New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 9/26/2008 6:34 PM (GMT -7)   
First of all, sorry if I haven't been around. I've been busy in the garden and fighting with our pool to put it away for the winter.  We emptied it, then on dh's day off, it rained, so we coulnd't get it to dry.  This week it has been gorgeous, but dh has had to work overtime.  So I had to flip it myself to get it to finish emtying (it's an 18' quick set, btw), then pull and tug to get to all the corners and wash it down.  It had sat almost empty but wet for some time, so you can imagine the state it was in.  So I thought I would be in a major flare afterwards.  Not so.  It took a few days for the pain to set in... that deep ache in my legs and arms, along with the numbness and tingling.  Is it normal to take a few days to feel after over doing it?   I'm also getting more numbness, in my face again; even my tongue went numb the other day.  Then today after hiking with the kids, my left foot went completely numb, like it had back in May.  I couldn't feel the ground at all when I stepped.  This was after being out 1 1/2 hours, anyone feel this before?  All this worries me, the old ms demons are starting to haunt me again, after I thought I had put them to rest sad    My next appointment is in 3 weeks, although I don't expect much from him other than the wait and see attitude that he's had all summer so far.  sigh, I hate this game.
 
in the land of Limbo, taking OTC meds (which don't work).  Started at 5mg of amitriptyline.
Waiting for referral to rheumy to get a dx. waiting, waiting, waiting....


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 9/26/2008 6:59 PM (GMT -7)   
And I forgot to say...

OMG, this is so embarrassing... TMI comimg up. OK, fibro and IBS are linked. But with IBS, can you lose control? Early this spring, as I was falling asleep, it felt like I was about to soil myslef, and it jolted me awake. False alarm, nothign happened. Another time this summer, I did soil myslef at night, but that time I had a nasty stomach bug, so I chalked it up to that. Then yesterday, I felt like I had gas, I guessed wrong :( I can't believe I'm writign this... but I need to know if this has ever happened to anyone else? Should I bring it up to my doctor? Likely IBS, or no? Maybe the malic acid I'm taking? But I've had no side effects for almost 2 weeks now.
in the land of Limbo, taking OTC meds (which don't work).  Started at 5mg of amitriptyline.
Waiting for referral to rheumy to get a dx. waiting, waiting, waiting....


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 9/26/2008 7:03 PM (GMT -7)   
Sometimes it takes 3 days for me to feel sore after I've overdone it. Other times, I stand up and that's too much. I just never know how I'll feel.

Your numbness worries me, that doesn't sound like typical fibro tingling. I know fibro is different for all of us but that sounds like more than fibro.

Good Luck.

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 9/26/2008 7:38 PM (GMT -7)   
Mamanan,
There was a nasty stomach virus running around here (in Michigan) a few weeks ago, and it may have hit your area as well. I was in bed feeling nasty and thought I had gas... I was wrong. Same thing that happened to you. Daughter and babies all had it, grandkids who are potty trained having accidents, so it might just be that. Lay off the malic acid for a few days until the tummy stuff settles down then start it back up one pill a day and then more till you get up to speed.

Hope you're feeling better soon. Almost forgot. Bananas really help with the D, and if you put peanut butter on them it helps me even more. Just a thought.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 9/26/2008 10:10 PM (GMT -7)   
Game is the word,  I feel like a rape victim trying to prove it was, every doc visit and spec.  Tired of it, wish theyd just accept its not going away.  sue2z

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/27/2008 7:10 AM (GMT -7)   
That's a strange analogy Suez but I understand your point.
 
The numbness is concerning mamanan. I have weird feelings in my feet, almost like half numbness but not quite all the way.
 
I had a foot of colon removed many years ago and it was close to the rectum so I thought that was why I don't have the control I should over my bowels but maybe not. I have IBS and when I have to go I have to go and there have been times when just going the maybe 20 feet from family room to bathroom I have soiled myself a little. It's like I have no muscle to tighten to hold it. Okay, I have also had to have surgery for reflux cause the muscle was totally shot. Is there a connection between these muscles and fibro, I don't know.
 
I know living with the IBS and never knowing how my bowels are going to react after eating has put a damper on going out to eat and enjoying things that most people take for granted. When we go to someone's house to eat I have to know how many bathrooms they have. When we travel I don't eat til we stop for the night. It gets to me sometimes like the rest of this DD does.
 
Yes, it takes me a few days sometimes to feel the soreness from over doing.
 
Good luck with finding the cause of the numbness.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 9/27/2008 7:25 AM (GMT -7)   
Marlee,
That must be a real hassle! My daughter had that problem with her crohns when she was young so she just wore ultra thins for the little accidents. We travel about 200 miles from our home to our special vacation spot and she used to know where every rest stop, gas station and fast food place with a bathroom was for the entire length of the trip!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 9/27/2008 8:02 AM (GMT -7)   

Mamanan-

Yes, same for me.  sad   A foot or both feet will tingle and go completely numb on me if I am on my feet walking or standing for 45 min. or more. I don't think they are going to find anything wrong with you, but mention this to your Dr. because I'm just going by my own personal experience.  I also had my face go numb and my tongue go numb when the fibro first hit. My MRI came back normal.

The numbness in my face and tongue lasted at least a month if I remember right. The symptoms are scary but I have learned that if my feet start to go numb to get off of them, sitting or relaxing. When you were hiking you were on your feet for an hour and a half. You may have to cut down on the amount of time or along the way, you will have to take breaks and get off your feet.

Let me know how it's going. GamJill

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 9/27/2008 9:55 AM (GMT -7)   
Once again, thank you so much for your replies and making me feel 'normal' ! (((HUGS)))

Marlee, that must be a real hassle to have to plan so much with your tummy troubles. I'm no where near that, just every once in a while, I do have to go urgently, especially in the am. That's why that accident was so strange, and it frightened me that I could lose control of those muscles liek that. Somethign else I have to get used to I guess. Marlee adn Jeannie, thank you for your honesty and candor with this 'delicate' subject.

As for the numbness, well, I still don't know what to make of it. I don't think it's b/c I was on my feet for too long. I work as a waitress adn I run aroudn for 6-9 hours a shift. I get the half numbness whenever I stand in my kitchen, maybe it happens when I'm at work too and I just don't notice. My shoes are nicely padded and of course the floor is level. Yesterday hiking, I could feel the pebbles and irregularities of the ground with my right, but not the left. When my foot went numb in May, it was certainly frightening. It took a few days for me to get feelign back in it, but it hasn't been the same since. I've always been ticklish, but I can scratch the sole of that foot without batting an eye now. I'll still mention it to my doc, but I'm not as worried now. GamJill, thank you for your reply, you really put my mind at ease that this happens to you too, especially the tongue. Maybe this is our 'normal'!
in the land of Limbo, taking OTC meds (which don't work).  Started at 5mg of amitriptyline.
Waiting for referral to rheumy to get a dx. waiting, waiting, waiting....


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17096
   Posted 9/27/2008 11:35 AM (GMT -7)   
Mamanan, I know I had that problem with Crohn's.  I didn't dare bend over to pick something up on the floor!  So, the IBS could be playing a part in it.  But, if these intestinal "bugs" are going around, that could be it, too.  By the way, rice helps with diarrhea, too.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 9/28/2008 9:13 AM (GMT -7)   
Mamanan-
Yes, I believe that this is "our" normal. Talk about funky symptoms with this fibro- jeesh!
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 9/28/2008 11:37 PM (GMT -7)   

yep, ibs has done that to me too.  thank God it has not happened in a long time.

Sue

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 9:55 AM (GMT -7)
There are a total of 2,733,002 posts in 301,075 threads.
View Active Threads


Who's Online
This forum has 151228 registered members. Please welcome our newest member, Acro1010.
330 Guest(s), 11 Registered Member(s) are currently online.  Details
RDP74, PeterK, NiceGuyEddie, Paxton, iho, NiceCupOfTea, Melg, Fairwind, snowboat, multifacetedme, otheym432


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer