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SleepyWillow
Regular Member


Date Joined Sep 2008
Total Posts : 33
   Posted 9/22/2008 7:59 AM (GMT -7)   
Hi Everyone!
 
I'm not sure exactly how to start so first I suppose I'm a little glad to have found this site.  I have been doing some tests and completed a sleep study last week. My GP feels I may have FM.  I'm waiting on the results of what we have done and have NO idea what happens after that.  I am a 34 yr old mother to two and wife working full time in an office environment. 
 
I don't want to sound like I'm whining BUT I can't remember the last good night sleep I've had!  For the last 3 or 4 months things have gradually worsened.  I'm suffering major headaches especially in the morning when I get up (my jaw kills me in the morning because I think I'm clenching while I sleep) and late in the afternoon when I'm just SO tired that the only thing I can concentrate on is getting my 3 yr old to bed so I can have a hot shower and go to bed myself.  Shooting pains in my arms, fingers, legs and feet. I was woken a week ago with the worst back pain I have ever had right from the lowest part of my back to the top of my neck at the base of my skull and all I could do was get the ben gay on because the only thing I could think in my head was please god give me some heat! Is that a flare? I ended up leaving work early the next day so I could go home and lay down. There are SO MANY other things to add but if I created a list it would take forever.  I feel like a hypochondriac LOL like EVERYTHING is wrong and I keep asking myself if I'm just nuts.  I worry that the diagnosis will be FM and what that means moving forward.  Then I read stories of others who say thier pain is excruciating and that sometimes they can barely move and I think to myself "well that's not me at all"  not generally anyway I just feel heavy and tired but whatever pains I have are bearable with Tylenol and really they have to be because I have things to do, like work, chase a 3 yr old, clean my house feed my family etc...all things that I'm sure all of you do as well.  I suppose I am just freaking out with the what if's and how this will progress and the worst thing is that I haven't even been diagnosed...how long will that take?  Uggghhhh  what I would give for a good night sleep..
 
A~
 
 

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 9/22/2008 8:40 AM (GMT -7)   
Hi, A, and welcome to the fibromyalgia forum.  If it turns out that you have fibro, you will be more than a "little happy" that you have found us!  We have a great group of people that can help  you live a full and enjoyable life.
 
You could have fibro.  The pain is different for some people.  We have members on here that are on narcotics for pain.  I am on ibuprofen and Tylenol and malic acid magnesium supplements for pain and fatigue.  So, just because you aren't suffering excruciating pain doesn't mean you don't have fibro.  It means you are one of the more fortunate ones.
 
Most people with fibromyalgia do not sleep well.  The doctors say that we are not getting into a deep restorative sleep that helps the body to heal...hence the pain.  You can get some good suggestions about sleep on this forum too. 
 
Check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibromyalgia...including a list of symptoms.  You may be able to see yourself there.  All of the links have good information so it's well worth checking all of them out.
 
Also, read past posts. There is a world of information in them that could help you, too.  Ask questions, too.  We are here to help you along the way.
 
I am so glad you joined us and I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


genniefstr
Regular Member


Date Joined Aug 2008
Total Posts : 97
   Posted 9/22/2008 9:47 AM (GMT -7)   
Hello and welcome to our family. We have lots of fun here as well as vent,cry and support each other. I'm sorry you aren't feeling well. Fm is a strange dd. Some have used tylonal with suppliments to feel better some need narcotics. I am on nuerotin malic acid and magnisium. I have to pace myself with baby steps to get things done and my house suffers. Again welcome.

KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 9/22/2008 10:00 AM (GMT -7)   
Welcome, SleepyWillow. Please know, that the people on this forum do understand chronic pain and fatigue - and will not consider you a hypochondriac. I have found amazing support here through many members- and I hope you will too.

What you are describing sounds familiar to me. I have had a headache since New Year's. I think the only part of my body that doesn't hurt is my face (below my forehead, that is). My lower back is untouchable now and has been for months. Shooting pains, unable to get restful sleep. I truly do understand and you are not going crazy.

Feel free to post on here anytime. Keep us posted on your diagnosis.

Take care,

Kerri

Kerri

Fibromyalgia

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 



SleepyWillow
Regular Member


Date Joined Sep 2008
Total Posts : 33
   Posted 9/22/2008 10:03 AM (GMT -7)   
Thanks Everyone!

I have been looking through posts and stickies for just over a week. I managed to get my hands on an expanded list of Fibro symptoms a while ago and I was taken aback when I read many of them, realizing that I have been exhibiting many symptoms for quite some time. My mother who has been nursing for almost 30 years was the one who first mentioned FM to me. What scared me the most is that when I saw my Doc and told him some of the things going on (not all becase I figured he would tell me I was crazy) he immediately asked me if I knew what FM was. I think I'm still trying to wrap my head around the thought that I may be sick and possibly never feel 100% again. I have started to try and make some diet changes in order to hopefully help to feel better. I guess time will tell what I should and shouldn't worry about right! I'm trying hard not to get ahead of myself but the more I read on the subject the more I think "Oh my gosh, thats me!"

Thanks for the warm welcome! It was much appreciated :)

A~

kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 9/22/2008 10:48 AM (GMT -7)   
Sleepy,
 
Welcome to the family. :-)   I think you'll find a lot of really supportive people here.  And, if you're lucky, you'll even find a few true friends here.  Feel free to vent (or "whine" as you called it) as much as you need to.  Unfortunately, we have all been in your place at one time or another. sad
 
I am totally with you on the sleep thing.  I sleep horribly at night-usually in 20-30 minute intervals.  I'm on disability, so I am very lucky to be able to try to get a nap in during the day.
 
Also, you don't have to be in excruciating pain to have fibro.  We all have varying degrees of pain and how we handle that pain.  We all are on a lot of different meds, and whether you can get by with ibuprofen or if you need morphine, we are all the same-we all have fibro.
 
Anyway, again, welcome.  Please enjoy the ride. :-)
FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix to try to quit smoking (started 08/20/08)
 
"I'll take the Chivas instead"
-Kelly Clarkson


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/22/2008 1:13 PM (GMT -7)   
Hi A and welcome to our fingertip family. I guess I was one of the lucky ones cause I didn't really have a clue what fibro was until my doc dxd me and told me to go home and research it. I knew something was wrong but I didn't have to sit around worrying whether I had fibro or not. I am thankful I had a doc that picked up on it during the first real flare I had, not everyone gets that lucky and search forever for a dx.
 
Fatigue is more of a problem for me than pain. I have pain 24/7 but I can handle it with 4000 mg of tylenol a day. I think the amitriptyline also helps with the pain. If it gets too bad I use a TENS unit to interrupt the pain signals to the brain. A lot of controlling the pain is trial and error. The fatigue is another story I haven't figured out yet but always working on.
 
There are a lot of things that work for others that I can't take due to digestive issues like the malic acid/magnesium.
 
Most people are quite surprised when they read all the symptoms and realize they have had things they would have never associated with fibro.
 
The other day I described finding out I had fibro like  waking up in a new body that didn't work near as well as the old body did and having to learn what the new body was capable of. Kinda like being use to driving a new car with all the extras and having to go down to an old clunker that doesn't run very well. It gets you to where you are going but not as fast and you might run into a few problems along the way. tongue I'm 58 years old and as much as I would love to run like a new sports car that may not every happen again. It has taken me some time to accept all this but I have come a long ways in the year since I have been on this forum. It has been the best medicine I could have found.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 9/22/2008 1:36 PM (GMT -7)   
Besides, Marlee likes cars that you have to crank to start!  devil
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 9/22/2008 9:42 PM (GMT -7)   
Hi A~

And welcome. The hardest thing for us to do when we first get a diagnosis is to relax, but that's one thing we need the most. If we let our bodies stress and panic the pain level to wild and we easily get into a tailspin. I'm sure you know that already.

Keep asking, reading and learning. That's what I do and it's the only way I can survive. Everyone is so different so try and find what works for you...just steer clear of quacks and slick sales folks who try to sell you a 'cure'...lol. Ain't been found yet but wow could we use one.

Hugs,
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


SleepyWillow
Regular Member


Date Joined Sep 2008
Total Posts : 33
   Posted 9/23/2008 5:00 AM (GMT -7)   
Thanks ALL of you for helping me to not feel so crazy!! ;) Chutz you are right about the stress level having a direct impact on how I feel..a little argument with my husband last weekend and about 20 minutes later my neck and shoulders and back were on fire! Marlee I didn't know anything about this stuff either..I just thought I'm tired and so I don't feel good. When Mom mentioned to me what she thought, I looked it up then, which was about two weeks prior to my regular check up with my Doc. Did all of you have to be reffered to a Rheumatologist for diagnosis? I just wondering if it's something my GP will be able to diagnose since he's trying to rule out all sorts of other things first. I have an appointment with him on Thursday to discuss my quitting smoking and hopefully he will have some test results as well!

GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 9/23/2008 7:05 AM (GMT -7)   
Hi Sleepy and Welcome-
I was just diagnosed this last spring and my regular MD referred me to a rheumy for the diagnosis. I was not impressed with him and am choosing to just see my regular Dr. for any follow-ups for the fibro.

I too was tired ALL the time before the fibro hit me with a vengeance. I would be at work and after 3:00 I was "exhausted." Could not figure out what was wrong with me.
Many funky symptoms later, pain off the charts, an MRI and tons of blood work that came back normal they were able to make a diagnosis.
Hopefully you can find out more on Thursday- let us know how it went. GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


M&M lover
Regular Member


Date Joined Sep 2008
Total Posts : 21
   Posted 9/23/2008 8:10 AM (GMT -7)   
Welcome!!
 
I found this site not too long ago either.  I'm a 40 yr old mother/wife of 2 and work full time in an office environment as well.
 
As you said the more you read on this site you will find yourself saying over and over again "Wow, that is how I feel" or "that happens to me too".  I'm amazed at all the things that others have and I had no clue it was related to FM.
 
I'm in what they call a flare up this time of the year until February/March so I'm hurting.  I'm on the go all the time with my girls sports, President of the PTO, etc.  The key is to just try to pace yourself (much easier said than done). 
 
Best wishes and glad you found us!!

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/23/2008 8:22 AM (GMT -7)   
A, my GP dxd me and then sent me to rheumy to confirm. My GP has been treating me but I am going to be going to a new rheumy soon to get a fresh opinion on things.
 
Kelly just quit smoking using chantix. I'm going to try other ways before I resort to another med in my body.
 
Sherrine is jealous cause I had a boyfriend when I was a teen that had a car that you could crank if it didn't start with the starter. devil
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 9/23/2008 8:48 AM (GMT -7)   
OK Marlee and Sherrine! Jeannie says you must go to neutral corners and wait for the bell to ring before you come out swinging! Honestly, if you two don't behave yourselves I'm gonna get out my magic lamp and turn you both into frogs or magpies or something! (Jeannie walks off into the fog grumbling about the silly mods on this forum...)
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


SleepyWillow
Regular Member


Date Joined Sep 2008
Total Posts : 33
   Posted 9/23/2008 10:31 AM (GMT -7)   
LOL~~ Ok so NOT feelin good at all today *yikes* however good laugh from the thread so thank you!! It's awful to be at work and wish the hours away so I can go home and be warm and comfy. I swear I'm going to freeze to death here brrrr

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/23/2008 11:34 AM (GMT -7)   
Sherrine, I thought Jeannie made crowns with her magic lamp???  It wouldn't matter what you turned us into Jeannie we would still find a way to aggravate each other. yeah
 
I'm sorry your not feeling well today A. Maybe a hot bath when you get home will help.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 9/23/2008 12:46 PM (GMT -7)   
Marlee, maybe Jeannie will turn us into some of her beautiful cakes and we can have a food fight!  yeah
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/23/2008 5:35 PM (GMT -7)   
Yeah, she could do doll cakes with us as the dolls in the middle. devil   I want to look like a southern belle Jeannie with hat and gloves please. Think she would get upset after all that hard work when we started throwing our clothes at each other???
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 9/23/2008 5:44 PM (GMT -7)   
Yeah, Jeannie!  Marlee would make a perfect Southern belle.  She's already a ding dong!  devil
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/24/2008 12:53 PM (GMT -7)   
You almost snuck that one by me ding-a-ling. devil ((((SPLAT)))) Does Jeannie make great frosting???
 
luv and hugs
Marlee smilewinkgrin
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 9/25/2008 2:58 AM (GMT -7)   
Hi and welcome. I don't like why you're here, but I'm glad that you found people that will support you. I am relatively new here too and was glad that I got the support an encouragement that I did when I arrived. I lurked the board for a couple of weeks before I ever registered and started posting here. After reading posts for a while I was happy with the way that people treated each other here and it seemed like a real family (sibling rivalries and all)

I would be one of those people that are on narcotics for the pain. But with them I have been able to having a full life again. I have the fatigue as well, but I can't really remember a time that I wasn't fatigued. So that was nothing new. The older that I got the more I hurt. After a major injury (falling down a set of stairs while helping to carry a big chest freezer) I started to really hurt to the point where I didn't want to move, and it just never went away. Two years later I finally got a diagnosis, and with knowing what's wrong, it's made it a lot easier to cope with. Knowing what I'm fighting makes it easier to fight it. My GP doc is the one that actually gave me the diagnosis. But also sent me to a rheumy just to confer and confirm.

I'm still relatively young (37) and I consider myself lucky that I am able to still work full time. I love my job and the people that I work with. Because of my work environment, I can get up and stretch and walk any time that I need or want to. That all by itself has been the saving grace for me.

So welcome... and hopefully a diagnosis and information will be great tools for you like they have been for me.
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