Anyone have FMS and Myofascial Pain Syndrome?

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Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/8/2008 1:24 AM (GMT 0)   
Hi all,
 
Well, it looks like I might have another disorder to add to my ever growing list.... No diagnosis yet, but I have all the symptoms and trigger points, etc.  Ropey knots in my legs, back, etc.
 
Just wondering if there are any of us here who have both syndromes? 
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


PALMY
Regular Member


Date Joined Sep 2003
Total Posts : 255
   Posted 10/7/2008 7:09 PM (GMT -7)   
I do and was diagnosed with both at the same time by the same Dr. I am sure there are a lot of fmers with both conditions. I am under the impression they go hand in hand. Aren't we lucky?

The Dr. that dxed me said those ropey bands he calls a string of pearls, well I would rather have the pearls than these DD"s

Hugs, Linda
linda


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 10/7/2008 8:58 PM (GMT -7)   

Yes, I have both as well.  Was told by the doc that it's a "continueum"....one leads to the other.  The ropes and knots are so painful.  I've been having pain on my scalp, ear and neck area around the jaw...new pain.  When I touched my scalp it felt like I had banged my head on something....exquisitely tender to even light touch.  My neuromuscular massage therapist worked on the area last night and said the muscle band that extends from the jaw/ear back into the scalp was extremely tight and "ropey".  It was uncomfortable while she was working on it, but feels better today.  I have those "ropes" in my thighs and arms, too.  Has anyone ever had trigger point injections?  

Lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


Pin Cushion
Regular Member


Date Joined Feb 2003
Total Posts : 442
   Posted 10/7/2008 10:21 PM (GMT -7)   
I was dx with Myofascitis many years before I got FM dx.
Moderator for the Diabetes forum
 
Sigmoid Colostomy / Crohns / Type 1 Diabetic / Ostioarthritus /RLS/ Fibromyalgia / Asthma / High Blood Pressure / High Colesterol / Migraines. Ain't life a joy?



* I think it may be time for a colorful metaphor*


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 10/8/2008 4:20 AM (GMT -7)   
Gee Ginny,
Welcome to the club! Not that knowing the Dx has done me any good.... (sigh!)
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 10/8/2008 5:28 AM (GMT -7)   
Hi Ginny-

The rheumy diagnosed both at the same time for me too. Ug!
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 10/8/2008 6:56 AM (GMT -7)   
I have both and I'm not so sure I don't have CFS to go with them. I'm going to new rheumy tomorrow.
 
Lucy, I have sore spots all over my head too.
 
When I run my fingers over the outside of my thighs it feels like a washboard.
 
The TRPs have multiplied and spread.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


alicat72
Regular Member


Date Joined Jun 2008
Total Posts : 79
   Posted 10/8/2008 10:33 AM (GMT -7)   
yep. i got both too....doc says they occur quite often together....i know that a massage therapist can work the kinks out of the myofascia, but i cannot afford it cry

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/8/2008 11:56 AM (GMT -7)   
Thanks everyone,
 
Marlee, the outside of my left thigh is like how you described it, "a washboard".  I can't see the lumps, but I can sure feel them and they hurt!!  I have one lump, mid back, just to the left of my spine too.  I haven't found any others.  I had these lumps ultrasounded a couple of years ago.  The diagnosis was "lupus like tissue".  Whatever.... Because EVERYTHING is related to lupus if you have it! LOL.
 
So we'll see what my rheumy thinks.
 
All I know is that if I have both disorders, no wonder I feel like crap.... At least my lupus is quiet.  Something has to go right!!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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