Daughter update / Thank again you for your prayers!

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Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 9/23/2008 1:51 PM (GMT -6)   
For those of you who have been around for the past year here's the latest on my MC and her ISCI (Incomplete spinal cord injury) from the birth of little Erin. Wednesday she had her 4th cortisone injection into her spine. Big OUCHIE! She does them without anesthetic because she has a terrible reaction to anesthesia and spends hours crying afterwards. I go to her home when she has the injections (she lives about an hour away) because she isn't supposed to lift anything for 24 hrs. after the injection and I do childcare on my grandaughter and the little 9 month old guy she babysits. Thursday she regained feeling in parts of her body that she hasn't felt in over 16 months!

Her walking is improving tremendously, even without the walker, and Friday morning she picked up Erin and walked across the room to the door to greet her husband coming home from work. The cool thing was she did it without holding on to the walls and WITHOUT REALIZING SHE WAS DOING IT! Took my breath away...

She is surpassing her Physical Therapist's goals by leaps and bounds and now is working on refining her gait. She doesn't look so much like Frankenstein when she walks now. turn She is still falling, which she interprets as still progressing. Her activity levels have increased and with that has come increased fibro pain from the increased feeling but for her it really is No Pain/No Gain. Both the wheelchair and the walker stay in the truck for when they go to the store or doctor's office because she doesn't use them in the house at all any more. She can do laundry, change diapers, cook dinner, wash dishes, shower alone... just about anything she puts her mind to, she can do. Can't carry laundry up or down stairs, can't bend to make the bed... some things may never come back but right now things look a million times better than they did last year. Doc says that this injury is something like one in 2.7 million births, almost unheard of, and he knows of only one other case in Canada right now in his discussions with his peers.

After reviewing her MRI of her spine five days after Erin's birth, (they gave her a cd of her x-rays and MRI! Cool!) both the spinal surgeon and the physiatrist do not know how she has healed and progressed this far. She told them, "Well, DUH! I have about 1000 people praying for me every day!" The surgeon admitted he thought she would be wheelchair bound for life and just didn't tell her. So we are doing the happy dance here yeah and I fully give you permission to dance as well! Thanks again, buddies!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

Forum Moderator

Date Joined Apr 2005
Total Posts : 17056
   Posted 9/23/2008 2:40 PM (GMT -6)   
Jeannie, I have goosebumps from head to toe reading this!  This shows what hope and perserverence does.  I'm so happy for you and your family.  God is so good.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Aug 2006
Total Posts : 9607
   Posted 9/23/2008 4:16 PM (GMT -6)   
Oh wow Jeannie, so glad she's doing so good...lots of yeah yeah yeah
really nice to hear good news....
lots of soft hugz....

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 9/23/2008 4:52 PM (GMT -6)   
Hey!  That is really good news.  Thanks for letting us know! smhair

Regular Member

Date Joined Jul 2008
Total Posts : 408
   Posted 9/23/2008 5:33 PM (GMT -6)   
Wonderful! yeah yeah yeah
I never pass up a chance to do the happy dance.
Your daughters strength is an inspiration for all of us!
yeah   yeah yeah   Still dancing, I love the happy dance!

Veteran Member

Date Joined Jun 2008
Total Posts : 844
   Posted 9/23/2008 5:53 PM (GMT -6)   
Jeannie, that's wonderful news.  I didn't know anything about your daughter but she must be strong like her mom. 
God is good and prayers goes out to you and your family.
God Bless!
Of all the things that I have lost, I miss my mind the most!!!!

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 9/23/2008 7:07 PM (GMT -6)   
Jeannie that is such great news. And I bet you thought it was great when she started walking the first time. Did you get a video of her walking to the door with the baby???
I'm sure MC will be an inspiration to many from having gone through this experience.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
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Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 9/24/2008 2:19 AM (GMT -6)   
Oh wonderful, I am so happy for your family. Now, will you get some rest?


Veteran Member

Date Joined Jan 2007
Total Posts : 1042
   Posted 9/24/2008 8:26 AM (GMT -6)   
What a wonderful outcome so far!!!! I willl keep you and your family in my prayers.  Like your daughter said...lots and lots of prayers going out for her recovery. I cant do the happy dance at the time being...so I will give you a nice warm tender hug (((Jeannine)))
Fibromyagia, R/A, Diabetes, Atrial Fib, depression

folic acid, metformin, diamicron, bisoprolol, fenofibrate, pantoloc, wellbutrin, propafenone, ibprofen, warfarin, methotrexate

Some people dream of angels, I held one in my arms

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 9/24/2008 9:23 AM (GMT -6)   

Happy dance for sure!!!!   yeah yeah

What good news Jeannie!!!! 

Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
Zoloft, Tylenol 4000 mg., Zanaflex

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