Rheumatologist appointment update

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/24/2008 1:47 PM (GMT -7)   
Hello everyone,

I posted here a few days ago that I was worried I had FM or CFS because most other things have been ruled out yet I feel like CRAP.

I saw the doctor for about 15 minutes. I told him about my sleeping difficulty, mild to moderate joint pain that comes and goes, extreme tenderness and soreness, fatigue and feeling drained/weak, jaw pain and migraines, brain fog etc. I'm 24 yrs old but I feel like my body has aged far beyond that.

He did a short exam where he VERY LIGHTLY touched me in several places on my body and then turned to me and said that I did not have FM or CFS. I said but I'm tender in all the places you touched me... It hurts! Some days I'm more tender in these spots than others. For example yesterday if you had touched me on my neck or on lower back I would have laughed (what I do when I'm in minor pain). He said that I do not have FM because I would have JUMPED OFF THE TABLE in pain.

I don't want to push this diagnosis but I'm eager to try various treatments that might make me feel better and improve my quality of life. I suggested to him that I get a sleep study and he agreed though he said he was sure it would be unremarkable.

I want to try treatments to see if they make me feel better... Should I still try to pursue seeing a FM specialist? I am hoping that someone can suggest some rather benign treatments that might give me some relief despite a diagnosis. What medicines/treatments should I talk to them about? It can't hurt to TRY right? I'm feeling desperate.

*bit discouraged*
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Fibromyalgia? Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


alicat72
Regular Member


Date Joined Jun 2008
Total Posts : 79
   Posted 9/24/2008 1:51 PM (GMT -7)   
meowese-

i did not jump off the table when i was tested. yeah, it hurt, but i am so used to the pain that i just kinda retract from being touched on my tenderpoints. i do have a place near my spine in the middle of my back if it is touched i shoot across the room.

i would suggest you see another doctor. my primary care doctor also tested me and diagnosed me with fibro. maybe you should see a regular MD or DO?

good luck!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 9/24/2008 1:54 PM (GMT -7)   
If you were taking the medication you have listed in your signature, then his pressure point test wouln't be valid because it was helping your pain.  I take ibuprofen for pain.  If it is working in my system, the pain is less.  When it wears off...look out!  So maybe that's why you didn't jump off the table.  Just a thought...
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/24/2008 1:56 PM (GMT -7)   
That's exactly how I feel... I'm very used to the pain in these places. It's not brain-shattering pain, but I've become accustomed to the discomfort.
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Fibromyalgia? Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/24/2008 1:59 PM (GMT -7)   
Sherrine, I haven't taken any pain medication for almost a week. Did you have 'jump off the table' pain during your test? I'm trying to gauge whether or not he made an accurate assessment. Thanks!
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Fibromyalgia? Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 9/24/2008 2:37 PM (GMT -7)   
Actually, I was diagnosed before they did the tender point tests and fibromyalgia was called fibrositis back then!  My doctor did the tender point test a few months ago and I didn't jump off the table, but I also was taking ibuprofen and Tylenol!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 9/24/2008 4:51 PM (GMT -7)   
Meowese,
If you have a juicer you could start making your own apple juice for the malic acid in it. That's what my daughter does because she also has Crohns and can't tolerate the Malic Acid pills that I take. There is no cure for fibro right now so having a diagnosis isn't going to change your life very much. Better to start coping methods outlined by some of our members and see if that gives you some relief. That, and maybe get your doc to start you on an SSRI like prozac to help your serotonin levels. You don't need that doc anymore, though. I pray he or his wife gets fibro... maybe THEN he will get it! (No! that's mean... I wouldn't wish this on my worst enemy.)
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/24/2008 6:05 PM (GMT -7)   
Thanks Jeannie! I was thinking of buying some Malic Acid pills, but you say that it doesn't go with Crohn's well? How much apple juice does she drink to make it worthwhile? I don't have a juicer unfortunately.

Also reading a bit about how anti-depression pills can help - even though I don't think I'm really depressed. I am nervous about weight gain and stuff like that.
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Fibromyalgia? Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 1:21 PM (GMT -7)
There are a total of 2,734,211 posts in 301,194 threads.
View Active Threads


Who's Online
This forum has 151319 registered members. Please welcome our newest member, Geezer Jock.
360 Guest(s), 16 Registered Member(s) are currently online.  Details
Chask, DBwithUC, JayMot, 3HumpedCamel, Bololidat, Chanymom, KAR90, dismissed, Mpac1, mpost, biker90, Mad Martha, pmm73, ChickenArise, catti, straydog


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer