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carolynvb
Veteran Member


Date Joined Oct 2006
Total Posts : 540
   Posted 9/29/2008 7:46 AM (GMT -7)   
Hi!  Am happy to report I feel the lyrica is helpful.  I just hung in there through the rough time and halved the dose the Dr told me and only took it at night.  I feel as though the pain is easing to some degree thank goodness and I have been been able to almost back off all pain meds.....some days have to take some but have gone from heavy duty 4-5 day to some days none some days 1-2
 
I am increasing the dose gradually and now am going from the 100mg I started with the 50 worked my way up to the 75mg tabs....scary!  It is so good to find some form of relief.
 
Thank you guys for all your support and help.  It meant a lotxxxxxxx

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 9/29/2008 8:07 AM (GMT -7)   
I'm glad you are feeling better, Carolyn!  It definitely is a search that we have to go through to see what works for each of us.  I wish there was one product that helped everyone with fibro, but there isn't.  So, we have to keep trying things to find what helps us.  I'm so glad your search led you to Lyrica and it is helping you.  Have a great day!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


papasgirl
Regular Member


Date Joined Apr 2007
Total Posts : 44
   Posted 9/30/2008 6:29 PM (GMT -7)   
hi there
 
 I just started on lyrica and i read your post about getting thru the bad times with yours. May i ask what your bad times was? Ive had a constant headache since i started taking it and i cant tell if it is that or i also seem to have a little bit of a cold and our weather has been all strange lately so i am hoping it goes away. Was one of your symptoms headaches ? I also just kind of feel blah cant really explain it and i dont think i have been on it long enough to know if it is going to help with the pain or not and id like to be able to give it the chance. If u have any ideas for me that would be great thanks alot and bye for now.                                 papasgirl
fibro,arthritis,many spinal problems,herniated disk,bone spurs,muscle spasms,chronic neck and low back pain,chronic fatigue,anxiety,panic attacks,depression,ect hahaha i think thats enough now lol
 
3rd degree burn all over back and sides skin graphed also surgery in jan 07 for perforated diverticulitis and a surgery in april 07 to do an ostomy reversal 
 
meds: percocet,ativan,lodine,protonix,cymbalta and benadryl


MEG25801
Regular Member


Date Joined Jun 2008
Total Posts : 204
   Posted 9/30/2008 6:49 PM (GMT -7)   
I took my 2nd Lyrica today and so far no side effects and I'm in love with it.  It took away all the burning pain I had.  I slept like a baby last night and felt the best today than I have in 2 years. turn yeah
Diagnosed with Panic Disorder(16 yrs ago)-GERD(12 years ago)-GAD(16 yrs ago)-IBS(12 years ago)-DDD(6 years ago)-Arthritis(since teenager)-Controled HBP(2 years ago)-Diagnosed with fibromyalgia 9-29-08.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol~Lyrica


papasgirl
Regular Member


Date Joined Apr 2007
Total Posts : 44
   Posted 9/30/2008 7:07 PM (GMT -7)   
hi there
 that is great that it is working so well for you i hope it continues to go well for you it is good to hear that it is woring for some people also. have a good night bye
                                                papasgirl
fibro,arthritis,many spinal problems,herniated disk,bone spurs,muscle spasms,chronic neck and low back pain,chronic fatigue,anxiety,panic attacks,depression,ect hahaha i think thats enough now lol
 
3rd degree burn all over back and sides skin graphed also surgery in jan 07 for perforated diverticulitis and a surgery in april 07 to do an ostomy reversal 
 
meds: percocet,ativan,lodine,protonix,cymbalta and benadryl


Carnissa
Regular Member


Date Joined Jun 2008
Total Posts : 289
   Posted 9/30/2008 9:17 PM (GMT -7)   
i am in canada and lyrica is not approved here.. mad   hoping to get something similiar to help so i can get off effexor. i am up to 300mg a day. which is not helping
 
i am glad to be hearing such good things from people about it and hope that it will come to canada soon

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 9/30/2008 9:38 PM (GMT -7)   
I'm so glad to here that Lyrica is working for you. I take 200 mgs 2x's a day and if I don't take it I feel like I'm about 75. Good luck!!!
 
 
Monica
 
Fibromyalgia, Anxiety, IBS, Reflux, Insomnia,
Lyrica 200Mg X2/ Zolft 150 Mg/Ambein CR/Zantag (presc strength)
Taking it one day at a time.... 


QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 10/1/2008 12:22 AM (GMT -7)   
I am taking 600mg a day and would be dead meat without it. I had such horrible burning pain in my legs and back that I would just sit and rock for hours waiting to go to bed
Karen
 
Mom of one gramma to 4 lover to One
 
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain,nerve damage due to botched bladder surgery,torn hip joint,hypoglycymic
 
Norco(double strength vicodin) 80 to 100 mg @ day
Ms Contin(morphine) 45 mg @ day,Lyrica 600mg @ day
 
 
 


ericsmom
Veteran Member


Date Joined Jan 2007
Total Posts : 1042
   Posted 10/1/2008 6:46 AM (GMT -7)   
I am also a big fan of lyrica now.  Been on it 2 weeks, 75 mg a day.  Unfortunately I dont get the sleep I had hoped for...but even with poor sleep, the next day I do NOT feel tired...I have a feeling of well being..despite this horrid flare I have been battling for 2 weeks.  Today..I have had a very good start to my day...got out of bed..and was able to walk with no aid!!!!!!
 
Carnissa, go  to your doctor and ask her/him to fill out "section 8", my doc and I are trying it...its a bit dicey..as the canadian govmt does not recognize Fibro as a disease cry    Once we are on the full dose programme of Lyrica...it will cost approx...$300-$400/month..and that is absurd and so unfair. I also heard that in Canada...(not sure about the US) we can even approach Pfizer if we get refused assistance for this drug.
  
Good luck..and let us know if this will be feasable for you. I will find out what I can too..and post it for all the canadian victims of fibromyalgia.
 
Hugs
Diane
 
 


Fibromyagia, R/A, Diabetes, Atrial Fib, depression

folic acid, metformin, diamicron, bisoprolol, fenofibrate, pantoloc, wellbutrin, propafenone, ibprofen, warfarin, methotrexate


Some people dream of angels, I held one in my arms

Post Edited (ericsmom) : 10/1/2008 7:50:55 AM (GMT-6)


Carnissa
Regular Member


Date Joined Jun 2008
Total Posts : 289
   Posted 10/1/2008 3:15 PM (GMT -7)   
unfortunately it would not be covered under my drug plan and cannot afford 300-400 a month... I know my health should not have a price but ... i am trying to get an apartment and still have loans to payoff.. I hate being 29 and living with my parents.. and i know my boyfriend don't appreciate spending the weekends here.. he is very understand and wonderful but after almost 3 years i know i want to get out
 
but i will check out pfizer and see what is available
 
 

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 10/1/2008 8:27 PM (GMT -7)   
I love Lyrica, the sleep is great. In addition, I have not gained any weight from it.

I hope this honeymoon lasts.

donnaeil
who suffers from a severe case of fibro and chronic fatigue

ericsmom
Veteran Member


Date Joined Jan 2007
Total Posts : 1042
   Posted 10/2/2008 5:32 AM (GMT -7)   

Carnissa,

I sent an email to Health Canada Minister, and hopefully will hear from them soon.  They did send a notice of accepting it, now I wait and hope.  The site I went to..says the Lyrica is also very benificial in treating MS, lets hope they have a solution for us Fibromites who can not afford $400.00 treatments.  I have the same problem as you..I just cant fit in an expense like that, on top of what I already have to dole out.  Keep trying Carnissa, and I will too...

Donnaeil, woo hoo to your honeymoon on Lyrica...I said it was 2 weeks when I started it..but its 3 weeks.  I have not gained anything either.  I hope you continue to improve

 

Hugs,

Diane


Fibromyagia, R/A, Diabetes, Atrial Fib, depression

folic acid, metformin, diamicron, bisoprolol, fenofibrate, pantoloc, wellbutrin, propafenone, ibprofen, warfarin, methotrexate


Some people dream of angels, I held one in my arms


Capa
New Member


Date Joined Sep 2008
Total Posts : 18
   Posted 10/2/2008 5:57 AM (GMT -7)   
I tried Lyrica for 3 days and had to be taken off of it. While I was almost pain-free and slept well while on it I found that it sent me spinning! I am dizzy frequently but the Lyrica made it almost impossible to walk without assistance aids and I did end up passing out on day 3. My Doctor had me stop the meds immediately.

After doing a bit more research about the side effects online (after the fact) my husband was upset that the Doctor had me try it. As I said, it DID help alleviate many Fibromyalgia symptoms but the side effects were not worth it for me.

carolynvb
Veteran Member


Date Joined Oct 2006
Total Posts : 540
   Posted 10/2/2008 6:12 AM (GMT -7)   
I had the same issue and was unsure what to do. I just decided to half the inital dose of 100 mg to 50 at night and then worked my way up taking the 100 after a few days when my hubby was home. Now I am up to 75 2 X and doing OK:) Ultram ER seems to work to but has to be taken at night or I will fall asleep standing!
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