I totally agree! When I am having a flare, I guess, I cannot wear necklaces because they pull down too much. Also do not like collars that touch my neck. Purses or laptop bags hurt. I hate walking into stores, too sometimes. It gets exhausting. Lately I have had to think about where I want to walk and decide if it is worth it or not. Sometimes when walking across campus I try to think of excuses to stop and rest because I feel silly stopping when I only went a little way. Does anyone have a handicap placard for their cars? My dh suggested I get one for days when I am in pain.
I can only sit so long, stand so long, write so long and it will start affecting me too. Even before I got fibro I did not like heavy sweaters or heavy coats or jackets in the winter on my shoulders. I know I flip/flop through the night to get comfortable. PJ's have to be cotton and loose.
Marlee- I get frustrated too when I want to keep shopping and my body is telling me another story. Do you have a handicap sticker?
Statgeek- My Dr. and I applied for a handicap sticker/card and sent it in ages ago. Have not heard a thing yet.
And the shoulder strap on the seatbelt!! Ouch. I toss and turn at night too. I get tangled up in my night clothes. But I can't sleep naked because then wherever I go in my dreams I am naked and it's difficult to sleep when you keep dreaming you are naked at the store or school! Diane, Maybe I will try the satin sheets, but I had the same problem as Shannon. I got the satin pillowcase for wrinkle repellant and the dang thing kept falling off the bed! I know! Velcro the pillow the the bed! Suez, seriously, the strapless bra helps? You don't have to get it so tight you can't breathe so it doesn't fall down? Has anyone tried "body by victoria"? They are $40+ each, but I won't use anything else. You can get them in awful colors like orange or puke green during their semi annual sale, but they are really cheap then.
I don't wear a bra anymore, I tried to wear for business or church, but it just hurts too much. The straps are bad, but the clasp on my back area is the most sore spot on my body. I can't stand for any length of time, like to go shopping, grocery or otherwise. I need a couple of my children w/ me to lift into the carts, to the counter, into bags, the car then into the house. I have never been a big shopper, all the women in my family consider it a sporting event, I'm the black sheep.
I have flannel sheets on my bed yr. round. I wear a long T-shirt to bed. My clothes are basically cotton. My mother use to love to dress us in lace. I do not do lace!! I don't like things around my neck, sweaters, shirts, or necklaces. I wear 2 pcs of jewelry, wedding ring and watch, ONLY if I'm going out. I have gotten rashes from very good jewelry, detergents, soaps, shampoos, etc. I have a few special things I can use or wear and I stay in that comfort zone.
I have pillows on my bed, my chairs (Dining room, Living room) & in my car. I don't hear well in my R. ear, always use my left, so I can't talk too long or my left hand goes numb, as does my ear. lol My hands can only hold a pen for so long, I usually print instead of cursive. My printing is neater for longer than my writing, but my hand locks quickly so all bets are off. I love to read and now I have to wear my glasses (bifocals) It feels like an extra strain to lean forward, or if in bed, to rest book against my raised knees.
I guess what it comes down to is, if you want me there, I'm coming w/o my bra and I bringing my pillows. It is about me.
God bless. Alice.