Feedback on Amitriptyline Please.

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larkspur
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 9/15/2008 5:54 PM (GMT -7)   
Hi all,
 
I am always very nervous about taking drugs of any kind. I have wierd reactions to them a lot of the time. shocked
I was just given a perscription for Anitriptyline and is intended to help with migraines and with the fibro.
Does anyone have any feedback on this? rolleyes
 
larkspur
 
 

Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 9/15/2008 9:23 PM (GMT -7)   
Hi larkspur,

I've tried amytriptyline and it didn't really do much for me. Didn't have side many effects and I usually do with that type of medication. I don't think I'd be afraid to try it if I were you.I'm not sure why it would help with migraines but I'm not the doc...lol It's often used for depression and fibro... a light dose of antidepressant can be very helpful in pain control. Give it a try and it the side effects are awful then call your doc and tell him you are going to stop taking it. That's how I try new meds. I try for as long as I feel comfortable and/or safe for me, then I quit and let doc know. It's our bodies and we're the ones who should make the choice of what goes in...IMHO

Keep us posted,
Chutz
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


mom1978
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Date Joined Sep 2008
Total Posts : 150
   Posted 9/16/2008 4:52 AM (GMT -7)   
Larkspur:
I was also prescribed amitriptyline, by my physician, for headaches and migraines, the only thing that I found, was that i couldnt take it, because it knocked me out with in a matter of minutes, and i had to look after my daughter. So it has its adverse effects for sure, but i have heard that it helps a lot, both with headaches and as an antidepressant.
I would not recommend you drive, operate machinery, or try to do anything that requires you to be alert for that matter, as it does make you quite drowsy, that is my side effect anyhow, hope that this helps,
kelly

Marlee2
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Date Joined Aug 2007
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   Posted 9/16/2008 6:27 AM (GMT -7)   
I've been on and off amitriptyline for about 30 yrs for anxiety and depression. I have been on 100 mg a day for 10 yrs now. I take it at bedtime. I didn't think it was doing anything for me so I decided to cut back on it in the spring. After two or three weeks I went into the worse flare I've ever had for two weeks so went back up to 100 mg. I do have less pain than many so I don't know if it is the amitriptyline since I was on it when the pain started.
 
I was put on it for anxiety after trying many SSIs that I had side effects from. As far as side effects it does cause dry mouth and cravings for sweets. I've been on it for so long I can't even tell I take it but it is hard to get off of, for me anyway. My doc says that's cause I need it.
 
It is used for pain and sleep along with anxiety and depression. It's been around for a long time.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


mamanan
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Date Joined Jun 2008
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   Posted 9/16/2008 7:16 AM (GMT -7)   
I take it, but my doc started me at a VERY small dose to start. The first few days, it made me very drowsy. I took it at bedtime, and my dh had to wake me up the next day at 9:30. I never sleep that late! I find now that it doesn't affect me as much, especially when I first take it, but it is still harder to wake up the next day. It's been about a month btw. Now I take it much earlier, around 8:30 instead of 10-10:30, and that has helped. One night I didn't take it, because I was at work late and I had to get up the next day with the kids, dh was working early. I had a horrible sleep that night. I hadn't realized untill I started taking it how badly I slept, I had lots of dreams, and I felt like I was always thinking, moving or working. Oh, and I credit it with having helped with my facial pain too.

Good luck!
in the land of Limbo, taking OTC meds (which don't work).  Started at 5mg of amitriptyline.
Waiting for referral to rheumy to get a dx. waiting, waiting, waiting....


larkspur
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 9/16/2008 7:36 AM (GMT -7)   
Thank you all so very much. It is so helpful to hear from you.

I do believe I will give it a try and see how it goes.

Thank you Fibro Family

larkspur
Fibromyalgia...endometriosis...migraine stew.. with a touch of dislexia on the side.


Waterbaby
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Date Joined Aug 2008
Total Posts : 96
   Posted 9/16/2008 4:16 PM (GMT -7)   
I have been taking amitriptyline for about 2 weeks now. I have not had any bad side effects and it really helps me sleep.
bulging discs in neck & thoracic region, low back pain, arthritis in lumbar region, diabetes, high blood pressure, depression, anxiety,
meds: enjuvia, pristiq, actos, amaryl, lyrica, hyzaar, elavil
 
 
"Two paths diverged in a yellow wood, and I, I took the one less traveled by...And that has made all the difference."  Robert Frost


larkspur
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 9/16/2008 5:56 PM (GMT -7)   
Thanks Waterbaby

That sounds very hopeful to me. I am curious, what mg were you given?

larkspur
Fibromyalgia...endometriosis...migraine stew.. with a touch of dislexia on the side.


tyno3
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Date Joined May 2008
Total Posts : 1081
   Posted 9/16/2008 7:47 PM (GMT -7)   
cool  I've been on Amyltriptilene(Elavil) since 1990. Only two side effects (when taken prior to bedtime), 1) weight gain from craving for sweets, 2) dry mouth during the day. I started at 15mg. gradually got up to 100mg. 1 hour prior to bedtime. Occasionally, when my Fibro flare is severe and I'm in misery, I take 25mg. during the day. That is only when I am not getting any relief from my pain meds. Then, when taken during the day, although it stops the neurological pain like horrible tailbone/spinal pain which doesn't respond to reg. pain meds like tylenol with codein, I have to pretty much stay in bed that day because the side effects are much more irksome. I'm wobbly, feel hungover, dry mouth, feel kinda like my skin is crawling, prespire, have trouble tolerating heat. Sort of flu like symptoms. So, it's a trade-off. The spinal pain which is unbearable, or take the amyltriptilene, stay in bed and feel hung over. Fortunately, this situation occurs only about every three weeks or so and generally lasts only a day or so. Originally, Amyltriptilene was the only medicine the docs would give me for Fibro. I think, ever so slowly, they're beginning to awaken to the reality of what this disorder is, how it manifests and how best to treat it. Back in 1990 I clearly was scorned at when I raised the issue of having Fibromyalgia. As if I was making up stories to get attention and pain meds. Now, through these forums and research by hugh pharmaceutical companies who would market a cure for a ham sandwich if they thought people would buy it, slowly, the docs are beginning to believe. It is a useful med to promote the levels of sleep required by the body to heal. Therefore and therein lies the secret to how to manage the Fibro. Get the patient sleeping well, promote stressless surrondings, and manage fibro flares with appropriate pain meds. Oh yeah, maybe move to Arizona to avoid barometric highs and lows, lol.

larkspur
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 9/17/2008 6:15 AM (GMT -7)   
tyno3

Thank you for you post. Yes I do understand trade off. I am so ready to trade off any of the pain. I can live with some side effects.

larkspur
Fibromyalgia...endometriosis...migraine stew.. with a touch of dislexia on the side.


Enochroot
Regular Member


Date Joined Sep 2007
Total Posts : 40
   Posted 9/17/2008 3:26 PM (GMT -7)   
I tried it recently and found it to be AWFUL.
But these meds are very individual - you may love it.
I tried 15 mg for two nights, it helped somewhat
with better sleep but amplified my pain and mental fog
during the day!

Start with small doses, keep notes.

larkspur
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 9/18/2008 7:15 AM (GMT -7)   
Thank you Enochroot

So far there seems to be more positive than negative. I am a bit grogy for a while in the morning but it is worth it to me to actually be able to sleep at night. It has been a long time since I have gotten any restful sleep. For me it seems to be taking the edge off of the pain. Hoorah.
Your right...small doses sounds correct....and yes keep notes, I have already started.

Many thanks.

larkspur
Fibromyalgia...endometriosis...migraine stew.. with a touch of dislexia on the side.


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 9/18/2008 4:57 PM (GMT -7)   
I've been on 30mg of Amitriptyline for about 7 years now. Haven't needed to increase the dose.  It works great for pain, and sleep. For me anyway!  I take it about 90 minutes before bedtime, and I fall into a nice long sleep.  I wake up without any "hangover" feelings too.  It's been great for me.
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


larkspur
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 9/18/2008 5:05 PM (GMT -7)   
Ginny

Thanks for the feedback. It's so nice to hear from everyone. Hopefully it will work as well for me.

larkspur
Fibromyalgia...endometriosis...migraine stew.. with a touch of dislexia on the side.


Waterbaby
Regular Member


Date Joined Aug 2008
Total Posts : 96
   Posted 9/19/2008 12:18 AM (GMT -7)   
Hi Larkspur! I am only taking 25mg. at bedtime as instructed by the rheumatologist. I have always been one to have terrible trouble sleeping. I mean for years I have had this problem with sleep. I have taken Ambien CR for a long time. When the rheumy prescribed the amitriptyline I thought yeah right, that will never work. I am pleasantly surprised that I am sleeping much better. Not having to take the Ambien anymore. Good luck!


bulging discs in neck & thoracic region, low back pain, arthritis in lumbar region, diabetes, high blood pressure, depression, anxiety,
meds: enjuvia, pristiq, actos, amaryl, lyrica, hyzaar, elavil
 
 
"Two paths diverged in a yellow wood, and I, I took the one less traveled by...And that has made all the difference."  Robert Frost

Post Edited (Waterbaby) : 9/19/2008 1:22:30 AM (GMT-6)


larkspur
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 9/19/2008 8:54 AM (GMT -7)   
Waterbaby

Thank you for your reply. So far it is helping quite a bit with my lack of sleep and somewhat with the fibro pain, however it is not addressing the migraines.
I am just starting out and I should give it some time I suppose. I also need to try to up the amount according to the neurologist. He has started me out on 10mg and wants me to slowly increase it.
It does make me very sleepy though and I don't want to sit in a chair all day and drool on myself.
I will give my best though and I think for me personally keep it low dose.

Many thanks.

larkspur
Fibromyalgia...endometriosis...migraine stew.. with a touch of dislexia on the side.


Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 9/19/2008 9:44 AM (GMT -7)   
That was a vivid description. tongue It takes several weeks for the amitriptyline to work so give it a chance and hopefully the grogginess will go away and you won't sit in a chair and drool all day. I've been on it so long I can't even remember if I felt groggy at first.
 
I know with the amitriptyline and xanax I drift right off to sleep at night.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


larkspur
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 9/19/2008 11:18 AM (GMT -7)   
Thanks for the reply Marlee

I hope I won't be stuck in the chair too long. I promise I won't really drool ...ok?

Thank you for the encouragement.

larkspur
Fibromyalgia, endometriosis, migraines....
 


Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 9/19/2008 11:19 AM (GMT -7)   

Hi,

I supposedly have Fibro and my Rheum had prescribed me Elavil a few yrs ago. I actually took it for quite some time. However, it did nothing for the pains I was having, but...I did help me sleep!!! And I slept soundly for the first time in a long time. So for me, that was the greatest thing about it. I could even time when I wanted to go to sleep. It was always about an hour after taking a pill that I fell asleep and I really zonked out. So If I wanted to stay up a little later to watch something, I just timed taking my pill so I would fall asleep when the show was over. I did not even want to stop taking it when I did. Aside from that, I had no side effects at all that I could recognize.


larkspur
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 9/19/2008 11:32 AM (GMT -7)   
Baybreeze

Thanks for the reply.

I take it the Elavil is another name for Amitriptyline?

larkspur
Fibromyalgia, endometriosis, migraines....
 


Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 9/19/2008 11:42 AM (GMT -7)   
You're welcome. Oh, and yes, sorry about that..Elavil is the brand name for amitriptylene. When I took it, it was actually the generic, which is much cheaper.

larkspur
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 9/19/2008 12:00 PM (GMT -7)   
Baybreeze

That's what I thought it sounded like.
Thank you for letting me know.

larkspur
Fibromyalgia, endometriosis, migraines....
 

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