It's 4am and I can't freakin sleep

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BumBum81
Regular Member


Date Joined Sep 2008
Total Posts : 43
   Posted 10/8/2008 1:52 AM (GMT -7)   
I have been up since 2:30am. I have found that ever since I started hurting and began my quest to find out what's wrong with me, I cannot sleep. This has been going on for like, 2 and a half months now. From what I've read, CFS can go hand in hand with fibro is that right? I take my Klonopin around 9:30pm and I'm asleep by 11. Next thing I know it's around 2 and I'm awake. Usually I fall back asleep within 20-45 minutes and awake again around 4, and again around 6. Thankfully, I'm off from work on disability so I am able to go back to sleep usually for another hour or so, but I'm usually up by 9. I'll be going back to my rheumatologist on the 23rd to get a definitive diagnosis of fibro; should I ask at that time about CFS or is that something I should go to my GP for? I'm intersted in getting a sleep study done to see whats going on. Thanks for any help sad
"Dwell not on the past. Use it to illustrate a point, then leave it behind. Nothing really matters except what you do now, in this instant of time. From this moment onward you can be an entirely different person, filled with love and understanding, ready with an outstretched hand, uplifted and positive in every thought and deed." Eileen Caddy
 
Diagnosed: Anxiety/Panic Attacks, Depression, Allergies
Had gallbladder removed 10/2005
Quit smoking 10/2005 YAY!!
Medications: Klonopin 1.5mg daily, Celexa 30mg daily, Singulair, Rhinocort, Multi-Vitamin and Calcium


fibrofog
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/8/2008 2:57 AM (GMT -7)   
I can relate to the insomnia part. I've been struggling with it since I was pregnant with my daughter. If you're going to see a doctor and have questions about your health, ask away. That's what they're there for, and I would trust a rheumatologist with such matters much more so than a GP, just from my experience, and they're usually a bit less rushed. Fibromyalgia and CFS have some of the same symptoms and can overlap, so it really can't hurt to ask, and getting answers (even if it's "I don't know, let's run some more tests") is better than wondering. I would also see the doctor who prescribed your Klonopin and find out if there's another medication you can take or if your dosage can be changed. My doctor told me it was fine to take another Xanax if I can't get back to sleep, which I do sometimes, or just take .75mg instead of .5, and that seems to do the trick for me most nights (well... technically early mornings). My doctor originally put my on Klonopin for insomnia, but it did absolutely nothing for me, except turn me into a wide-awake zombie, so I asked to be given something else. Sometimes it takes a few tries to get the right combination of meds for you. Don't settle until you find something that works, or at least makes you feel somewhat better than you did before. On the other hand, it might just be stress from not knowing. Either way, ask, ask ask, until you get the answers you need or at least directed to the right place to find them.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 10/8/2008 7:33 AM (GMT -7)   
I go through periods of not sleeping well and I'm in one now. It was after midnight when I went to sleep last night and I kept waking up in the wee hours this morning. That's three nights now of disturbed sleep which leaves me feeling like a zombie.
 
I try to have a relaxing evening with no stimulation, I cut out caffeine in the afternoon and I take 100 mg amitriptyline and 1 1/2 mg xanax before going to bed. This normally works for me. If I wake up at 4 am, which seems to be the magic time, I can take another xanax.
 
Like I said this normally works for me. I know I took my xanax last night but it didn't feel like I did. I will cut out caffeine earlier today and hopefully get a good night sleep tonight. I hate feeling like I'm in a daze all day and I can't nap during the day.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Southernlady
Veteran Member


Date Joined Jun 2008
Total Posts : 844
   Posted 10/8/2008 8:18 AM (GMT -7)   
I can identify with this problem.  It was after 2:00 A.M. this morning before I ever went to sleep.  I just couldn't keep my mind from wondering.
 
Yesterday was my dil's birthday and we went over to take her birthday present to her.  She and my dear son were both in tears.  Her friend had come earlier to bring her a present and accidently ran over their English Bulldog they had paid 1000.00 for.  My son that is 32 years old was crazy about this little dog and the dog really loved him.  He doesn't usually get attached to animals but this time it was different. 
 
Every time I closed my eyes, I could see the hurt and pain in his face.  I now know more about how Marlee felt when she lost her little dog.  It's sooooooo sad.
 
They rushed him to the vet but he died in the waiting room.  The friend that ran over him was hyterical and I felt so sorry for her too.
 
They have been married for 8 years and she has never been able to conceive so this dog was just like a child to them.  Please remember them in their time of sorrow.
 
God Bless!
Shannon
Of all the things that I have lost, I miss my mind the most!!!!


solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 10/8/2008 8:20 AM (GMT -7)   
Marlee, What ever happened to the sleep study you were going to have done? Lisa

jev
Regular Member


Date Joined Jun 2008
Total Posts : 168
   Posted 10/8/2008 3:51 PM (GMT -7)   

Hi BumBum! I'm so sorry you are having to deal with this.....sleep problems are no fun at all! I've had sleep problems for years. I have cfs & fibro and sleep problems can definitely be associated with either of them. I was also dx'd with sleep apnea this year from a sleep split-study so that's just another big contributor to my problem. I have a cpap machine for that but it alone does not relieve the sleep problems. Ambien has worked for a while as well as amitryptyline but it seems to be getting progressively less and less effective as time passes and it may be time to try something else like Ambien CR or Lunesta.

Anyway, you just hang in there! Sleep problems can be difficult animals to identify and treat and it may take a little while.

Gentlest of hugs,

John


*****************
John (53)
*****************
Dx'd June 2008 with Fibro, CFS and CEBV (Chronic Epstein-Barr Virus) after many years of ongoing and worsening symptoms......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & headaches (all types). Several meds too numerous to mention!


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 10/8/2008 4:11 PM (GMT -7)   
Hey there all you night owls. I also have been prescribed Klonipin for sleep and 100 mg. Amtltriptilene at bedtime. I can get to sleep OK but invariably am awake from about 2 AM - 4AM, and only fall back to sleep if I take a muscle relaxer. Sometimes I have to get up and walk around, the only problem is my Dad who lives with me has alzheimers, and sleeps lightly and I definitely do not want him to wake up, so I have to tippy toe around. I am going to ask my pdoc , when I see him in two days if there is something else i can take which will keep me asleep.
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