Heaviness and pain in legs.

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tyno3
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Date Joined May 2008
Total Posts : 1081
   Posted 10/11/2008 12:56 AM (GMT -6)   
Is this a fibro problem or unrelated. if I do any ammount of physical activity, walking, climbing stairs and so on, after about fifteen minutes, I get this pain and heaviness in my legs. It feels literally like I'm wearing concrete leggings. I can barely get one foot in front of the other. I had spent almost two years in a mould infested damp smelly, house, until I was able to get us better accomodations, last month. I've only been here a month, so maybe it's ashma or some other manifestation from the mould. Or, maybe it's circulatory, like PAD (perpheral artery disease), or maybe it's Fibro. Anyone?

tyno3
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Date Joined May 2008
Total Posts : 1081
   Posted 10/11/2008 1:48 AM (GMT -6)   
Writing my own reply. Actually, a related disorder;Eosinophilia-myalgia syndrome, anyone. As I was looking for a reason for pain and heaviness in legs, I came across this article about folks who used L-tryptophan in the eighties (me) to manage mood disorder/depression/ sleep disorder. I was a regular at the local health food store. I thought I had found a miracle cure. Then suddenly it was no longer available. In and around 1985 I broke out in the most bizarre rash and one side of my face swelled up so as to not recognise me in the mirror. I took  benedryl and by the next day, things seemed to return to normal. Goggle it, it's pretty interesting.

soxx
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 10/11/2008 8:36 AM (GMT -6)   
I have the same problem with my legs. and I'm trying to find an answer also.

Jeannie143
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Date Joined Apr 2004
Total Posts : 6053
   Posted 10/11/2008 9:16 AM (GMT -6)   
This all sounds like something to see the doctor about right away. PAD can lead to strokes. I'd make an appointment pronto!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


tyno3
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Date Joined May 2008
Total Posts : 1081
   Posted 10/11/2008 10:11 AM (GMT -6)   
Dear folks: I live in Canada. We have socialized medicine. It's a godsend in one way because if we didn't, as I'm too ill to work, I would not be able to see a doctor at all. However, the flipside is that there are scarce resources to go around. So, the average consultation with a doctor is six minutes. If you need more time you have to book another appointment and wait. Also, there is a bit of bias towards younger people. it's kind of like, if you're a woman over fifty, you can expect to have health problems so nothing that you present with is taken very seriously. Quite frankly, I believe I may already have had a mini stroke. I get terrible headaches. One morning I awoke with a dilly of a headache so I took a zomig and laid down on the bed in the dark. Then I had tremendous chest pain. It was excruciating and lasted about forty minutes. I was terrified. This was mid July, last. Eventually it passed but I felt like a zombie. Then I noticed my right eyelid drooping. it is still like that to some extent. I brought this up with my GP and all he said was, ïf it happens again. get to an emergency room, pronto. No tests, nothing. But I don't believe I mentioned the pain and heaviness in my legs. I will next visit. I usually see my GP once every two months as I have hypothyroidism, high blood pressure (better controlled now), high colesterol, heriditary as I am careful about what I eat and I do not consume alcohol.

tyno3
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Date Joined May 2008
Total Posts : 1081
   Posted 10/11/2008 10:13 AM (GMT -6)   
Sorry soxx. Welcome to the Fibro Healingwell forum. We have so much in common, I look forward to hearing more from you about the leg pain and other things.

soxx
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 10/11/2008 11:15 AM (GMT -6)   
I'm not quite sure what my problem is yet, I have an appoitment to se a rheumy on tuesday. I saw a nuroligist last tusdeay who put me through a series of test and could not find anything wrong with my nerves. My legs are very stiff and sore in the morning when I get up. The stifness goes away somewhat after moving around for a while but the pain does mot. My nurologist put me on lyrcia which helps a quite a bit. I hope to find more out on tuesday with my appiontment with a rhemuy. My family doctor thought it was fibromyalgia. I had a ultrasound and that came out good. So no problems in the veins. I had some blood work done and that showed a positive to a muscle diesese. Sometimes I really struggle to walk and have to hold on to things.

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 10/11/2008 1:01 PM (GMT -6)   

Soxx, Keep me posted how the appt. turns out. Do you ever just have your legs give out from under you. This used to happen to a friend of mine. She'd be walking along the street, on the sidewalk and next thing she'd be sprawled on the ground. I was with her walking when it happened. Just curious. If you show a positive for muscle disease i sure hope it's not MS. My mother has MS and that difficulty walking was an early sign. Some time passed before she could get a definitive diagnosis. The deciding factor was something in her eyes that an opthalmologist identified as being  singularly related to MS. So if they still don't know and you need an answer, go for a routine eye examination. Just to rule that out.

Just by chance, you didn't take the 5HTP, or L-tryptophan supplements for depression, anxiety and sleep problems in the 80's, did you. Also, did they test for Active Epstein-Barr virus in your system. (That's mononeucleosis). I did have mono at age 16. caught it from my mom, believe it or not. The same mom that has MS. A lot of people don't want to know what is causing the symptoms, they just want them to go away. I'm the opposite. I want to know exactly what is going on with my body when I hurt all the time, have weird symptoms, like "Fibro Fog", and then I know what to expect. Then I can plan my future. Right now I'm living in limbo. No long term plan. Just a day at a time. If I plan anything I'm often to tired or sick to follow through. It is awful. I can't make plans to see people because whenever I do I end up in pain, and sad, and no fun so I don't like to even try. I'm living a very unlife like life. Minute to minute

You don't live in the Northeast do you. There was some phenomena involving particularly women living in Northeast USA and Canada where a very high level of neuro-muscular problems were liked to Spruce Bud worm spraying or something like that. It had to do with a combination of factors, singularly, of no importance but combined showed a significant correlation. Forgive me, statistical analysis was a course in university I took, didn't have the foggiest notion what I was doing and still got a B+. How'd that happen? Nice talking to you. 


SheltieDogLover
New Member


Date Joined Oct 2008
Total Posts : 2
   Posted 10/11/2008 3:29 PM (GMT -6)   
tyno:  I certainly can relate to you.  I can barely walk or stand for 15 minutes, maybe 10 minutes, before I have to sit down immediately.  This has been going on for a little over 3 years, and I finally got the diagnosis of Fibromyalgia a little over 2 weeks ago.  From the pain, the fatigue, the depression, the inability to withstand any physical activity, to having to use a wheelchair when I go anywhere, dr's appointments, work, shopping..it is very difficult to deal with. cry So the pain and heavyness in your legs, I certainlty hav had, and it is probably related to the fibromyalgia.
 
SheltieDogLover in Texas

soxx
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 10/11/2008 5:50 PM (GMT -6)   
Tuno3
No I have never had my legs fall out from under me. Thank goodness. Just very stiff and sore expecially in the morning. No I did not take either of those supplements either. My sister has MS but my doctor does not believe that I have it. I live in Wisconsin just north of Milwaukee. It is agrivating not knowing what a person actually has. My best guess is Fibromyalgia just like my family Doctor said.
My legs only hurt when walking or standing. Not sitting or laying. Sometimes I need crutches to walk but mostly just limp pretty bad when walking. This lyrica really seems to be helping though. Much easier to walk. I am able to do things now that I couldn' before. I couldn't walk more than 10 minutes either with out sitting and resting. My leg muscles would be so sore. I get cramps several times a week at night in my legs. I am always tired and fatigued. I don't sleep well at night either.

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 10/11/2008 6:32 PM (GMT -6)   
Wow, all that just due to Fibro. It's amazing that the doctor's here don't accept the diagnosis of Fibromyalgia as a disease. They skirt the issue, like if you can give a verifiable reason for the pain and symptoms, they will accept your word when you say "I'm in pain, it hurts". For example, I was hit by a truck in 2002. As a result I think the fibro settled in in the damaged soft tissue. Now when I say to a doctor, I have Fibromyalgia and they begin to get this skeptical look on their face but before they reply, you say and I got hit by a truck, there is this look of relief which comes over them, because now, there is ëvidence, to explain the treatment of the pain. Fibro alone doesn't do it. Soooo, I guess there's a lot to it.

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 10/12/2008 2:53 AM (GMT -6)   
I have the same problem with my legs and I use a power wheel chair. Fortunately, I am able to go to the pool everyday. There I can exercise for two hours and relieve the stiffness, puffy feeling and pain in my legs.

This is all due to my having fibromyalgia.

Donnaeil

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 10/12/2008 7:52 PM (GMT -6)   
Hi again: I wonder if there are many folk with Fibro, so affected as to require a wheelchair, walker, or crutches. If so, I can count myself as most fortunate, because apart from having to sit or lie down after 10 - 15 minutes of walking, and waking up with such stiff and heavy legs as to have trouble getting my socks on, I am still relatively self-propelled. I just have to stop and rest for a bit whenever I'm shopping, or walking any distance, most days. Recently, finally, I got some antidepressants which have helped boost my energy level and seem to be taking away some of the pain. Not so much the heaviness in the legs. I still have to sit or lie down after any ammt. of moderate exercise. I also have to be careful not to overdo anything because I pay dearly, usually the next day. Since getting on the antidepressants, I believe I'm dropping a few pounds (I can now get into jeans I hadn't been able to wear for two years, size 12, whereas, before the antidepressants I got up to a size 16.)  I was eating chocolate like crazy because it would boost my serotonin level, briefly. Now with the meds I have backed off the chocolate (somewhat). I am even considering getting back to doing some yoga, gradually. I used to be able to stand on my head for five minutes, no problem, it helps loosen the spine. Now I think I'd crash through a wall or something. I am beginning to feel a bit better after the serotonin boost. Not yet sleeping well, though.
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