Walt Disney World

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Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 9/22/2008 6:33 AM (GMT -7)   
Fellow Fibros!
 
My wife and I jsut recently returned from taking our 3 year-old to Walt Disney World. What a wonderful nine days we spent escaping from work and other stress.
 
I was amazed at how well my fibro was with all of the walking etc...
 
It truly is the happiest place on earth! :)
JoKat
 
Fibro is a life sentence, but not a death sentence.
Fibro since 2005
Lyrica, Cymbalta, Trazadone


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/22/2008 7:06 AM (GMT -7)   
Jokat, I'm so glad you had such a wonderful time!  I live an hour away from Walt Disney World.  It really is a great place to go.  I think the walking helped the fibro, too.  I know that when I walk I feel a lot better than when I just sit.  Also, getting away from the stress of day to day work helps, too.  We fibromites need to plan ahead to avoid as much stress as possible.  I know it's not always possible, but we can rid ourselves of a lot of it.  Of course, some of the stress we put on ourselves...
 
Welcome back home!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 9/22/2008 7:33 AM (GMT -7)   
Disney World is my favorite place in the whole world!  smilewinkgrin
 
I went a couple of years ago (and am hoping to go back in a couple of years), and I had a wonderful time.  I was also able to walk pretty well; I think I was running on adrenaline because I crashed when I got home.
 
One of the things I love about it is that once you are there, you don't have to leave for anything.  You don't have the stress of trying to sightsee, drive in an unfamiliar place, etc. Also, with fibro, Epcot is probably as close as I'll ever get to seeing the world! lol cool
 
I'm so glad you had a great time. 
 
Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/22/2008 8:46 AM (GMT -7)   
Austen, you CAN see the world with fibro!  I have seen many places overseas, including Italy, Germany, Austria, and Switzerland!  Please don't let fibromyalgia take away the things you want to do in life.  Start saving up for the places you really want to see.  You will be glad you did!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 9/22/2008 8:48 AM (GMT -7)   
Jokat,
 
I am so happy for you, that you were able to go on vacation and have such a marvelous time!
 
I also want to say thank you.  Toward the beginning of this year, I posted on here after I was first diagnosed.  I was scared and confused, petrified that my life was going to go through a major overhaul.  You did not just tell me it was ok and moved on - you were tougher, stronger - told me that my career and my life wouldn't have to change if I was determined not to let it.  I came on here today to tell you that you were right and to say thank you.
 
One day a few months ago, I was fed up with this whole thing.  I realized that this was not going away, no matter how much I wished it away.  I also realized that I was much stronger than Fibro.  This thing was not going to take my goals and dreams away from me.  I decided then and there that my new motto was going to be "feel the pain and do it anyway". 
 
Since then, my career is going fine.  The only change I made was adjusting my hours to come in earlier and leave earlier  - I am more alert earlier in the morning and coming home earlier has decreased stress within my home.  My family and I went on a vacation to Acadia National Park, where I walked and hiked, carrying our lunches in a backpack.  I painted the inside and outside of my house, planted a garden, etc.  Do I hurt?  YES!  Am I tired?  YES!  But, I am telling you that the simple act of defiance - of not letting this thing get me down - has done wonders for my psyche.  I have also noticed that the more active I am, the more energy I have. 
 
When I am having an especially bad day, I don't paint the house ;).  I may take it a bit easier on those days.  I try not to schedule important meetings on especially foggy days.  But, I have refused to allow this thing to beat me into submission.  I would much rather hurt while I am doing something than hurt when I am not doing something.
 
Thank you, Jokat!
 
Kerri

Kerri

Fibromyalgia

Current Treatment (holistic): D-Ribose, Adrenal Distress Guard, Cod Liver Oil; Qi Gong (to begin soon)
 



Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/22/2008 9:39 AM (GMT -7)   
Kerri, congratulations!  This is the attitude we are trying to get across!  I'm so glad that you are controlling fibro...not fibro controlling you.
 
Thanks for sharing your story, and thank you, Jokat, for inspiring Kerri!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 9/22/2008 9:49 AM (GMT -7)   
Thank you, Sherrine! I was afraid my post would be hurtful to those who are struggling just to make it through each day (I truly hope it wasn't). But, I needed to say thank you to Jokat. Without his toughness, it may have taken me a lot longer to find my inner strength.

I am also so greatful to you and others I've met on this board. You were all so supportive when I needed it. Thank you.

Kerri

Fibromyalgia

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 



AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 9/22/2008 10:44 AM (GMT -7)   
Sherrine,
 
I think it's wonderful that you've been able to see so many beautiful places.
 
I have a daughter to get through college first, and then who knows?  Maybe I'll become a world traveler.  :-)
 
Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/22/2008 11:12 AM (GMT -7)   
My children are all grown now, too.  I couldn't travel when they were in school either. 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 9/22/2008 2:04 PM (GMT -7)   

Kerri,

I am SO glad that you kept with it! I have thought about you several times.

Thank you for the post. It really touched me to know that I was able to help you. I am very proud of you and your strength. It sounds like you have it by the horns, so don't let go.

What a great sentence:

I would much rather hurt while I am doing something than hurt when I am not doing something.

I wish I had some up with it!! :)

 


JoKat
 
Fibro is a life sentence, but not a death sentence.
Fibro since 2005
Lyrica, Cymbalta, Trazadone


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 9/23/2008 5:53 AM (GMT -7)   
Hi Jokat,

I'm glad to hear back from you. Thank you for everything you wrote- sincerely. I very much wanted you to know that your "tough love" approach really does help some people (even if not everyone wants to hear it at the time ;)

I have been wondering how you have been doing as well. I was thrilled to hear that you went to Disney World. It sounds like you and your family had a fabulous time. What did the kids like best? How are you doing besides Disney, especially now that you are back at work?

I must tell you also - I LOVE the quote in your signature! "Fibro is a life sentence, but not a death sentence." Well said!

Take care,

Kerri

Kerri

Fibromyalgia

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 



Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 9/23/2008 8:09 AM (GMT -7)   

Hi Kerri!

We did have a great time at WDW. I have a daughter that turned three while we were there and she LOVED the princesses. :) Her favorite ride was the Tea Cups.......we rode it four times.

I really was very suprised at how little the trip effected the FM. When we first got back the inactivity took it's toll the first couple days. I really do feel worse if I am just sitting at home.

The stress of work aggravated it a bit when I first went back, but I am settling in now and getting back into my routine. I even joined in a volleyball tournament at my wife's company picnic. We won the goofy trophy! I am paying for that a little bit, but I had a ton of fun doing it!!!!

As a wise woman recently told me:

"I would much rather hurt while I am doing something than hurt when I am not doing something."

:)

 


JoKat
 
Fibro is a life sentence, but not a death sentence.
Fibro since 2005
Lyrica, Cymbalta, Trazadone


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 9/23/2008 11:07 AM (GMT -7)   
Hi Jokat,

What a little cutie, turning 3! Big girl! I can't believe how much she loved the teacups - aren't they the ones that spin non-stop? She has a tough stomach - I got dizzy just watching them spin!

I think it's great that you played volleyball and won a trophy. That sounds like a lot of fun! I completely understand about inactivity and how it makes FM worse. Not only do I hurt more and get more "creaky", but it is not good for me mentally. Before I came to my realization that I was too tough for FM (LOL), I went through a phase where I blamed myself for my condition. I thought I may have caused it by always being on the go and not taking care of myself. So, I actually did try to calm down for a while. I was miserable! I am hard-wired to be on the go. Trying to be someone I am not, regardless of my diagnosis, was not good for anyone in my house. And, taking it easy did nothing to ease the pain, so why not just get up? After all, this is not a death sentence, right?

I hope you get settled into work soon. Take care.

Kerri

Kerri

Fibromyalgia

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 



Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 9/24/2008 12:37 PM (GMT -7)   

Kerri,

 

Check out my latest post titled "Find inspiration!".

This guy's story is amazing.

Enjoy life


JoKat
 
Fibro is a life sentence, but not a death sentence.
Fibro since 2005
Lyrica, Cymbalta, Trazadone


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 9/24/2008 1:51 PM (GMT -7)   
Kerri,

I enjoyed your post and it was uplifting and happy. I am one of those people that can barely make it with the fibro, but I don't resent your uplifting post at all. On the contrary, I love hearing positive stories and people who are taking control of their lives.

I take care of my four year old granddaughter every day and will be taking care of a new infant after January. I struggle with pain and sleepiness from the medications, but the girls keep me going and I wouldn't have it any other way. I don't want my grandchildren in day care. Not if they can be with Grandma and Grandpa, so I am happy with my "job" and enjoy every minute of it.

You keep on keepin on, girlfriend and do your best every day. Take a rest when you need it and be gentle when your body calls for it, but give life a real part of you every day too!

Gentle Hugs,

Lindaloo

By the way, I never pass up an opportunity to go to Disney either, Jokat. I live one hour away and have my electric wheelchair. I do just fine, thank you very much. Gotta enjoy those girls with their characters while they are little, right???
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 10/3/2008 9:07 PM (GMT -7)   
Lindaloo,
 
Thank you so much for sharing your story and for your comments about my post.  I am very glad to hear that you found it uplifting instead of discouraging.
 
I think it is wonderful that you are able to care for your grandchildren each day and that you are so fullfilled by it.  I'm sure it's not easy getting through days sometimes (I understand, I have a 2 year old and 10 year old).  Your story is very inspiring.
 
Take care,
Kerri

Kerri

Fibromyalgia

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 



Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 10/4/2008 12:59 PM (GMT -7)   
Jokat, that is very good news. I learned at the pain clinic that enjoyable activities can close the pain gates. That is really encouraging.
Austen, do travel the world - I have also. And I am not going to let the fibro stop me. I will just have to modify how I do the traveling.
Kerri, I love your post. That is exactly how I want to handle the fibro. I am learning how to manage the pain with less medication and with more lifestyle changes. I am going to ask for an appt. with biofeedback to help me control muscle spasms. Maybe if I keep exercising and get stronger, I can climb the wall again, too. That is encouraging!
Best,
Sue
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