PT sent me into a nasty flare

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Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 10/12/2008 7:28 AM (GMT -7)   
Well, I started PT this week and as I suspected it has sent me into a terrible flare.  I knew this was coming, this is my third round with it.  I have been absolutely exhausted and if I'm not careful I'm gonna have a fall, I keep stumbling.  So tired that I haven't been up to visiting with my fibro family.  I have logged on a few times but I just can't get past reading a few postings, I end up going to bed.  Last night is the first time since I started on medication that I have not been able to sleep because of the pain, the family went to church without me.  I don't know if I can keep going to the therapy.  They keep telling me if I relax my muscles it will ease the pain; well easier said than done when they want you to move beyond whats comfortable  shocked .  I have been hurting to long to just relax all of a sudden. 
The therapist did give me some good advice for my work station but it has become obvious to everyone that I have a problem and there have been a lot of questions.  Most of them have just been nosey and have had no reaction but my main supervisor had a semi negative response (maybe it's my imagination because I'm a bit embarrased).  He is very critical of others and I'm worried he will see this as weekness and I hate that.  I had to ask him for a rather expensive head set for my phone and he was more worried about what his supervisor response to it would be than how much it would help me.  This whole thing stinks.  Suffer in silence, that's my usual.  I don't like bringing attention to myself.
Ok, enough venting.  Thank everyone for listening!!!  I hope everyone has a very nice Sunday.
 
Meggie
 

Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 10/12/2008 8:13 AM (GMT -7)   
Meggie I'm sorry your having such a hard time. I have not done PT, I thought about it long and hard when the pain doc wanted me to and decided against it. Pain is not my biggest issue fatigue is and I can work on building up stamina without PT, I hope. I know that some have done PT so maybe they can give you advice on it.
 
I hope you get better soon.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
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getting by
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Date Joined Sep 2007
Total Posts : 40576
   Posted 10/12/2008 9:04 AM (GMT -7)   
Did they give you any stretching exercises to do at home. When I went to pt I found that to be helpful. I didn't last very long though. Not much into the pt aspect of it. Do better on my own.

Good luck with this, and I am sorry to hear that you are having such a difficult time.

Best wishes,

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
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Date Joined Apr 2005
Total Posts : 17097
   Posted 10/12/2008 10:06 AM (GMT -7)   
I haven't tried PT and don't plan on it either.  I know how much I can move my body before I will start getting in a lot of pain.  You know how much you can do, too.  But, the PT therapist doesn't know that.  So, I just move and stretch myself frequently during the day.  That helps to keep me flexible and moving and in less pain.
 
Did you ever try the stretching exercises that I put in the Fibro 101 thread?  They really are good and can be done sitting down...even at your desk.  You can take a minute break and do a few of these and they do help you feel better.
 
I'm sorry that you are having so much difficulty with PT.  Perhaps that is not the answer for you.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 10/12/2008 1:33 PM (GMT -7)   
The PT did give me stretches to do but they are in positions that make me uncomfortable.  At my last session I did get the impression that I would be done soon because there wasn't much they could do to help.  I wish I hadn't asked the doctor about my shoulder.  He was sure that my problem wasn't the from Fibro but he was wrong, an MRI didn't show much, maybe impingement.
I think that may even be wrong, I'm not responding to any of the things that should help impingement.
Sherrine, I have done the stretches on the link you suggested.  I am big into stretching, it helps a lot.  I just wish I could convince my therapist that the ones she is giving me are to much for my shoulder.  My next session is on Tuesday and I think I am going to tell her I want to be done.  I need to recover from this flare, so I can live with my normal pain and fatigue.
My husband has been very helpful to me. He has been giving me massages to help with the pain and picking up extra work so that I can rest.  He has been wonderful and I appreciate everything he has been doing for me. 
I hope everyone has a good week and hopefully I can find the energy to check in with everyone.
Thanks!
Meggie

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 10/12/2008 1:40 PM (GMT -7)   
Meggie, maybe you shouldn't have your husband give you massages.  If a person don't know what they are doing, massages can cause a lot of pain, too.  My massage therapist specializes in fibromyalgia so they are gentle massages.  One time she got a little too aggressive and I was miserable.  Marlee had a massage that caused her a great deal of pain too.  So, I think I'd forego that, in my humble opinion.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


VaVoa
New Member


Date Joined Oct 2008
Total Posts : 17
   Posted 10/12/2008 4:14 PM (GMT -7)   
Hi Maggie: I too had the same type of results with PT....including warm pool therapy! After my first flare up I decided to try and "get ahead" of the flare up for the next PT! Before I went to PT, I took some tylenol, a very hot bath to relax my muscles beforehand, and I insisted that when I went to PT the therapist was to use the heating pacs on me before I even attempted anything. Well, it did work for the next few sessions, but once the cold weather started kicking in, going to PT was no longer an option. I had a very difficut time keeping my appointments! For me, I did not find PT to be any more relieving than all the things I do at home when the time is right. Hope you have better sucess. Good luck to you!

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 10/13/2008 7:37 AM (GMT -7)   
Okay, when the pain doc wanted me to go to PT it was for my neck that was giving me a lot of problems. I had been to a chiro that knows about fibro and that only seemed to aggravate it and massages only aggravated it more. The CAT scan showed a little osteo arthritis so I new the problem was fibro related and the more people worked on my neck the worse it got. Common sense said "keep people away from your neck" and I listened and it has gotten better. So my question is for people that are going to PT what do they hope to gain from it???
 
Sherrine is right, I've had some bad experiences with massage til I found the right set of hands to give them.
 
When it comes to fibro it's all trial and error to find what works for each person. Our treatment has to be tailored for us personally.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 10/13/2008 8:15 AM (GMT -7)   
Meggie, I am soooo sorry that pt hasn't worked out for you so far. One thing I have learned in my more recent trips to pt is that to stretch a muscle that is way too tight just makes things worse as does strengthening exercises. The muscle has to release first or you get into the reaction where your muscle tightens even more to protect itself(there is a technical term for that which escapes me at the moment). Things like trigger point release, massage, muscle relaxers, active release technique, myofascial release, etc. could be helpful to you. They do hurt but unfortunately that is the weird thing about health-it often times hurts more before we get better. I know for myself the rehab specialist I go to now didn't want me to stretch or do specific exercise until my muscles released to a certain point. He didn't want to make matters worse and I had to be patient. Now I do only about 5 stretches and 2 exercise ball exercises. For my problems he wants me to walk which I try to do. I walked 1 1/4 miles this am in about 20minutes without much pain. Not blazing fast but that's better than before I got hurt. It took me 4 months of pretty intense therapy to get to that point. Plese don't give up. This pt may not be the one to help you but I am convinced that there is a therapy out there that can help. Keep looking and I will pray that you find the right one. Lisa

leemadd
Veteran Member


Date Joined Sep 2008
Total Posts : 532
   Posted 10/13/2008 9:11 AM (GMT -7)   
I know what you mean I have been going for 2 weeks and decided im not going back. I know when to push and when to stop the exercises she gave me are basically stretches that i can do at home.

Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 10/13/2008 4:22 PM (GMT -7)   

I think I need to do some research on my own.  My therapist is very nice, I just don't think she understands fibro very well.  Lisa I think you are right about the trigger point release, I think that might be something that will help.  My muscles are so tight right now, I need to relax them before I attempt any exercises.  I've decided to just be upfront with the therapist and just tell her that I cannot do what she is asking, at least not until I can relax the muscles.  Maybe she has other options for me.  I guess I will find out tomorrow at my session.  I think I will hold off on the massages from my husband to, I would hate to make things worse.

Thanks for all of the support and suggestions.

Meggie

GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 10/14/2008 7:38 AM (GMT -7)   
Hi Meggie-
 
PT gave me INCREASED pain after everytime I went! Bad, bad pain! Could even last a week. Now it only lasts a day and can be controlled. Taking it easy, warm baths and meds. My therapist specializes in fibro though and I would not have anyone else touch me. I thought many times of not returning but I have gotten mobility in my upper shoulders, neck and back that I have not had in years. Also I needed the education on what to do at home. She keeps me on track.
 
She also does myofascial release massage. (Gentle stretching of our tissues) That also was bad at first and now it gives me some relief.
 
Thats just my experience - and I too hope you can find someone that knows about fibro and what you can and cannot do with us.
 
Keep us posted. GamJill
 
 
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 10/14/2008 9:54 PM (GMT -7)   
Meggie, yes that has happened to me before, too. But this new pt made me feel better when I saw her last week. I am doing the exercises and those are helping, too. Maybe it is the pt?
Sue

solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 10/15/2008 7:48 AM (GMT -7)   
Hi there Meggie. If you do decide to work on your problem by working on your trigger points you may want to try to find a physical therapist who specializes in that type of work. I know that there are alot of massage therapists out there that do that type of work but it may be to your advantage to use a PT because insurance should cover that and few cover any type of massage therapy. Just a thought. Also if you want to try and do some work on them on your own, there is a tool out there called a Thera-cane which could be very useful for you to do self trigger point work. There is also a very good book called The Trigger Point Therapy Workbook by Clair Davies which is aimed at self help. I got both of those off the internet. Just some more ideas for you.  Lisa
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