Ultra-sensitive to touch...OUCH

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kitkat3
Regular Member


Date Joined Jul 2006
Total Posts : 29
   Posted 9/23/2008 6:08 PM (GMT -6)   
This is going to sound weird but I need some advice. I have fibromyalgia and  connective tissue disease (diagnosed in March 2008) along with hypothyroid, osteoporosis, and anxiety. Tonight I am in severe pain. I have a horrible migraine (took Imitrex) and am super sensitive to any kind of touch anywhere on my body. I have never experienced such pain before. Brushing my hair is so painful. I took a bath hoping to relieve the pain and the water on my body felt like my skin was peeling off. I take Soma, flexeril and Plaquenil. I can barely touch my legs, arms, neck, head you name it. Sitting on the chair is hurting my behind. Is this normal or am I going crazy? I am in so much pain I am actually thinking of going to emergency but am worried they will think I am nuts. How can I be in so much pain all over my body with even soft touch?
 
Can somebody please please help me........I am hurting so bad. What can I do? Is this normal?
 
 
 
Thanks,
Kitkat3

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 9/23/2008 6:58 PM (GMT -6)   
I get that feeling sometimes but I've never had it all over my body. It'll be one butt cheek and leg, or one shoulder and arm, or maybe just my abdomen. The most frequent location is my scalp. It lasts anywhere from hours to weeks. I can't stand it when it happens. I can't imagine feeling that way all over my body. I haven't found anything that helps, just time. So sorry!

Could it be a reaction to the Imitrex, or another med? Reactions can occur even after months or years of use. I know the all-over skin pain can be a bad reaction, so I suggest you call your doctor or pharmacist. If your skin reddens, blisters, or starts to peel go immediately to the ER.

Good Luck.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/23/2008 6:59 PM (GMT -6)   
Hi Kitkat, this is your skin hurting??? I have never experienced this but that doesn't mean someone else hasn't. I get burning pain sometimes but it doesn't sound like that.
 
I'm sorry your hurting so much. Hopefully you will get some responses from people that have experienced this. With fibro you never know and there are some very strange symptoms.
 
Get better.
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


grandma_carol
New Member


Date Joined Oct 2007
Total Posts : 10
   Posted 9/23/2008 8:05 PM (GMT -6)   
Hello KitKat,
I am currently experiencing the same thing. I have had it often in the past 12+ years - in fact, it was one of my first symptoms. Being touched anywhere except my head really hurts. I usually take Flexeril, Hydrocodone and go to sleep for 2-4 hours. I usually wake up feeling much better, but it doesn't last.

Ironically, I just saw my doc today. He's an internist, trained at Johns Hopkins, who is new to me. My original doc here closed his practice 2 months ago. I told him about the all-over pain and he touched/pressed several spots on my arm, back and neck. Then he said that it was NOT FMS, because that pain only occurs in the specific 18 tender points. I was kind of shocked, because I'd never heard this before. It DOES seem that each doc has a different "definition" of FMS though. Anyway, he is starting me on an increased dose of Neurontin. I currently take 300 mg/pm because it can cause sleepiness. My reason for taking it is to help deal with depression and I think it has helped. He is having me take an addition 300 mg in the AM and in two weeks, increase it to another 300 midday. That is 900 mg/day. He said I should notice a difference in a week. In the meantime, I'm seeing my Psychiatric Nurse Practitioner next Monday and I'll see what she thinks. Anyway, I just wanted to let you know you are NOT alone. I'll keep you posted on results. God Bless. grandmacarol

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 9/23/2008 8:10 PM (GMT -6)   
Skin hurting. cool I get that occasionally. All i can do is take some amyltriptilene and go to sleep. The regular pain meds don't come close to helping, it needs to be a neuroleptic: amyltripyilene, lyrica, something that helps the nervous system, cope. Call your doc.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 9/23/2008 11:45 PM (GMT -6)   
Hi Kitkat,

Often people with fibro are sensitive to touch and it can be very painful, but to have it all over and so very painful is not normal. I would either go to the ER or call your doctor..no matter what time of day or night it is. You should not have to suffer like this. It may be fibro but it may be something different that you need to have checked out.

Good luck,
Chutz
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 9/24/2008 2:17 AM (GMT -6)   
HI,

I have days like this. All I can do for it is to try to sleep. I hope it goes away soon for you.

Take care,

Donnaeil

Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 9/24/2008 2:35 AM (GMT -6)   
I agree, sleep is the only thing that seems to break the cycle..  I went to hosp emerg 3 times, before I realized there is nothiing they can do.  It has to be managed by docs and specialists.  I had times the shower was like hail stones, I couldnt do my hair because the pain in my skull, still cant sit for mre than 20 mins or stand for more than 20 mins, initially before I saw specialist the only thing that helped me was sleep pills and muscle relaxants now ive been able to knock some of my meds down.  sue2z cry cry cry
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/24/2008 9:03 AM (GMT -6)   
Kitkat, I hope your better this morning.
 
Grandma Carol, I hope you know your new doc is out of his mind. shocked How does neurontin help with depression???
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/24/2008 12:11 PM (GMT -6)   
Hi, I get this. I am not sure whether it is my skin hurting or the muscle underneath or a combo of both. It's almost like I can't touch myself anywhere because it is too tender and sensitive. I haven't found any solution to this and I have no idea why it happens - I'm so sorry! I, too, have trouble brushing my hair because it is painful. My neurologist says that it is very normal in people with severe migraines. He gave it a name but I cannot remember. I wish I could! I have a feeling this sensitivity to touch may be related to your migraines and not fibro, but maybe these are related too. Wish I could help more.
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Fibromyalgia? Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


kitkat3
Regular Member


Date Joined Jul 2006
Total Posts : 29
   Posted 9/24/2008 12:17 PM (GMT -6)   
HI everyone
 
Thanks for all the support. I woke up feeling much better today. I don't know if the pain was because of the migraine or from the Imitrex I took. I get migraines often and I have taken Imitrex plenty of times and have never gotten a reaction. I am scared to take it the next time I get a migraine. My skin was hurting so bad and my muscles were very sore. It was so intense I couldn't even put my covers over me last night. I slept all night though. Woke up and was so thankful I was no longer in pain that the regular pain I get everday was not even bothering me.
I feel better that others have had a similiar problem too. I thought I was losing my mind!
 
 
 
 
 
Kitkat3

grandma_carol
New Member


Date Joined Oct 2007
Total Posts : 10
   Posted 9/24/2008 5:06 PM (GMT -6)   
Marlee,
after reading your post, I did some online investigating. While Neurontin is not an usual drug for depression, in some cases of "difficult" depressive episodes, it seems to be of some help, although there have been no long term studies on it. It was originally released for treatment of seizures and is of use with pain disorders. It wasn't my new doc who prescribed it for depression - he increased it for my all-over pain symptoms. The Psychiatric Nurse Practitioner that I see is the one who started me on it for depression when several other meds did not help much. I feel like my depression, while not gone, is more stabilized with Neurontin. We shall see what happens with the increase for pain.

gc

meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/24/2008 5:16 PM (GMT -6)   
Hi KitKat, the problem my neurologist diagnosed me with is Allodynia. Sorry I couldn't remember the name earlier! This sounds like exactly what you're describing.
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Fibromyalgia? Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


kitkat3
Regular Member


Date Joined Jul 2006
Total Posts : 29
   Posted 9/24/2008 8:31 PM (GMT -6)   

Thanks meowese

I looked up that Allodynia and it sounded like that was exactly what I had. Good to know. I hope I never feel that way again!!

 

 

 

Thanks again

Kitkat3

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