Hysterectomy - what to expect after the surgery?

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 10/7/2008 6:26 PM (GMT -7)   
I'm having a laporoscopic hysterectomy on November 5th.  I really don't know what to expect in regards to flare ups, additional pain, etc.  Has anyone had a hysterectomy along with having FMS or Myofascial Pain Syndrome? 
 
Thanks!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Sera Smiles
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Date Joined Nov 2006
Total Posts : 671
   Posted 10/7/2008 10:21 PM (GMT -7)   
Hi Ginny! You have asked a great question. I wish I had been able to ask this question when I had a LH in early 2003. I had not been diagnosed with FM at that time, but the actual DX only followed by a few months and I had been suffering with multiple symptoms for some time, so I feel I can answer your question. Please take very seriously your doctor's warnings about doing too much, too soon. I feel strongly that a big part of my DX coming when it did was that I did not take to heart everyone's warnings about not going too fast after surgery. Anyway- I felt great very soon after my surgery, I had a large fibroid on my uterus that was in control of my life, so once it was gone I was much better. I do not remember having any major issues for a few months after surgery, only feeling better, more energetic, and happier. I feel this would have continued positively if I had heeded my docs advice about going slow and letting myself heal. Instead, I went back to work too soon and worked too hard, traveling and being on the road for work, then two things happened-I developed appendicitis while out of town [several hours from home overnight and just riding out the storm until I could get home and have emergency surgery] and 4 weeks later a major car accident [a large tree fell on my car as I was driving, again, out of town for work]. I hope and believe you may not have any reall nasty issues if you let yourself rest and heal, it may be tough to do, wanting to meet everyone's needs, but make it happen for you! One way to look at it- you will never, ever, again have the opportunity to take time to heal from this surgery. This opportunity to heal, to take it slow, to take advantage of this time, will never come again. MAke the best of it and you will have yourself to thank for giving yourself a huge gift that will last forever.
Peace and good luck! Let us know how you are doing.
 


ericsmom
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Date Joined Jan 2007
Total Posts : 1042
   Posted 10/8/2008 6:06 AM (GMT -7)   
((((((((((((((((((Ginny)))))))))))))))))))
 
I am so sorry hon!!!!  I dont know anything about hysterectomy's and fibro.  I just wanted to give you a huge healing hug.
I will keep you in my prayers for a speedy, pain-free recovery.
Keep us posted..please
 
Gentle healing hug
Diane
Fibromyagia, R/A, Diabetes, Atrial Fib, depression

folic acid, metformin, diamicron, bisoprolol, fenofibrate, pantoloc, wellbutrin, propafenone, ibprofen, warfarin, methotrexate


Some people dream of angels, I held one in my arms


sheryl=jk
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Date Joined Oct 2004
Total Posts : 4083
   Posted 10/8/2008 7:31 AM (GMT -7)   
Hi Ginny.  I dont remember it being to bad recovering, i agree to take things slowly to recover.  I had adenmyosis, kinda like endo but just in my uterus, and large fibroids, so i did feel better afterward.  Just rememeber to take it easy.
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06 Spondlylosis/Disc Degernation Disease severe arthitis lower back -08,implantedInterstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines
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Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/8/2008 12:15 PM (GMT -7)   
Oh thank you so much!!!
 
I am planning to give myself up to 3 months to recover if I need it. I'm self employed, so I've "x'd" off my calendar until the end of January.  Knowing me, and all my issues, I'm going to need lots of down time.  I promise to go really slow and give myself all the time I need to get well.  That is so important!
 
I appreciate your encouragement so much.  I'm dealing with a lot of "should I?", "shouldn't I?" with this.  But after this week's period, it's a definite "I MUST"!!!  My period gets more painful and longer and heavier every month that goes by. 
 
I feel better knowing that others have had success! 
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


nextasy65
New Member


Date Joined Sep 2008
Total Posts : 19
   Posted 10/10/2008 5:31 AM (GMT -7)   
hi ginny. i was diagnosed with fm 4 yrs ago. i had a total hysterctomy in march, i dont remember much i went down at 1.30 pm, next thing it was gone midnight. my husband told me that they'd had trouble getting the pain under control and the anesthestist had to be called back and he found out that i'd had a fibro flare-up. he told my husband that i'd been given enough morphine to knock out an elephant, they also gave me a morphine pump so i could top it up every 5 mins. i am still having a lot of problems so am still seeing the dr, this sounds really dramatic but i had TOTAL hyster, so fingers crossed for you that it wont be so bad, just make sure they no you have fm. i really hope you have a better time than i did. i'll be really jealous of you cos u are gonna fly through it, let me no how you get on
regards nextasy


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 10/10/2008 2:29 PM (GMT -7)   
Ginny, I have never had a hysterectomy but I have had my colon totally removed since I've developed fibro.  I was cut from just under the sternum all the way to the pubic bone.  I had 86 staples in me all together.  I was told to tell my family that I would not be talking to them for a couple of days.  I did that.
 
I had the surgery and woke up in my room a couple of hours later.  Seven hours later I was sitting up in bed and calling my husband and my Mom.  I was on morphine but I felt fine. 
 
I left the hospital six days later, still with 86 staples, and three days later, spent 6 hours at the mall Christmas shopping.  I did that for the next four days until I had to go back to the Cleveland Clinic to get the staples removed.  A couple of weeks later I had a New Year's Eve party for 40 people to thank them for all of their help.
 
So, I don't think I'd be too worried!   yeah  
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


mamakitty
Regular Member


Date Joined Jul 2008
Total Posts : 56
   Posted 10/10/2008 2:57 PM (GMT -7)   
Hello Ginny
 
I also had a total hysterectomy when i had fibro and all this other fun  stuff  but i made the Dr. waite 3 years until i was ready for it and he said i sure knew what i was doing, i came through it with flying colors yeah , the nurses kept asking if i needed pain pills or anythings and i said no i was fine  and i think it really helped that my mindand my body was ready for it to be done. I did have longer time to recover as then the CFS was starting in but, i never went into a fibro flare at durning this time aaat all, i pray all goes well for you also. wink
 mamakitty
 
Fibromyalgia,Osteoarthritis,Chronic Fatigue Syndrome,Psoriasis,,Low Thyroid.Migraines.
 
 
Levothyroxine,Sertraline,Estradiol, Nabumetone, Lisinopril, Methotrexate, Amitriptyline Trazodone, Requip, Imitrex, Topamax.
 
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/10/2008 4:49 PM (GMT -7)   
Oh, you guys! Those are the kind of experiences I need to hear!  Sherrine, wow, that is some major surgery. 86 staples!  My surgeon told me I'd have 2-4 stitches inside where they remove the cervix, then just a couple on each little hole for the laparoscopic tools to go in through my belly.  So nothing really major in that department.
 
What I'm most concerned about is the pain after, and the risk of infection.... Because I'm on immune suppressants.  But I don't even catch colds or the flu!!  So my immune systemt works pretty well despite the meds I'm on.
 
Mamakitty, I sure hope I don't need the pain meds like you!  Was yours a total abdominal?  I'm feeling encouraged.  Thank you!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


ericsmom
Veteran Member


Date Joined Jan 2007
Total Posts : 1042
   Posted 10/10/2008 5:00 PM (GMT -7)   

Ginny

From the way you describe your surgery, it must be very similar to the way gallbladders are removed.  They just make 3 small incisions..

I just want to give you my best wishes..and I just bet it will be a cake walk for you wink    Did I say cake??? mmmmmm turn

 

Healing hugs

Diane


Fibromyagia, R/A, Diabetes, Atrial Fib, depression

folic acid, metformin, diamicron, bisoprolol, fenofibrate, pantoloc, wellbutrin, propafenone, ibprofen, warfarin, methotrexate


Some people dream of angels, I held one in my arms

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