For those of you who have been around for the past year here's the latest on my MC and her ISCI (Incomplete spinal cord injury) from the birth of little Erin. Wednesday she had her 4th cortisone injection into her spine. Big OUCHIE! She does them without anesthetic because she has a terrible reaction to anesthesia and spends hours crying afterwards. I go to her home when she has the injections (she lives about
an hour away) because she isn't supposed to lift anything for 24 hrs. after the injection and I do childcare on my grandaughter and the little 9 month old guy she babysits. Thursday she regained feeling in parts of her body that she hasn't felt in over 16 months!
Her walking is improving tremendously, even without the walker, and Friday morning she picked up Erin and walked across the room to the door to greet her husband coming home from work. The cool thing was she did it without holding on to the walls and WITHOUT REALIZING SHE WAS DOING IT! Took my breath away...
She is surpassing her Physical Therapist's goals by leaps and bounds and now is working on refining her gait. She doesn't look so much like Frankenstein when she walks now.
She is still falling, which she interprets as still progressing. Her activity levels have increased and with that has come increased fibro pain from the increased feeling but for her it really is No Pain/No Gain. Both the wheelchair and the walker stay in the truck for when they go to the store or doctor's office because she doesn't use them in the house at all any more. She can do laundry, change diapers, cook dinner, wash dishes, shower alone... just about
anything she puts her mind to, she can do. Can't carry laundry up or down stairs, can't bend to make the bed... some things may never come back but right now things look a million times better than they did last year. Doc says that this injury is something like one in 2.7 million births, almost unheard of, and he knows of only one other case in Canada right now in his discussions with his peers.
After reviewing her MRI of her spine five days after Erin's birth, (they gave her a cd of her x-rays and MRI! Cool!) both the spinal surgeon and the physiatrist do not know how she has healed and progressed this far. She told them, "Well, DUH! I have about
1000 people praying for me every day!" The surgeon admitted he thought she would be wheelchair bound for life and just didn't tell her. So we are doing the happy dance here
and I fully give you permission to dance as well! Thanks again, buddies!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa "People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in
, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross