I am like you - its this time of year that I get my "flare up". This is my 7th year with it. Last year it began in October and lasted through March. It seems to last longer each year.
I also have younger kids (14 & 12) so I am running every day to sports, PTO president, working full time, etc.
It is hard but I keep telling myself that this is something I can't die from. I also believe that by pushing myself to get going each day does help. As much as I want to crawl back in bed.
I had a funeral last week and I was standing still for over an hour, when it was over and I had to start walking I didn't think I could I was stiff and hurting so bad I think because of the stress of being at the funeral. It was scary.
Keep your chin up. Do the things that absolutely have to get done. If you kids are able to help at all, have them. My husband and girls are great.
What about researching some sort of job you could do from home?? Medical transcription? This will allow you to lay low at home while working. Just a thought.
No, you are not weird. I, too, believe it is worse in the winter for me. Of course, I have only been dealing with this thing since August of 2007, so only one winter so far. I do know that when it is wet, cold or raw I feel worse.
I am sorry to hear you are having such a tough time. I know it is tough to keep going sometimes. You are so fortunate to have such a supportive husband! That is wonderful!
Sherrine is right. We all have strength inside of us. When we are in pain, I know it can be difficult to find the desire and strength to go on. But, it is there.
I saw that some people recommended only doing things that were necessary and that is good advice. When I stepped back and looked at what was taking up my time every day, I was able to find ways to simplify and streamline all sorts of things. For instance, I usually cook from scratch - one, because I love to. And, two, because we are not made of money and scratch is less expensive. But, cooking this way was creating a ton of dishes and a lot of standing in the kitchen. So, I simplified our meals. I searched for simple, low-cost meals which could be prepared either in one skillet or the crock pot. I collected a bunch of recipes and I created 3 weeks of rotating menus. If I am feeling well and have the desire to bake or cook something elaborate, I can certainly do so. But, it is no longer a requirement. I let this same philosophy carry over into lunch making for our 10 year old. Instead of standing and making sandwiches each morning, I make one batch of cold pasta salad on Sunday and put it into containers. Done! I also found that if I wear more knit tops, I don't need to iron as much (plus, the knit tops keep my arms warmer, which helps my aching muscles, so it is a double bonus).
What works for my family may not work for yours. But, the act of re-evaluating what you do every day - both at home and at work - and shaving little bits here and there will really add up to a surplus of time at the end and help to reduce stress for everyone.
Please take care and I do hope you are able to find a way to manage.
"Tragedy is a tool for the living to gain wisdom, not a guide by which to live." Robert F. Kennedy