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Veteran Member

Date Joined Sep 2008
Total Posts : 1120
   Posted 9/28/2008 5:51 PM (GMT -6)   
Hello: I am new to this forum today and I have a question for everyone that you may or may not be able to answer. I have in the past been diagnosed with Lyme disease and when I look at the symptoms list here, they are almost identical. The Lyme is still is question, so I was looking here for answers. Is there a definitive test done to diagnose FM as I see many of you have other diseases/conditions as well. I supposed it is possible I have FM with the Lyme. Can anyone help with this confusion?? Thanks in advance-  D

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 9/28/2008 5:58 PM (GMT -6)   
Hey there, welcome. Isn't there a definitive test for Lyme? Fibro is ofter diagnosed when every other possibility is ruled out. I would refer you to earlier thred: Fibro 101. It talks about how fibro is diagnosed and what the symptoms are. Good luck.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40386
   Posted 9/28/2008 6:20 PM (GMT -6)   
Hi Dowa,

And welcome to the fibro forum. Tyno is right, you do have to have other things ruled out to dx fibro, but there is a tenderpoint test that they can do by checking various areas on your body to see if there is pain. And when they hit one you will definately know it. Also there is a test of drawing substance P from your spine, but it is very seldom done. All I can think of is it might be dangerous.

But as Tyno mentioned, if you haven't already, check out the fibro 101 thread and see if anything is familiar. There is always a chance that you can have both.

Best wishe for a lovely day,
hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Sep 2008
Total Posts : 1120
   Posted 9/28/2008 6:43 PM (GMT -6)   
Thanks to you both. I see that Lyme is mentioned there quite a few times. And, no there is not a reliable test for Lyme, again it is done by symptoms. The Western Blot test is used and has MANY false positives and false negatives so it is very difficult to be sure. I have all the FM symptoms, even the trouble breathing that has just been posted. I wanted to be sure before I started antibiotic iv. I will "stick around" for awhile here and learn.(:  Thanks D

Regular Member

Date Joined Aug 2008
Total Posts : 326
   Posted 9/29/2008 1:16 AM (GMT -6)   
Dowa...First welcome. I am not happy that you're having the problems that you are, but you are more than welcome to be here. I'm glad that you found us, whether it's here or the Lyme section. Yes, it's almost impossible to get a clear diagnosis on Lyme as you already know. And yes, there is the tender point test for FM. But FM is usually something that's diagnosed by elimination of other things. The hard part is that because so many of the symptoms mimic each other it's very hard to tell.

I'd like to give you a simple yes or no answer but the only thing that you really can do is try to eliminate the Lyme possibility, have a tender point test done, and keep up with a good doc that's educated in both. I wish you the best on trying to get this figured out and feel free to ask away on anything that you think of, or want to know more on.

I am a recent addition to this site and have found that people here (on all threads, really) have been great. If there's something that I've needed answers for or wanted to know more about they've been happy to help. And, even when it was just that I wanted a pat on the head and to be told that it was going to be okay, I got that too. Hopefully you'll find the same happiness here.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17055
   Posted 9/29/2008 10:40 AM (GMT -6)   
Hi, Dowa, and welcome to the fibromyalgia forum!  Many have been diagnosed with fibro and it turned out they had Lyme AND many have been diagnosed with Lyme and it turned out they had fibro AND many have both.  Fibromyalgia, Lyme, MS, etc. have similar symptoms.  On the Fibro 101 thread there is a link to What Else Could It Be and you will see the confusion. 
I know about the false positive/negative blood work with Lyme.  I also know there is a lab, I think it's called Igenx, and it's out in California and they are the most accurate lab to diagnose or rule out Lyme.  If you've been on our Lyme forum, I'm sure you've read about that.  I think I'd try that.  Also, if there is a Lyme Literate doctor close by, I'd check with them, too.  You can get much sicker if you have Lyme.  So, you really want to get that ruled out.  If you have Lyme and especially if you see a Lyme Literate doctor, they can help you a lot.  Let us know what you do!
Meanwhile, ask questions.  We really care about you here and want to help you as much as possible.  I'm so glad  you joined in and I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Sep 2008
Total Posts : 1120
   Posted 9/29/2008 10:10 PM (GMT -6)   
Thank you Sherrine. Igenex is the lab where it was sent and the result was indetermined, whatever than means. (: 
Questionably positive is how my doctor put it, that is why the confusion as to what to do. I see how so many of these diseases/conditions are so similar in symptoms. I am not surprised that it is hard to make a definitive diagnosis. Thanks for the kind words.  D

Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 9/29/2008 10:25 PM (GMT -6)   
Dowa, I jsut wanted to welcome you to Healing Well and wish you luck with your dx. I think the hardest part of these syndromes is the not knowing. Let us know how you do!
in the land of Limbo, taking OTC meds (which don't work).  Started at 5mg of amitriptyline.
Waiting for referral to rheumy to get a dx. waiting, waiting, waiting....

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