new here-wanting to say hi

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lilbearsma
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 9/24/2008 4:29 PM (GMT -7)   
Hello, name is Denise. I have both fibromyalgia and lupus. I also am a single mom of a 10 year old girl. Right now I have lots of energy from being on a prednisone dose pack so I thought I stop in and say hi! :-)

kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 9/24/2008 7:01 PM (GMT -7)   
Denise,
 
Welcome to the fibro family.  I hope you feel comfortable enough to ask questions, vent, an join in the occasioanl silliness that we all seem to enjoy (at least I do, anyway). smilewinkgrin   Oh, and part of the standard welcome to a newbie is to tell you to read Fibro 101 at the top of the page.  It really is helpful.
 
I've been in lupus limbo for almost a year and while I have a lot of the classic symptoms of lupus (joint pain & swelling, malar rash, hair loss, pleurisy, etc), my rheumy will not give me a yes or no dx.  My bloodwork is pretty much normal-a few elevated or "high normal" things and 2 different positive ANAs, but I still am left wondering... rolleyes
 
Anyway, welcome to the neighborhood! :-)
FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix to try to quit smoking (started 08/20/08)
 
"I'll take the Chivas instead"
-Kelly Clarkson


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40584
   Posted 9/24/2008 8:19 PM (GMT -7)   
Hi there,

I too would like to welcome you to the fibromyalgia forum. As Kelly said, checkout fibro 101. It is the second thread on the first page.

Everybody here is so kind and compassionate. I am sure that you will love it here. And also as Kelly mentioned, we do like to get silly now and then. We have daily check ins too that is a lot of fun.

Best wishes, and keep posting.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 9/24/2008 9:07 PM (GMT -7)   
Hi Denise and welcome!

I too have been on pred a few times and it does have it's "up" side, but the down side with long term use isn't so good. Anyone who is a single mom and still surviving is amazing in my book. I applaud your efforts.

If you haven't already started to educate yourself on fibro I'd suggest that as a first step. Also a great doc it essential. I'm one of the lucky ones who has a wonderful doctor. He believes in quality of life and helps me to keep going and be as comfortable as possible.

Hugs and keep posting!
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 9/25/2008 1:14 AM (GMT -7)   
Welcome Denise,  the forum has been a big help to me and it gives me something to do to check in each day.  I hope you stay feeling well, it could be hard being on your own but the forum will always answer and be there, welcome.    sue2z :-) :-) :-)
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 9/25/2008 6:20 AM (GMT -7)   
Hi Denise and welcome.  I'm fairly new here myself, and I've found this forum to be a warm, friendly, encouraging place. 
 
I also have a daughter (teenager) who is the light of my life. :-)  
 
I hope you continue to feel well enough to check in here. 
 
Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/25/2008 8:18 AM (GMT -7)   
Hi Denise and welcome. I love your name "lilbearsma". I'm sorry you have both fibro and lupus. This is a great place to learn about fibro.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


lilbearsma
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 9/25/2008 8:20 AM (GMT -7)   
Thank you everyone for the warm welcome. Because of the extra prednisone, I woke up and started cleaning, doing laundry, making lunches, all kinds of stuff. I still feel pretty good. The reason I had to take this extra prednisone is because of very severe joint pain in my elbow. Does fibro also cause joint pain?

Denise

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17098
   Posted 9/25/2008 11:10 AM (GMT -7)   
Hi, lilbearsma, and welcome!  I see that you have gotten a lot of helpful suggestions about learning about fibromyalgia.  We have to be our own advocates so read and learn all you can.
 
I've had to take Prednisone many times in my life.  The first time I took it, I actually landscaped the front of my house because I felt so good.  But, within two weeks, I was flat on my back so sick so I hope this is definitely a short term thing for you.
 
Sometimes it feels like your joints are hurting but it actually is your muscles, tendons, and ligaments.  That's what fibro does.  It doesn't damage joints like arthritis does.  So, if it definitely is your elbow joint then it isn't fibro causing this.
 
I have a toe that hurts and is swollen.  That probably isn't fibro because you usually don't get swelling with it...you just FEEL like something is swollen.  I hope I've explained this so you know what I mean.
 
Meanwhile, read all you can...including back posts.  There is a world of info in them, too.  Also, ask questions.  That's what we are here for.  I'm so glad you joined and I hope to hear more from you soon.!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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