How badly will surgery affect FMS

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d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 10/13/2008 10:59 AM (GMT -7)   
I am having a major surgery on Nov 4.  I have Crohn's disease and need to have 2 strictures removed.  I must say I am a bit concerned about how badly, or if my fibro will flare.  Anyone have any suggestions or experiences with this?  I'd appreciate any comments.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


Tootiebug58
Regular Member


Date Joined Feb 2008
Total Posts : 378
   Posted 10/13/2008 11:13 AM (GMT -7)   
Please tell the dr you have fibro. It makes a lot of difference in the way you are handled physically, i.e. being lifted onto the surgical table, the way they position
your head and neck during surgery, and the positon of your entire body during recovery. I wished I had told my dr before I had my surgery, because I had a major flare with complications afterwards. Also tell the anestheologist. Sometimes
too much of that can make you feel worse. After you are in recovery, ask for very warm blankets, as your muscles may be stiff and sore.
Take care and wish you the best
Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 10/13/2008 12:14 PM (GMT -7)   
Stephanie, I'm sooo sorry you have to have surgery. cry I have not had to have surgery since being dxd with fibro, yet. I know my neck would be a problem during surgery. I don't even have my hairdresser wash my hair anymore because of the wash bowl and leaning my head back.
 
There is a post on here somewhere about what to tell your docs before having surgery with fibro. I will see if I can find it for you. I think it will depend on how serious the staff at the hospital takes fibro in how you are treated. I know that is sad to say but when your out your at their mercy.
 
Stephanie I couldn't find the post on here but here is a link to one on surgery with fibro. http://www.myalgia.com/surgery_guidance.htm
 
luv and hugs
Marlee


Forum Moderator Fibromyalgia
 
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Post Edited (Marlee2) : 10/13/2008 1:58:02 PM (GMT-6)


AustenFan
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Date Joined Aug 2008
Total Posts : 1771
   Posted 10/13/2008 1:21 PM (GMT -7)   
I had abdominal surgery last year and ended up having a lot of problems with my neck.  Actually, my neck ended up hurting worse than my incision.
 
I didn't realize that it could have been from the position I was in during surgery. It also could have been from lying in bed afterwards.
 
I agree with everyone about talking to your doctors beforehand (I wish I had).  If you have problems with your neck, you might also check into some kind of supportive pillows while you are healing.
 
My thoughts and prayers are with you, Stephanie.
 
Marlee,  I also can't get my hair washed at the salon.  My orthopedist told me that getting your hair washed in those washing bowls is one of the worst things you can do to your neck.
 
Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 10/13/2008 1:32 PM (GMT -7)   
Stephanie, I have Crohn's too.  I had to have my colon removed two years after I was diagnosed with fibro and I had a quick recovery.  I actually was Christmas shopping at the mall 12 days after surgery...and I still had the 86 staples in me.  I had no flares with fibro, either.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 10/13/2008 5:01 PM (GMT -7)   

Stephanie,

I have not had surgery with the FM but I will certainly be praying that everything works out well for you!

Meggie


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/13/2008 7:50 PM (GMT -7)   
Hi Stephanie,
 
I'm having surgery on November 5th!  Laparoscopic hysterectomy.  I've been asking the same questions.  I'm also concerned about my Fibro.  My biggest issue is going to be my neck.  I have arthritis in my neck as well.  Great combo!
 
I hope your surgery goes 100% perfectly and you come out of it with no flare ups.  I'll be thinking of you on the 4th!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


augoldminer
Regular Member


Date Joined Jun 2006
Total Posts : 110
   Posted 10/13/2008 11:11 PM (GMT -7)   
I had a bypass surgery a couple years ago and they had me unconscious laying on my back with the head of the bed raised for about 20 hours (Semi-fowler position)without moving me.

When i came to the nurses could not understand why i wanted to get out of bed and stand up.
they thought i was crazy.. i guess they never ran into a EMT as a patient.
They had me on Morphine and added fentanyl and neither helped.
plus it did not help that i still had the airway in and could not talk.

the area across the back of my hips hurt so bad the i did not even feel the pain in my chest.

after about two hours they let me stand up. oh it felt so good.

I understand for those that are helped by gabapentin they can add it to the IV drip during your surgery.
Autoimmune Sarcoidosis with neuropathy 2003
Secondary Fibromyalgia 2002
Heart Attack and bypass x5 2006
diabetes 2008
ex firefighter/EMT
ex US Navy


sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 10/14/2008 9:25 AM (GMT -7)   
I have had quite a few surgeries and some i reovered from better than others.  I seemed to recover from my vaginal hysterecmy fairly well i think.
I have had two breast surgies and the second one was harder to recover as fast, maybe i was laying longer period of time.  I had two knee surgies, and one recovered real fast from, the other too forever and was so much more painful. the second more painful one i let them give me general anthesia, so ii didnt need an epidural,well that was wrong,  The first knee surgery i had an epidural with vercet and i was still awake and could see on the screen what he was doing.  And since it was an epidural i didnt wake up in excrutiang pain like the other knee.  Both knees still bothet, but the one where i wasnt under a general, feels better than then one i was under.
And lastly i had an interstim planted in my scaral nerves to help my bladder, the trial surgery where i was half awake went great, recovered well from that, But the permanent stim where they had me completely out i woke up so sore my back was killing me, very painful.  So i guess i have had a mixed bag of reactions.
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06 Spondlylosis/Disc Degernation Disease severe arthitis lower back -08,implantedInterstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines
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d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 10/14/2008 10:08 AM (GMT -7)   
Thank you all so very much! I do have a terrible neck. Osteoarth., stenosis, spurs, blah, blah. My surgeon did see that on my chart, but I will remind him too. I will tell the anesthesiologist too. I really appreciate all your efforts to help. I will happily take the prayers! Thank you.

Ginny, I'll think of you on the 5th (if I'm awake).(lol)

Funny about the hairdresser. I have very long hair and like to perm it once a year. I can't anymore becuase of those sinks! They kill me! Even with towels on it for padding.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong

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