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MEG25801
Regular Member


Date Joined Jun 2008
Total Posts : 204
   Posted 9/15/2008 4:31 PM (GMT -7)   
I read in the fibro 101 that palpitations is one of the symptoms of fibro.  How many of you experience this and what do your's feel like?  I have been having them and it feels like a thud in my chest.  I hate it...relly scarry.  about a year or so ago I had a heart exam (echo, nuclear stress test, ekg..ect) and nothing was found.  I am going to the doc again tomorrow to have him put the holter monitor on me again just to make sure.  Seeing as I have a panic disorder as well ( health anxiety) this is getting really hard to deal with.  It would put my mind at rest if I know you all experience them as well.
Diagnosed with Panic Disorder-GERD-GAD-IBS-DDD-Arthritis-Controled HBP-Going to Doc in Sept to be evaluated for Fibro.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol


atruckersprincess
Regular Member


Date Joined Sep 2008
Total Posts : 21
   Posted 9/15/2008 4:49 PM (GMT -7)   

I haven't been diagnosed with FM, but I do have palpatations.  Feels like a "flutter" or a muscle twitch for me.  It's very scary.  I had an atrial fibrillation episode back in 2000 and was in the hospital for 2 days, so every time I get a flutter, I freak out.

I also have panic disorder and anxiety.  I think that palpatations are a symptoms of these as well.

I've done all the tests too and they didn't find anything.  I had an ER doc tell me once that I had an enlarged heart, but I haven't had anyone else confirm it.

Best wishes to you :-)


~ BRIE ~
 
"As long as there is a dream, there is hope; as long as there is hope, there is joy in living."


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 9/15/2008 5:20 PM (GMT -7)   
The heart palpitations started about two years ago for me.  I felt that "thud" in my chest and checked my pulse in the veins in my neck and realized that my heart was skipping a beat.  Of course I went to the doctor and he did an electorocardiogram, echocardiogram, an ultrasound of my heart and had me wear a monitor for 24 hours and my heart is just fine. 
 
I think anxiety plays into it and, when this happens, the anxiety kicks in big time.  I don't usually suffer from anxiety attacks because I won't allow them to start to control me.  They did for several years and I was on valium for them but I decided that I could handle them.  It is fear that causes them and it makes you feel so miserable.  The valium was changing my personality, too.  So, I decided that, when the anxious feelings would come, I could recognize it and I would "dismiss" the feelings and start focusing on something else.  It took some practice but I don't really have anxiety problems now and take no medication for that either.
 
I hadn't had any palpitations in over a year but, two days ago I had it happen three times in one day.  But, since I know my heart is fine I didn't allow the anxiety to rise up in me.  It tried to but, again, I "dismissed" those feelings and just got busy doing something in my home.  If I dwelled on the feeling and started worrying about my heart, I would be a mess.  I know my heart is fine so I just don't worry about it.
 
I'm glad you are seeing the doctor.  You really need to put your mind at ease.  Everyone should see their doctor if this happens to rule out heart disease.  More women die of that than breast cancer!  So, be sure to get checked out.  If you see there is not a problem then you can be in control of yourself again.  Hope you feel better soon!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 9/15/2008 6:39 PM (GMT -7)   
I've had pvc's (feeling like my heart "skips" a beat) and tachycardia for about 15 years.  Anxiety/stress does make it worse, and I take a beta blocker to help slow/calm things down.  I feel much better on the medication.
 
I don't know if mine is related to fibro or not.  My understanding is that most people have pvc's, but some of us have more of them, and some of us tend to feel them more than others. In my case, I was told that they were benign, and I just take the meds to be more comfortable.
 
Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 9/15/2008 7:35 PM (GMT -7)   
I have a LONG history of these "skippnig a beat" thumps, and even sometimes, tachycardia. Mine started around the perimenopause years. I have had all the tests, including holters, echoes, and finally, heart catheterization because the 2nd stress test I had indicated an abnormality. My cholesterol has always been high (genetic thing) and when they called to tell me I needed a cath, I about died of anxiety right then and there. I got through it and it showed that everything was quite healthy - no blockage, or narrowing of any kind. I had also been on a Beta Blocker for a year or so....it did seem to help, but there were side effects for me, so I got off it.

Finally the cardiologist told me he didn't think there was anything wrong with my heart, the arrythymmia's were probably caused by GERD ( which I noticed is a problem for many of us)and recommended I see my PCP about a scope. I wasn't too excited about another test, so I did a little research on GERD and decided to try DGL - recommended by Dr. Andrew Weil - which is a form of licorice that has something taken out of it....just can't remember the name, it's long and hard to pronounce. You can find it at most health food stores, and comes in tablet form, which you chew before meals and bedtime. I didn't care for the taste at all - but it worked well. After a month or two of fairly regular use, the palpitations faded to just an occasional thump. It's been about 2 years since I stopped using the DGL and I still have very little trouble with them - and every once in awhile when I do - I can usually trace it back to something I've eaten, or remember having some reflux. But just to be clear, licorice or licorice products in general are not advisable to take - they can elevate your BP. The "DGL" has specifically had that potential removed.

That said....I think the palpitations happen as a result of a variety of things. The fibro makes us more sensitive to stimuli. Hormone fluctuations, stress, dehydration, lack of sleep, indigestion, flare, etc. etc. all play a part. A doctor once explained to me that if we have chronic disrupted sleep - our bodies can't make our next days supply of adrenaline (which it does only when we are sleeping) so it runs out. When it does - and we have a little fright or some stress of one kind of another - the body utilizes the "substitute" for the missing adrenaline - catacholamine, maybe - not sure - anyway - something that doesn't work as well as adrenaline. Like putting the wrong gas, or gas w/ water in it in you car tank.....and that can cause a fluttery, thumping heart as well.

Exercise, meditation, and eliminating caffiene are supposed to be helpful as well. I still eat some dark chocolate, but don't drink any kind of caffienated beverage. I really understand how scarey and unnerving the palpitations are.....when they're bad it's difficult at best to ignore them, and they produce a good deal of anxiety. I always wondered which came first...did the anxiety produce the palpitations, or the palpitations produce the anxiety? The tests & doctor visits are important to rule out other probs...but after that, like Sherrine said, it's important to breathe and relax. And maybe try the DGL.
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


MEG25801
Regular Member


Date Joined Jun 2008
Total Posts : 204
   Posted 9/16/2008 2:53 AM (GMT -7)   
Thanks all...your words of wisdom have helped.  Lucy...I did not know there was a connection between GERD and these palps.  Maybe thats what it is???  I will ask the doc today.  Sherrie...I too can control the full blown panic attacks..I can talk myself right out of them.  But I do have GAD s well and that kicks my butt sometimes. shakehead    I also feel that I am perimenopausal...and I know the palps are a symptom of that as well.  My gyno says that because my periods are still regular that no I'm not but I have every oher symptom but that.  I will let you all know what the doc says today when I go.  Also the 29th is almost here turn that my appt with the rhummy so we'll see how that goes.  Thanks again all.
Diagnosed with Panic Disorder-GERD-GAD-IBS-DDD-Arthritis-Controled HBP-Going to Doc in Sept to be evaluated for Fibro.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/16/2008 7:11 AM (GMT -7)   
I have palpitations off and on. I know too much caffeine can cause them. I had an EKG and stress test done when I was going through all the testing.
 
Meg, like you I can control the panic attacks but the GAD I can't always get a handle on. Thank God for xanax. I can usually figure out what is causing it. Yesterday was a bad day but I was stressing over this never ending mess in this family room and how to organize it.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 9/16/2008 7:22 AM (GMT -7)   
I'm so glad that you posted this! I have palpitations too, it feels liek a butterfly, or like my heart wants to beat out of my chest. It used to scrae me at first, but now I just take deep breaths and calm myslef down. Still, it will help knowing that this is a common complaint with us, for the next time it happens.
in the land of Limbo, taking OTC meds (which don't work).  Started at 5mg of amitriptyline.
Waiting for referral to rheumy to get a dx. waiting, waiting, waiting....


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 9/16/2008 8:24 AM (GMT -7)   
I have them too. mine feel like I'm skiipping a beat. I was put on Cymbalta and the palps were stepped up to almost ocnstant. I was terrified! They put a monitor on me for 24 hrs. I had soemthign like 634 palps in that time. The dr told me that ocmpared to how many tiem your heart beats in a day it wasn't as bad as it sounded, but wanted me off the Cymbalta. I got off and they went back to only occasionally.

The heart dr told me that women have palps during the menstrual cycle and anxiety, and they are perfectly natural as long as it's not a constant thing. He also told me that even though it's feels like it's a skipped beat, in reality it is a extra beat. Mine feel like an adrenaline rush, a kind of fluttery pounding.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


atruckersprincess
Regular Member


Date Joined Sep 2008
Total Posts : 21
   Posted 9/16/2008 10:25 AM (GMT -7)   
d2parrotperson said...
I have them too. mine feel like I'm skiipping a beat. I was put on Cymbalta and the palps were stepped up to almost ocnstant. I was terrified! They put a monitor on me for 24 hrs. I had soemthign like 634 palps in that time. The dr told me that ocmpared to how many tiem your heart beats in a day it wasn't as bad as it sounded, but wanted me off the Cymbalta. I got off and they went back to only occasionally.

The heart dr told me that women have palps during the menstrual cycle and anxiety, and they are perfectly natural as long as it's not a constant thing. He also told me that even though it's feels like it's a skipped beat, in reality it is a extra beat. Mine feel like an adrenaline rush, a kind of fluttery pounding.

 
Interesting that you mention the menstrual cycle.  My palps ALWAYS increase significantly the few days before.  That's how I know it's coming since I'm very irregular.
 
Gosh, do men visit this area? Do they mind us talking about such things as our cycles? confused
~ BRIE ~
 
"As long as there is a dream, there is hope; as long as there is hope, there is joy in living."


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/16/2008 12:08 PM (GMT -7)   
Brie, the few men we have on here are use to us talking about PMS, peri-menopause, menopause and cycles so don't worry. We have been trying to shock John with our talk but I don't think anything shocks John. tongue
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


MEG25801
Regular Member


Date Joined Jun 2008
Total Posts : 204
   Posted 9/16/2008 12:15 PM (GMT -7)   
Went to the doc today.  He reviewed the charts from a year ago when I had all the heart test done.  He told me to quit worrying that it was just the axniety.  He also said that giving my age (37) that it could be hormonal changes as well  ( FUN FUN!!).  So at least now maybe I can quit worrying.  I have only been taking my klonopin prn but he said I should start taking it every day like I am sposed to be doing LOL  So we'll see.  Yhanks guys for all your responses!!! yeah
Diagnosed with Panic Disorder-GERD-GAD-IBS-DDD-Arthritis-Controled HBP-Going to Doc in Sept to be evaluated for Fibro.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 9/16/2008 2:00 PM (GMT -7)   
Hi Meg - I was in my mid thirties when the palps became an issue for me as well. And they did always increase around that time of the month. Glad the doc reassured you. But what is GAD? I see it in a couple of the signatures....not familiar with that at all.....

Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40579
   Posted 9/16/2008 2:17 PM (GMT -7)   
Lucy,

I think it is general anxiety disorder. But not positive.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


MEG25801
Regular Member


Date Joined Jun 2008
Total Posts : 204
   Posted 9/16/2008 4:18 PM (GMT -7)   
Yes...GAD is Generalized Anxiety Disorder.  It's like having itty bitty panic attacks all day long LOL

Diagnosed with Panic Disorder-GERD-GAD-IBS-DDD-Arthritis-Controled HBP-Going to Doc in Sept to be evaluated for Fibro.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 9/16/2008 4:50 PM (GMT -7)   
Meg, I used to be like that too.  Honestly!  I remember sitting in a chair afraid to move for fear the anxiety would kick in.  My heart would start beating fast or I would get short of breath, etc.  It was no way to live life so I decided to get in control instead of it controlling me.  As I said before, I would just get really focused on something else.  I'd still get that "kathump" in my chest while I was doing things or my heart would start racing,  but I knew there was nothing seriously wrong with me healthwise because I had been checked out and I knew there was nothing to fear, so I would ignore it and keep moving.  I am a stubborn person.  When I make up my mind about something, nothing moves me.  That's how I got with the anxiety.  I got soooo tired of it running my life that I got angry and took control.  It isn't easy but it can be done.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 9/16/2008 7:53 PM (GMT -7)   
I used to have terrible PVC's when I was under a lot of stress. I don't have them anymore but I do have this tight feeling that wakes me up at nite. It's very uncomfortable. I get those anxiety attacks where my heart is pounding out of my chest and I have to talk myself "down". I can never figure out if it's psycological or physiological.
Carolyn
I am a mother to 4 children; James 11 mo.'s, Davey 2 1/2 yrs,
Dana 4 1/2yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


anonymouse
Regular Member


Date Joined Jul 2008
Total Posts : 40
   Posted 9/16/2008 10:21 PM (GMT -7)   
So sorry to hear that the rest of you have that but whew!!! (breathes a sigh of relief) I feel much better knowing I am not alone. I once felt my heart drop. (Felt like a fish flopping) And the racing heart and the almost non-existent beat. And I had the whole heart attack issue and every test imaginable with no damage found. (This was over a period of 2 years) Anxiety/Fibro related. I just read in a book what this is really called and it is an actual tightening of the chest wall....scary stuff this fibro..... shakehead
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