Fibro and immune deficiency

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 9/30/2008 3:10 PM (GMT -7)   
Hi Everyone: I have seen ads for clinics that treat fibromyalgia and immune dysfuntion. I have immune deficiency that shows up in my lab work, all my IgGs are out of range.(low) Does anyone here have that with their FM? Six months of injections only slightly helped. Thanks- D

jev
Regular Member


Date Joined Jun 2008
Total Posts : 168
   Posted 9/30/2008 3:36 PM (GMT -7)   
Hi Dowa! Yes, I have all of that fun stuff of immune problems and positive ANA as well as cebv and cfs. I had about 3 months worth of glutathion/atp injections that seemed to make a world of difference.....I felt like a new person pretty much during that whole time. The rheumy took me off of the injections on my last visit. However, I'm still taking atp pills but since the injections ended, I've slid almost all the way back to what I felt like before starting them. The cebv seems more and more likely to be the main trigger for my fibro and cfs as the numbers related to active Epstein-Barr have remained high for many months and only slightly improved during the injection period. But, even with only slight improvement, I felt sooooooo much better than I do right now. I see the rheumy in October (thank God) and I'm kinda hoping that once I tell her about the merry-go-round starting so dramatically again, she'll put me back on the injections for a while to see if I IMPROVE dramatically again!

Gentlest of hugs,
John
*****************
John (53)
*****************
Dx'd June 2008 with Fibromyalgia & CFS  possibly caused by chronic Epstein-Barr virus (many years of ongoing symptoms.....recently worsening)......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & headaches (all types)
 
*****************
Several meds too numerous to list or remember!


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 9/30/2008 6:28 PM (GMT -7)   

Thanks John for your reply. What is atp? I am familiar with glutathione but not atp. My injections were gamma globulin not glutathione. What did you do to increase your IgG levels?? D

 


Enochroot
Regular Member


Date Joined Sep 2007
Total Posts : 40
   Posted 10/3/2008 6:56 PM (GMT -7)   
Hey - just started glutathione injections after a year of
abject misery...They do seem to be helping turn
I have gone back to work - I had just gotten my GP
to fill in all the paperwork for disability claims!
I have a WONDERFUL immunologist here in North Jersey
who is treating me for an incredibly reasonable rate
(outside insurance as they won't cover this)

You can also look into trying NADH
and Whey Protein

Both are supposed to work on similar immune
mechanisms.

I too have a Pos ANA and strange immune titers
like a titer for Sclera derma yet no symptoms of it.
And IGG titers for CMV, EBV, HHV6, Parvo,

Post Edited (Enochroot) : 10/3/2008 7:59:38 PM (GMT-6)


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40602
   Posted 10/4/2008 3:10 AM (GMT -7)   
Enochroot,

What is people parvo. I have heard of dogs getting parvo. But it was a while back when I heard about people getting it. What are the symptoms? How do they know that you have it?

Thanks in advance,

Hugs Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Enochroot
Regular Member


Date Joined Sep 2007
Total Posts : 40
   Posted 10/4/2008 11:16 AM (GMT -7)   
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 9:40 AM (GMT -7)
There are a total of 2,735,876 posts in 301,335 threads.
View Active Threads


Who's Online
This forum has 151440 registered members. Please welcome our newest member, Ian88.
271 Guest(s), 6 Registered Member(s) are currently online.  Details
ResilienceR, Christine1946, therearemiracles, ChickNorris, Mustard Seed, Traveler


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer