Wheather is killing me... how about you?

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Regular Member

Date Joined Nov 2007
Total Posts : 130
   Posted 10/5/2008 7:35 PM (GMT -6)   
Hi my fibro friends~
I live in the Northwest and it's was of October last year that I felt the first major Fibro (identifiable) pain.  I recall everything hurting and everything else that I had exhasberated.  I ended up quiting my full-time job by November 31st.  I was diagnosed in Dec.  My point being is that the wheather really scares me.  I'm too tired, my pain isn't letting up with drugs or rest and if any of you noticed my last topic.  I decided to tell work that I had Fibro, because they had increased my hours from 4.5 to 6 without a break and it's taking a toll on me.
This weekend I told my husband I'm far too close to checking in to a crazy house to hide and get some rest.  I can't handle work, the house, the kids needs (vollyball, track, clubs, taxi driving) etc. and etc.  You know!!!!!  My husband helps a ton, cooks more then I, pay's the bills and arranges the girls dental apts for braces etc., but I still feel like I'm falling in a big black hole and I'm not going to make it. 
My last Neuro apt. suggested that I desparately need to see a Pshyc. the kind that can prescribe drugs.  I'm ready to do that, but someone tell me how to fit that in?  All I want to do is fit a nap in for gosh sake.  My husband won't hear of me just quiting my job, because we can't afford it and the other thing is the extra money coming in has just made him feel positive that more is coming in. 
I'm amazed at this fibro on a daily basis.
Thx for anything you want to contribute.
Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 10/6/2008 8:37 AM (GMT -6)   
I'm sorry your having a hard time tluvstulips. This is strange but since the weather is cooling off I have had less pain. I live in central Illinois. I had a miserable summer.
My children were grown when I got fibro so I don't know what it is like for you mothers trying to keep up with everything with fibro and working. It was tiring being healthy and keeping up with everything.
I think I would start by writing down everything that needs to be done in a week and prioritize. Delegate chores to your children that they can handle. Maybe have your DH cook enough for two meals at a time so he will have more time to help with other things. Some things around the house may not get done every week or have to wait til the weekends. There are only so many hours in a day and so much energy to use.
I hope you can simplify things so you can get more rest.
luv and hugs
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Date Joined Jun 2008
Total Posts : 1279
   Posted 10/6/2008 9:03 AM (GMT -6)   
Hi tluv-

I don't know how you do it either with having young ones- my oldest son is grown and out on his own and my youngest son is 17 and self sufficient for the most part.

Since getting fibro "any" stress hits me easily, so you are not alone! Marlee offered some good suggestions and I hope that will help you.

Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Regular Member

Date Joined Sep 2008
Total Posts : 33
   Posted 10/6/2008 9:07 AM (GMT -6)   
Hi, I'm so sorry that you're having a hard time.  Fibro is SO hard to deal with.  Glad you're here!  The winter weather is starting to roll in here in the South East (PA) too and I LIKE IT!  The pain has been so bad I've been crying at times, esp. in the mornings, but the summer was horrible!  I'm going through the perimenopause/menopause area of life also, and am presently living with my mom and stepdad, since I lost everything due to the Fibro, myofacial pain, TMJ, Osteoarthritis, herniated discs, etc... any pain condition there is seems to be a diagnosis I've received.  I used to be a nurse, but lost my career and home and friends and boyfriend/fiancee due to the pain.  Yesterday I woke up and could hardly get out of bed.  When I did I cried b/c I felt like my bones were broken and muscles were tearing!  It was awful.  Today was a bit better.  We all seem to have problems with the change of seasons.  Keep posting!  I'll be thinking about you and praying for you  :-)  You have a lot on your plate, having a family to take care of.  I don't know how you do it!  I just have myself and my 9 month old puppy who needs a lot of care.  Also, since I moved back with my parents, I seem to be caretaking over them.  No one seems to understand how bad and horrible this pain of the fibromyalgia really is.  We "look" ok, so we "should be okay right"????  NOT!  Relax.  At times like this you must take care of yourself and know that others do understand.  I come here to HW for support...support I don't get from anyone in real life.  Feel free to email me if you'd like.  My email should be under my HW name/link.
God Bless,

M&M lover
Regular Member

Date Joined Sep 2008
Total Posts : 21
   Posted 10/6/2008 9:15 AM (GMT -6)   

I am like you - its this time of year that I get my "flare up".  This is my 7th year with it.  Last year it began in October and lasted through March.  It seems to last longer each year.

I also have younger kids (14 & 12) so I am running every day to sports, PTO president, working full time, etc.

It is hard but I keep telling myself that this is something I can't die from.  I also believe that by pushing myself to get going each day does help.  As much as I want to crawl back in bed.

I had a funeral last week and I was standing still for over an hour, when it was over and I had to start walking I didn't think I could cry I was stiff and hurting so bad I think because of the stress of being at the funeral.  It was scary.

Keep your chin up.  Do the things that absolutely have to get done.  If you kids are able to help at all, have them.  My husband and girls are great.

What about researching some sort of job you could do from home??  Medical transcription?  This will allow you to lay low at home while working.  Just a thought.


Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 10/6/2008 10:46 AM (GMT -6)   
THIS IS REALLY IMPORTANT! If you're not already on it, get your doctor to start you on an SSRI right away. Generic prozac, wellbutrin, zoloft, whatever one works best for you. You may need to try one for a few weeks and then switch because some of them work for some peeps and some don't. Low serotonin levels are causing a lot of the problems you are having, especially the "crawl in a hole" feelings. SSRI meds help with sleep issues, mood, appetite and most importantly PAIN.

Secondly, if your kids don't know it, let them know about your fibro. Chances are that one or more of them will turn up with it also so it's time to learn about the issues that come with a chronic disorder. Start joking about your shortfalls, ask for their help and blow off what's not important. You don't have to be June Cleaver, just a loving mom. You will be surprised at how much they will care and help once they understand the problem. Builds character in kids when they learn to help out.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

Forum Moderator

Date Joined Apr 2005
Total Posts : 17056
   Posted 10/6/2008 11:23 AM (GMT -6)   
Tluv, I'm sorry  you are going through all of this.  There are always things that don't have to be done immediately so save them for another day.  Only do the necessary things.  I'm so happy that your husband has been a help to you.  I don't know the ages of your children, but if they are old enough to help, get their help.  You have been given some good advice from other members.  Now I'm going to play cheerleader!  smilewinkgrin
When I developed fibro my children were 9, 10, and 13.  I remember the taxi driving all around, driving them to school, the soccer and softball practices and games that I had to go to, the piano lessons, and, when they got in high school and in marching band, I REALLY remember sitting on cold, metal bleachers, with no back support, for three hours in 30 degree weather!  (Lived in Cleveland, Ohio at the time.)  I honestly didn't know how I was going to walk, let along go down the steps to get to the car.  But, I did it.  You can too.  It's not fun, but, if you take it a day at a time, you can do it.
We have sooo much strength and intestinal fortitude in us that we never use.  We CAN do things if we tell ourselves that we can.  When we are in pain, it is so easy to say that we can't do things.  If we say it enough, we start to believe it and it becomes a self-fulfilling prophecy.  It's almost like brainwashing ourselves!  Try telling yourself that you CAN do it and you WILL do it and move forward, not focusing on the pain.  You will be amazed at what you accomplish.
There are so many times I don't feel well and really don't want to do what I need to do.  Procrastinating is tempting but, if I just get up and get moving and accomplish my goal, I feel soooo much better.  I will tell myself, "See, I knew you could do it!"  That brings me joy.  It lets me know that fibromyalgia will not rule my life and that does make me happy.
I hope this has helped you some.  Life with fibro is not for sissies.  We are strong, courageous people and we will be victorious over this miserable syndrome!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 10/6/2008 9:57 PM (GMT -6)   
I am in Seattle. You are not alone in your pain. Most of my friends who work out in the pool with me feel miserable right now and so do I.

Yesterday I went to the pool and stayed in it until I began feeling better. That was for 3 1/2 hours. Friends who do not normally go there on Sunday, were.

I bought a really effetive heating pad that is 2 feet long. I slept on it last night. Sigh, it was wonderful.

Hang in there. I remember caring for my children and having flares. Now I have one child left and she is self sufficient, thank goodness.


Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 10/6/2008 10:45 PM (GMT -6)   
Don't forget yourself! If you use all of your energy on others, you will burn out. At least once a week, do something you want to do that you will enjoy and say heck with everything else.

Slash and burn. Get rid of things that require care like knicknacks that need dusting or anything that takes extra work. If you are tired, don't make the bed. Simplify everything you can. Learn to say "No" and don't feel bad about it. Cut back on some of the kids activities, you don't have to stay for every game or activity. Talk to another parent and see if you can alternate driving or one drops off, the other picks up. Change your mindset, your husband doesn't help you, you help your husband. Just because you are a woman or you work fewer hours doesn't make everything your responsibility.

The kids may not like having to cut back on activities or you missing some games but if you burn yourself out and can't get out of bed, they'll lose a lot more. Having some of mom is a lot better than having none of mom.

My daughter was three when I got sick and I had my son after years of illness. I had to learn to set limits early on. You are not the person, woman, mom, wife that you were. You may have to mourn that woman. You can still have a great life, it just will be different than the one you thought you were getting.

As for work, 6 hours without a break is crazy and maybe even illegal. Check your state's labor laws. Negotiate a break.

Take care of yourself!!!

New Member

Date Joined Oct 2008
Total Posts : 5
   Posted 10/7/2008 3:40 PM (GMT -6)   
I'm so glad you posted. I live in Miami, and the summers just kill me. It's hot as usual, but it rains nearly every day, and the humidity is usually in the 90's. When the weather gets cooler and less humid, my motivation is up, I feel like I can take on things that I couldn't before, and I'm up and about as much as I can be. Come summertime again though, the days drag on by, and some days doing one small chore is an accomplishment. It took me 3 years to realize that there is indeed a cycle. Others in my family with muscle and joint pain go through the same thing. I fantasize daily about moving somewhere cool and dry scool . Maybe someday...

Regular Member

Date Joined Nov 2007
Total Posts : 130
   Posted 10/7/2008 10:29 PM (GMT -6)   
I'm more confuesed now... am I the wierd one the the cold wet wheather change is bothering and most are worse in the summer? My mom who has MS is far worse in the Summer, but I sware my body hurts worse right now. As Fibro said there must be a cycle, but this is my first year, so I really have little frame of reference. My wrists, ankles, knees, elbows and my lower back is so bad. I always thought people with arthritis move to Miami or warm places to get relief. I'm taking naps after work sometimes 2-4 hours and still sleeping at night. I feel like I'm doing everything right. I take vitamins with extra D, I am doing the very best to eat what I should and getting off what is bad for me and I feel terrible. Am I off base on the wheather thing? Maybe I'm in a flare and the wheather has little or nothing to do with it.

I so appreciate the responces from everyone.
Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen

Forum Moderator

Date Joined Apr 2005
Total Posts : 17056
   Posted 10/8/2008 10:32 AM (GMT -6)   
No, yoiu are not weird.  When I lived up north, the winters were killers for me.  From October to April or May were really bad.  Then I had about four months of feeling better and then fall came again.
Then I moved to Florida.  The three months in the summer are bad for me but the rest of the year is great!  It seems we need the very best weather and it doesn't seem to exist anyplace all year 'round.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Jun 2008
Total Posts : 79
   Posted 10/8/2008 12:31 PM (GMT -6)   
i too am not dealing with the change in weather.....i am in the midwest and it is gonna rain here for two days...yesterday i felt that stabbing pain all over....god, it awful and my meds don't help either when its this bad....my mom says its the change in barometric pressure....funny, cause i also get this way during a full moon...it feel like i'm in a vacuum or something and there is no relief...

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40391
   Posted 10/8/2008 2:01 PM (GMT -6)   
I believe it is the changes in the barometric pressure. The season is changing here in Michigan and I am experiencing more pain. And I noticed with the gloomy days I am more fatigued than normal.

You really have a lot to do and I don't know how you do it all. You shoud be so proud of yourself for all that you accomplish with your family. I can imagine that at times it gets rather hard, but you are doing something right to keep you going. Don't change it, but do put aside some time for yourself. Even if it is only a few minutes a day.

Best wishes,
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Mar 2008
Total Posts : 316
   Posted 10/8/2008 8:45 PM (GMT -6)   


No, you are not weird.  I, too, believe it is worse in the winter for me.  Of course, I have only been dealing with this thing since August of 2007, so only one winter so far.  I do know that when it is wet, cold or raw I feel worse.

I am sorry to hear you are having such a tough time.  I know it is tough to keep going sometimes.  You are so fortunate to have such a supportive husband!  That is wonderful! 

Sherrine is right.  We all have strength inside of us.  When we are in pain, I know it can be difficult to find the desire and strength to go on.  But, it is there.

I saw that some people recommended only doing things that were necessary and that is good advice.  When I stepped back and looked at what was taking up my time every day, I was able to find ways to simplify and streamline all sorts of things.  For instance, I usually cook from scratch - one, because I love to.  And, two, because we are not made of money and scratch is less expensive.  But, cooking this way was creating a ton of dishes and a lot of standing in the kitchen.  So, I simplified our meals.  I searched for simple, low-cost meals which could be prepared either in one skillet or the crock pot.   I collected a bunch  of recipes and I created 3 weeks of rotating menus.  If I am feeling well and have the desire to bake or cook something elaborate, I can certainly do so.  But, it is no longer a requirement.  I let this same philosophy carry over into lunch making for our 10 year old.  Instead of standing and making sandwiches each morning, I make one batch of cold pasta salad on Sunday and put it into containers.  Done!  I also found that if I wear more knit tops, I don't need to iron as much (plus, the knit tops keep my arms warmer, which helps my aching muscles, so it is a double bonus). 

What works for my family may not work for yours.  But, the act of re-evaluating what you do every day - both at home and at work - and shaving little bits here and there will really add up to a surplus of time at the end and help to reduce stress for everyone.  

Please take care and I do hope you are able to find a way to manage. 




"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 


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