What does Fibro fog feel like to you?

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telula68
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Date Joined Sep 2008
Total Posts : 56
   Posted 9/26/2008 7:04 PM (GMT -6)   
Just wondering how people would describe this since I tell people its like having a wet blanket over my brain. Its the only way I've ever been able to describe it.

Jeannie143
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Date Joined Apr 2004
Total Posts : 6047
   Posted 9/26/2008 8:46 PM (GMT -6)   
I always feel like I'm not quite up to speed and everyone else knows what is going on... Just about a pickle short of a barrel, a brick short of a load, not the sharpest tool in the box... L-O-S-T I-N S-P-A-A-A-C-C-C-E!!!!

"Ground control to Major Tom....."
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


mamakitty
Regular Member


Date Joined Jul 2008
Total Posts : 56
   Posted 9/26/2008 8:55 PM (GMT -6)   
Hello Telula,
 
I guess I never really thought about how i would describe it but it does make me feel that i am not quite with it or i know what i want to say and something different comes out. My mind is going faster than the rest of me, i have made so many mistakes at work  and luckly i could fix them but one day it could catch up.
 
Somedays i also feels like my mind can not keep up with my body, it is like i need to stop and let it catch up.lol, sound dumb righ but, so hard to find the word to explaine it. confused
 
 mamakitty
 
Fibromyalgia,Osteoarthritis,Chronic Fatigue Syndrome,Psoriasis,,Low Thyroid.Migraines.
 
 
Levothyroxine,Sertraline,Estradiol, Nabumetone, Lisinopril, Methotrexate, Amitriptyline Trazodone, Requip, Imitrex, Topamax.
 
 
 


tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 9/26/2008 9:06 PM (GMT -6)   
Confusion....  very tired not able to focus or consentrate.....  brain out to lunch with out the rest of the body. For me I have a hard time talking and it feels like my brain shuts down. When this happens to me I do not go out..I get very scared to be out by myself....
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 9/26/2008 11:06 PM (GMT -6)   
When people talk to me I nod my head and sometimes answer with minimal words,  then its gone. You could ask the same thing 5 mins later and I wouldnt remember.   sue2z

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


telula68
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted 9/27/2008 6:46 AM (GMT -6)   
That's about what it feels like for me too. sometimes I feel like my mouth is just hanging open like I'm catchin flies! DUHHHHHH Yuck I hate it and the worst part is...it doesn't go away...but it gets worse on occasion. What the heck causes it? I know that's a dumb question.

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6047
   Posted 9/27/2008 8:07 AM (GMT -6)   
If they knew what caused it they could treat it... (sigh!) Some of the problems we have stem from inadequate energy production in the cells. Inside our cells are little energy factories called mitochoncria where glucose and oxygen is turned into ATP and energy in a process called the Krebs cycle. At the end of this cycle the body needs malic acid to finish the job. For some unknown reason Fibros are deficient in malic acid. Normals take it from the fruits they eat and have lots of extra. Fibros have a glitch in the process. Since the brain runs on pure glucose this deficiency may affect brain activity. I'm only conjecturing here from my own experience... no science to back it up.

This is why many of us take extra malic acid to help compensate for the missing amounts that we need. It works for some of us but not for others... That's another mystery to add to the overall picture.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


groaner
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted 9/27/2008 8:14 AM (GMT -6)   
It feels like my brain is made of *mush*.......
Can't find the proper words to say when talking.......
Humming in my head ....
Total confusion .....
Like a two year old .... !!!!!!
It is really difficult when this happens but luckily my family
is so used to me that they fill in the words when I can't
find them to say.
Peggy
Lupus, Parkinson's Fibromyalgia, Diabetes, DJD,
Degenerative disc disease, Osteoarthritis, Osteoporosis,
Migraines.


leemadd
Veteran Member


Date Joined Sep 2008
Total Posts : 532
   Posted 9/27/2008 8:28 AM (GMT -6)   
I jsut started with the brain fog. I feel like I am watching in a window speechless every thing is going on around me and Im not there even though I am. I will want to say a word and a different one comes out . Some times I am lost for words in mid conversation I know what I want to say it just doesnt come out.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/27/2008 8:29 AM (GMT -6)   
Telula, I use to be obsessively focused on what I was doing and couldn't stop til a project was done. Now if I walk away for 30 seconds I forget what I was doing and start doing something else. I mean talking about someone doing a 180. It use to scare me til I found this forum and everyone was just as scattered brained as I am. To me it's like having AD. I'm one of those that can't take the malic acid and my stomach can't digest apple peels.
 
I had a thought the other day, yeah I really did. If I made my own applesauce using the peels and all if that would give me more malic acid or if it would be lost in cooking them???
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


ErinAnn
Regular Member


Date Joined Jul 2008
Total Posts : 50
   Posted 9/27/2008 3:13 PM (GMT 0)   
I have a hard time remembering if I have already said something or not. I will be thinking it in my head and I know I thought about that already but did I actually say it out loud or did I just think it? I will walk into rooms...or sometimes just get up and i feel like im lost and I cant remember what I was going to do. If I am doing something and I get interrupted with the phone or having to use the bathroom..by the time I am ready to go back to it, I have completely forgotten what I was doing and just move on to something else never knowing that I was in the middle of something already.

I have difficulties often with just basic math equations. Its something that is really embarrassing to me because I know its simple and I should just know the answer...especially because I always got good grades in HS. I never did well on any review tests though and I think this fog has something to do with it. I had a hard time remembering the things we learned before unless they applied to what we were currently doing.

I tend to have difficulty finding the right words or saying what I mean to say but it is usually the worst when I am anxious. I have generalized anxiety along with a lot of social anxiety...people scare me shakehead so this happens to me a lot unfortunately. The only person who doesnt give me anxiety, at least to some degree, is my husband..thank god for him!

I have also had times where I find it difficult to find the right spelling for a word sometimes, even the simple ones. Or when I am writing, my hand will write letters that arent even supposed to be in that particular word.

All this is frustrating but I have learned and am still learning how to just sort of ignore it. I mean I fix my mistakes but try not to dwell on it but thats hard when someone else catches it. Makes me instantly feel the fool. But at least I know now that im not stupid I just have fibrofog and I blame myself less and blame this darn syndrome more :-)
Yours Truly,

Erin Ann


T~
Regular Member


Date Joined Nov 2007
Total Posts : 130
   Posted 9/27/2008 10:39 AM (GMT -6)   

Erin Ann~

You described me to a T.  I feel the same way and have the very same issues.  I haven't been able to accept this about me and the Fibro.  I'm having a hard time at work and trying to explain my mistakes away.  When you said... you'll be writing and some other letter appears... that happens to me.  Or I'll write with extra loops to the point I have to toss the paper start again and miss the point of the note/message.  I work for a Podiatrist (foot dr./part-time) and it's causing concern for me.  I'm even considering confessing that I have Fibro.  I just fear being treated as an idiot or losing my job.  Secretly, I think it would relieve my stress and anxiety if I was fired.

I think Fibro Fog is just awful and I rarely speak clearly or without mistake.  I see co-workers faces looking back at me as if I'm drunk and I see frustration in my family.  They will even comment like... just say it or fill in words for me that frustrates me and makes me either stop talking or slip away from the conversation as soon as possible.

Pain is hard to deal with, but it's a private pain.  The fibro fog is something that embarasses me in public, home and work and I would give anything to find a way to fix it.

Hugs,
Tricia


Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 14644
   Posted 9/27/2008 12:43 PM (GMT -6)   
Marlee, why don't you try to pulverize the peels in your food processor.  You could possible liquify them doing it that way.
 
Brain fog...having to really concentrate and work hard to come up with words or how to do things.  Lately, I have been having trouble pulling up how to balance the checkbook.  If I relax about it, it comes to me through the fog. The information is always there but I can't pull it up.  It feels like you have dementia or Alzheimer's but you really don't.  This has been going on with me for years so I know it's fibro.  shakehead
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6047
   Posted 9/27/2008 12:52 PM (GMT -6)   
Tricia,
I readily admit my disorder to people. If they think less of me for it that's their problem. It's not like I'm doing it on purpose. And any employer who would fire a person with fibro is an idiot, in my opinion. The amount of perseverance it takes us to just get up in the morning and face the day would bowl over an average person. We have more grit and are better at "hanging in there" than most. When faced with pain we keep going. We may be foggy but we keep going! yeah We are SPECIAL!!!

I do admit that now that I'm older I do think more of the "Hereafter" .... I walk into a room and think, "Now what am I here after???" tongue
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/27/2008 1:20 PM (GMT -6)   
I'm going to start experimenting with apples. I may not get as much malic acid as I need but any amount is better than none. I love apples dipped in carmel sauce yummy.
 
Yes Jeannie I think about the "hereafter" many times a day. smilewinkgrin
 
And multi tasking hehehe I couldn't walk and chew gum at the same time anymore.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Lindaloo
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Date Joined Sep 2006
Total Posts : 1710
   Posted 9/27/2008 2:53 PM (GMT -6)   
I wish my family understood fibro fog. They simply contribute my fog to the percocet and the lyrica that I take and to the antidepressants as well. I try to explain to them that fibro, in and of itself, causes the fog and the lack of attention and memory that I experience, but I think it falls on deaf ears. Oh well, at least they are patient with me. I only wish they would read this site and get an understanding of what I am talking about when I say my thinking is blunted and I can't find the words or memories to communicate effectively any more. I also agree with Tink, that when I'm having a particularly bad day, I am afraid to go out, especially to get behind the wheel of a car. I rarely drive anymore. My dear daughter drives me everywhere except to my drs appointments which are only once or twice a month, thank Goodness.

Oh well, thanks for letting me share and God bless you all...............

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 14644
   Posted 9/27/2008 2:53 PM (GMT -6)   
Fibromyalgia is not for sissies!  nono
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


SassyIsMyKitty
Regular Member


Date Joined May 2008
Total Posts : 223
   Posted 9/27/2008 4:23 PM (GMT -6)   
Fibro fog for me is either when I can't think of anything, or I am thinking of way too much. I forget things, even if I am in the middle of the sentence. I'll mean to do things, but I will forget to do them. I feel like my brain just doesn't want to function.

~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
 
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.


ErinAnn
Regular Member


Date Joined Jul 2008
Total Posts : 50
   Posted 9/27/2008 4:54 PM (GMT -6)   
I also worry about driving. I hardly ever drive for fear I will get lost or anxious or just do something stupid. I can never remember how to get to certain places, no matter how many times I have been there. We only have one car and its a standard and my husband has been pushing me for years to learn to drive standard but im just too embarrassed and afraid. Sadly enough I am almost relieved that we have a car that I am unable to drive because it takes the pressure off of me to have to drive places on my own. I hate being such a burden on my family and having to ask for rides when I need to get places. everyone seems to be understanding about it but I dont think they grasp the real reasons behind why I dont drive. I know that my mind is just not always quick enough to keep up with everything that I need to pay attention to, and thats hard to explain to some people.
Yours Truly,

Erin Ann


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/27/2008 6:34 PM (GMT -6)   
Erin Ann, I have done a couple of things driving that could have caused an accident and it did really scare me. So now when I'm driving I do not think about anything else. I write a list and everywhere I have to go and make a mental map of where I'm going before I leave home. I live in a town a little under 20,000.
 
However, last Nov I was going to go to Walmart and was having a bad fog morning and questioned whether I should be driving. I left home but I didn't make it to Walmart. Another woman ran a yield sign and hit me. She was about my age and didn't have fibro.
 
To me driving is the ultimate freedom and I won't give it up til I have to.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 898
   Posted 9/27/2008 6:58 PM (GMT -6)   
about Fibro fog, I tell people I have random holes in my brain. There used to be something there, but now there's not. I also usually laugh. Fortunately I don't have a job to worry about doing things wrong. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 9/27/2008 11:48 PM (GMT -6)   
I feel like my brain is wrapped in a blanket. I also feel like my brain is a filing cabinet but someone mixed up all the files. I need to go through all the drawers to find what I'm looking for. I know it's there, I just don't know where it is.

ErinAnn,
You hit the nail on the head. Sometimes I'm not sure if I actually said something out loud. I don't know what's worse, not saying it at all or saying it 3 or 4 times not realizing I've already said it.

I'm really bad paying the bills and mailing stuff. I get it ready then think I mailed it. Sometimes I did, but sometimes I didn't. This has destroyed my credit. Now I use online bill pay so I can easily check and get email reminders so I hopefully remember. I have a stack inches high of birthday cards all filled out, sealed, and addressed. Some are from 10 years ago. I get them ready and put them in a safe place then find them a year later.

SassyIsMyKitty
Regular Member


Date Joined May 2008
Total Posts : 223
   Posted 9/28/2008 6:26 AM (GMT -6)   

Luckily, one thing I really haven't had a problem with is driving. I mean, I have to be careful of all the other idiots on the road, but I am usually really good at driving. It's one of the only freedoms I have, and I really can't go anywhere all that much because I have to preserve gas and everything. It's hard to do things you would love to do when you are poor. Anyways. sometimes, I zone out while I am driving...I'll be listening to the radio and my thoughts are on something else, and it is like my subconscious takes me where I need to go.

I joke a lot and tell people that I feel like Dory from Finding Nemo. But sometimes, I really do feel that way. She would be in the middle of a conversation, there would be a pause, and then she would be like, "Can I help you?" And that is how I feel most times when I have really bad fibro fog.

Good luck to those of you who have trouble driving because of the fog. Take care. *soft hugs*


~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
 
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.


Southernlady
Veteran Member


Date Joined Jun 2008
Total Posts : 844
   Posted 9/28/2008 7:21 AM (GMT -6)   
The fog was one of the first things I noticed before I was dxd. with Fibro. My mother had three sisters that had Alzheimer's and the dr. told us that Mom was in the first stages of dementia, so I'm scared to death that I will loose my mind.
 
I have the same feelings that the rest of you have about the fog.  This year I work in a FMD room at school and that's the really slow learners so I don't have any trouble, but last year I worked in a second grade room and it so happened the teacher that I worked with was distant kin to me so I didn't feel hardly as bad, but I had trouble working problem solving math.  I had to read it over two or three times before I could help my little one solve it.  I felt so silly, but I couldn't help it.  At the time I didn't know about Fibrofog.  Now I understand more why I had such trouble solving the simple problems.
 
The best way I explain it is a saying my dh has.......I feel like I'm two french fries short of a happy meal.
 
God Bless!
Shannon
Of all the things that I have lost, I miss my mind the most!!!!


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 9/28/2008 7:57 AM (GMT -6)   

Wow, I feel like everyone has insite to my most inner person. You all are describing me shocked . I feel everything you are describing.  I have gotten better on medication :-)   but I still have a lot of fibro fog.  I'm ok at home, my family as excepted my fog.  They leave me notes, remind me where I was going and laugh with me when I say something really silly.  I do get nervous at work when I'm having a bad day, I write everything down and try really hard not to speak up when I'm fogging.  I work with highly educated people who don't have any of these issues so the wrong word coming out of my mouth makes me look like an idiot.  The more I worry about it the worse I get.  The first thing I try to do is calm myself down so it doesn't get worse.  I usually excuse myself and go to the bathroom so I can collect myself. 

As far as driving, I focus on what I'm doing.  If I have to open the window or talk to myself (I repeat where I'm going and why), I do.  I'm not that bad with driving but I do need to remind myself to stay on my toes.

I hate the fog but it's comforting to know that I am not the only one.

Meggie

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