and shoulders. I would get a headache and it felt like somebody was squeezing the back of my head with a vice. I found that warm moist heat helped take the pressure off. Hope that this helps some.

Have a great day you guys,

Hugs, Karen...
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/13/2008 11:52 AM (GMT -7)   
Kelly I know some of these things can be scary til they happen over and over and you realize nothing bad is going to come of them. I have a balance problem and there are times when I'm embarrassed cause I think people will think I've been drinking and I don't drink. I have done some dumb things driving that has scared the crap out of me cause I would feel so bad if anyone got hurt because of my fibro moments. Sometimes I do believe we are so busy thinking about our problems and the things we do that it distracts us from what we are doing at the time. Like you trying to open your car with the house key may have left you so rattled you forgot for a moment about the light color. I do make a point to pay closer attention to everything I do now and focus more. I do not go on automatic pilot anymore. I bet the next time Sherrine has a check to deposit it will be on her to do list. devil
 
I get a lot of headaches but not migraines.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40571
   Posted 9/13/2008 11:58 AM (GMT -7)   
Marlee,

I think that you have got something here. We are often distracted by the way that we feel. Maybe from our pain or our fatigue. I think if we all try to stay in the moment and focus on what we are doing instead of the way that we feel, we might have less fibrofog. I hope so anyway.

hugs, Karen...
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/13/2008 12:49 PM (GMT -7)   
I'm not distracted by fibro pain but I think it could be a part of fibro because I am easily distracted.  Then I forget what I was doing when I got distracted!
 
I think I'm going to take out stock in paper and pencils.  I'm always writing lists because I keep forgetting things...things that I would tell myself, "Oh, you don't need to write that down.  You'll remember that."  Yea, right!  shakehead
 
I guarantee, I will NEVER forget to deposit a check again.  That really threw me.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 9/13/2008 1:48 PM (GMT -7)   

Kelly, you pretty much summed up my life and yes I do sometimes think I'm going crazy.  I actually asked my physical therapist if she thought I was losing it, she laughed and said no, she understands fibro thank god.  I am in a fog right now, I'm really having a tough day but I think I may have done this to myself.  I have noticed that when I consume refined sugar I get worse.  Well, I was at Target earlier this week and bought myself some dark chocolate M&M's, the big bag.  The M&M's are gone now (yes I ate them all myself) and I can't talk, can't walk, can't think straight and I have had a headache for two days.  So I need to lay off the sugar so that I can function at work next week.

Kelly, you are not going crazy and you are not alone with your symptoms and please be careful out on the roads.

Meggie


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40571
   Posted 9/13/2008 1:48 PM (GMT -7)   
We must all be a little adult add. I think that we all have the same problem here. We are all easily distracted and our memory isn't always very good. To put it mildly. I too think this just goes along with the fibromyalgia.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 9/13/2008 1:56 PM (GMT -7)   
Kelly, when I am in a bad flare, or I am inside the mean reds, I experience alot of the things you describe. In terms of neuro, I have aphasia- where I can't find the word I need, I will say peppermint instead of pineapple. Also I stammer and my memory becomes very brittle, my short term memory will be shot. I call this my re-memory, because I try and remember things that I once knew and now can't find. I'm learning during these times that I can try and be more focused, such as make a mental/visual note of where I parked the car. However, the best thing I have learned about myself during these episodes, is to just let it ride. There is no amount of concentration, or focusing, or anything else that helps, except to let it ride- with time it will ease. In the beginning of this crazy FM roller coaster ride, I tried to force everything to go the way I wanted it to. I was a total Type A chick- very harmful :) Now I don't take everything too seriously and its all not such an endurance race. I hope you can find a balance in your life and feel more confident in yourself when you feel wonky or icky. You are not imagining things, something unpleasant is happening to you, and you can overcome them. Definitely talk with your doc aboutn these neuro things, maybe keep a diary or journal so you can be very specific with the doc when you talk about your symptoms. I agree with the others, what you are experiencing is not uncommon, but that doesn't make it unimportant. Let us know how you are doing!
 


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 9/13/2008 6:37 PM (GMT -7)   
I told my rheumy that I knew I had some kind of glitch or hole in my brain, because I can't do the things I used to the way I used to. He said eventually everyone with fibro says something like that. He also said I might very well have a glitch in my brain and I could have a bunch of neuro tests, but it wouldn't be something that was treatable. So I just go on the way I am, but I'm not always happy about it. Diane (PS I almost always type my name wrong, I type Dinae and I always have to go back and fix it)
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 9/14/2008 12:05 AM (GMT -7)   
Dont you worry, my cognitive skills got so bad I dont drive anymore.  I just cant focus, I to loose my balance forget what im doing and so forth.  I have very short memory , my family jokes about it.  Basically I am a robot thats how I function.  form sue2z confused confused confused
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


CyndiO
Regular Member


Date Joined Jun 2008
Total Posts : 90
   Posted 9/14/2008 5:28 AM (GMT -7)   
I have a lot of the same symptoms that everyone is describing. I sometimes even feel that I developed Fibro BACKWARDS....I fought the fatigue for years. Then once in awhile I would just forget a word. I would be talking to a patient and the word that I was going to use would go right out of my head. It really bothered me because that was long before I developed any other symptoms and neurological problems run in my family. I developed GI problems, then I got depressed. All of this was long before pain entered the picture. What was weird about the depression was, it came out of the blue. Everything was fine. I had worked through numerous life altering problems in the past and never was depressed. Everything in life was going well and boom-depression. My memory is horrible at times. Sometimes, I can remember things with no problem. Then, other times things that I know like the back of my hand just vanish.
My husband has a condition that affects his memory. We even joke about it. I will say "I can't remember if I told you this or not"... He will say "It doesn't really matter because I have probably already forgotten", hehe. That is what gets us through...A sense of humor :)

P.S. Kelly, I am not trying to bring up a sore subject but when are you gonna be coming my way? I live in southeast GA...you are coming to SC, right?

Cyndi

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/14/2008 6:15 AM (GMT -7)   
CyndiO, we developed fibro about the same. Fatigue, GI problems, mine was terrible anxiety more than depression and then the pain. Fatigue is still my biggest problem.
 
It is like we have developed ADD and dyslexia. I know my brain has done an 180 in the past few years. I use to be so focused.
 
I keep pen and paper right next to my computer along with my calendar. Sherrine, I would have had go to bank on my to do list cause I know how easy it is for me to forget those things.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 9/14/2008 8:25 AM (GMT -7)   
Cyndi,
 
Moving to SC isn't a sore subject at all.  My mom HELPING me move is a sore subject. rolleyes   I'll be in northwest SC (off of I-85, if you know where that is).  I don't know if you know this (cause like you, I can't remember wink  ), but I did live in the ATL (that's Atlanta to all you non-southerners) tongue for over 6 years before moving out here.  So, I DO have a special spot in my heart for GA.  BTW-Bulldogs or Yellow Jackets?  LOL
 
FYI-I have been promised that I will be moving during the 2nd week of October.  Mark that on your calendars!  But, you'd better mark it in pencil, cause I've been promised things before... rolleyes
FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix to try to quit smoking (started 08/20/08)
 
"I'll take the Chivas instead"
-Kelly Clarkson


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 9/14/2008 10:32 AM (GMT -7)   

Hi Kelly-

Sounds like we're not crazy!! turn   I do alot of things too. Last night when my youngest son and I got home from my oldest sons I tried to open the front door with my car key! Needless to say it did not work. I started laughing and so did my son!

I rearrange letters when I'm typing all the time and I have a terrible time focusing for any length of time. Memory can be good one day and not the next. I keep a daily list on what has to be done or I would forget. When the fibro first hit I could not even drive a car- now I can.

Hope your mom follows through for you! :-)   GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 9/14/2008 12:00 PM (GMT -7)   
Dont worry Kelly, you arent crazy, or maybe you are, but if you are so are ALL of us! =]

I forget things ALL the time. And I trip and stumble ALL the time also. (more lately than ever before)
I do ALL sorts of things that make me feel crazy... ALL the time. So, you know your not alone. =]

"Healing is an energy phenomenon. Hope is another word for Healing.
"Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
"Sometimes it is best to forget what you feel and remember what you deserve"
"Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


girlfrombrooklyn
New Member


Date Joined Sep 2008
Total Posts : 11
   Posted 9/15/2008 3:39 PM (GMT -7)   
THANK GOD... another answer..
I drive to the supermarket and have to pull over because I not only forget where I"m going, but don't recognize my surroundings, and I've been on this same road 100 times before.
You should have seen me the last time I was on the subway... going uptown, when I needed to go downtown, taking the B train when I needed the D train... UGH..

I realized just how bad my fatigue is too... amazing that I can fall asleep at the drop of a hat. Scary.
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