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New Member

Date Joined Oct 2008
Total Posts : 4
   Posted 10/15/2008 3:06 PM (GMT -6)   
Good afternoon everyone...
Im new, not only to the board but also to fibro.. I was diagnosed about 2 months ago, but i suspect ive had it for years... I also have CP which landed me in a wheelchair until I was 13 but, with the marvels of modern day medicine I walk upright with the rest of you... well.. limping along lately!!  
I know a lot of you have been dealing with this for years.. so I have a few questions I thought you might be able to answer.  Most of my pain is in my legs.  Its fairly bad. some days barely tolerable.. and I am not a newbie to pain!   Sometimes I have pain in my upper arms, but not always.   And some times in my neck, and again, not always... I also have pain in my lower back from time to time, however that is usually in conjunction with my period.... so that may just be a normal thing for me.  Does that sound right?? to have pain there sometimes but not always? 
Also.. another thing that i find odd.. I have not been able to find too much on the internet about it, which is why im posting here.  All of my joints.. ankles, knees, hips, elbows and wrists mostly snap crack & pop every time i move them.  If i put pressure on them (standing up from a squatting position or extending my arm just right) they sound terrible.. I sound like a box of rice crispies all the time... Is this normal for fibro?  It hurts every time it makes that noise.. and it sound like when you would crack your knuckles.. I have explained and showed this to my dr, but she seems to think that its normal... and im thinking.. humm normal.. right!  Thats why i hear everyone else doing this!!  People will look at me like OMG are you ok!  like I broke in half or something!! 
another question.. I have tried cymbalta (made me feel stupid and didnt work) Lyrica (bad reaction) Gabepentin (didnt work) what else is there!!  I have some muscle relaxors that I take at night that work ok for muscle spazams.. but not for the pain.  And the dr gives me enough Vicodin every month for 2 per day to take at bed time which is the only thing that helps so far..  any ideas?  I actually called her today because i had the bad reaction to the Lyrica this morning.  When i woke up my eyelids were almost an inch thick and I had puffy lips and felt like crap!!  She told me to stop taking them.. and that was it.. geee thanks..
any thoughts guys???  I figured.. why not come right to the source ;)
Thanks :)

Forum Moderator

Date Joined Apr 2005
Total Posts : 17057
   Posted 10/15/2008 3:21 PM (GMT -6)   
Hi, Shaney, and welcome to the fibromyalgia forum.  Pain travels a lot with fibro.  I usually have pain in my shoulders and neck.  In addition to that I get pains in other areas of my body.  The pain might be there one day and gone the next but then something else will crop up.  So, I don't think it's too unusual.
My fingers do the popping bit and it isn't comfy either.  Sometimes they lock and I have to manually open my fingers.  We do have a Rice Krispies Club here.  Many members get popping in their necks and other places too.  So, it looks like another member has arrived! wink
When you get a chance, check out the Fibro 101 thread...the second thread on the forum.  There are links to a lot of good information about fibromyalgia.  Also read back posts because there is a lot of info in them too.  Don't hesitate to ask questions either.  We are here to help one another.
Take care.  I'm so glad you joined us and I hope to hear more from you soon!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Oct 2008
Total Posts : 90
   Posted 10/15/2008 3:25 PM (GMT -6)   
I have the same thing with pain - some pain here, some pain there - it varies in intensity and also in frequency - that much I know is normal for FMS across the board. There is no designated amount of pain you are supposed to feel. Its gonna vary all the time.

As for the joint popping, I can't speak for anyone else, because like you said, I haven't found anything about it anywhere else either, but for me it is the same with me too. All my joints snap and pop all the time. I think the only ones that don't are my elbows. My shoulders make these awful sounds that I use to gross out guys at my school sometimes (I'm in college -actually its gonna nifty to be able to gross out a table full of fraternity guys...but anyway). When I stand up my knees make popping and cracking noises, especially my left knee which has been hurting like crazy lately. I don't know if it has anything to do with FMS or if we're just weird so I doubt this really helped much. Sorry.

As for your medication, I'm on Lyrica and Cymbalta. I don't think the cymbalta helps me much, but the Lyrica was amazing for me. I wouldn't know what else to tell you except to demand that your doctor actually treat you instead of just ignoring it. :-)
~~Asthma, Reactive Airway Disease, Allergies (to nature), Fibromyalgia, Kidney Reflux Disease, Chronic Migraines (docs currently working on those), Generalized Anxiety Disorder, Depression, Restless Leg Syndrome, and a few others that remain undiagnosed because I don't feel like being on anymore medication than I am already on. ~~

~~ I'm 21 and trying to be optimistic~~

New Member

Date Joined Oct 2008
Total Posts : 4
   Posted 10/15/2008 3:33 PM (GMT -6)   
OK.. i feel a little better now girls.. lol.. i thought i was really not normal with the whole joint poping thing.. and my sholders do that too! its a really gross sound your right!! lol..

I just called my dr back a few min ago and left a message at the office because its getting late... told her.. OK been dealing with this for 3 years.. now we know what it is.. Help me! There is no reason for me to suffer now that we have an idea on what to treat! Gonna be a long night i guess.. because heaven forbid i could even get to sleep to try and ingore it.. *sigh* Ive decide this disease is stupid.. what do you guys think.. lol ;)

Regular Member

Date Joined Jun 2008
Total Posts : 204
   Posted 10/15/2008 3:45 PM (GMT -6)   
It's weird that you posted asking these questions because i was going to write the same thing when I got off work this evening.

Hello and welcome to the forum...the people here are wonderful.

I am also newly diagnosed and I was going to ask too if the pain can travel. Like today for about 10-15 minutes my toes and ankles were killing me...then it just went away...weird.

As far as meds go, so far I have been able to manage the normal pain (if there is such a thing) wwith just tylenol and heat. I do take Lyrica tho for the burning pain and I love it. How many times did you wake up like that? Cause when I first started taking it, my eyelids felt real heavy the next morning but it went away after i showered. Now it's not too bad and it gives me the BEST nights sleep ever.

Diagnosed with Panic Disorder(16 yrs ago)-GERD(12 years ago)-GAD(16 yrs ago)-IBS(12 years ago)-DDD(6 years ago)-Arthritis(since teenager)-Controled HBP(2 years ago)-Diagnosed with fibromyalgia 9-29-08.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol~Lyrica

New Member

Date Joined Oct 2008
Total Posts : 4
   Posted 10/15/2008 4:04 PM (GMT -6)   
Every night I took it i woke up that way.. :( and my eyes looked awful for about 6 hrs after i woke up... not the right choice for me! Im glad it works for some ppl though :) BTW its 5:00 where i am.. and the Dr never called me back.. gotta love it.. grrrrrrrrrr

Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 10/15/2008 5:41 PM (GMT -6)   
The reason that the doctors are so down about fibro is because there are meds that treat the symptoms, supplements that help with the exhaustion and palliative actions that help with pain but NOTHING that fixes EVERYTHING. Fibromyalgia is a collection of symptoms that add up to a disorder that can be diagnosed only after everything else has been ruled out.

As one of our members has said, "Fibro is a life sentence, not a death sentence" because although it doesn't kill or hurt you, it does put restrictions on your life. I use malic acid and magnesium for oxygenation of my muscles to stave off pain and fatigue, sunlight, antidepressants and a S.A.D. light to increase my serotonin levels and a minor narcotic (darvocet) when everything is just too much.

Mostly I just grin and keep going. Wish I could use my magic lamp to fix us all....(sigh!) but all we can do is KOKO! (Keep on keepin' on!)
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

New Member

Date Joined Oct 2008
Total Posts : 4
   Posted 10/16/2008 9:33 AM (GMT -6)   
Your right.. there isnt anything out there to make it all better.. and that really sucks! Its been extra hard for me, because my husband is sick with sarcoidosis and Ankylosing Spondylitis which he was recently diagnosed with... He sleeps almost all the time, and when he isnt sleeping hes in terrible pain. He has such an advanced case of the sarcoidosis that all the specialist say he has maybe a few years left with me... So i have a hard time complaining about my aches and pains.. He also has 3 kids that live with us and I work a 65+ hr a week job to make ends meet, which doesnt quite cut it most of the time.. and here i am.. only 27 dealing with things im not ready to have to deal with just yet!!! UUGGG

I have been fighting such an uphill battle for so long It gets to a point where you want to snap, but i feel like i cant because i dont want him to see it. and this fibro on top of everything is just the icing on the cake.. so anything to make that better IM GAME!!!

I think this is a really good place for me to talk about this disease and help support my fellow fibro sufferers, where i dont feel like i can talk about it with my husband.. It just seems so unfair for me to mention it where he is so much worse off..

Ok.. sorry about my rant.. life sucks get a helmet right? LOL! Im glad i found this site..


Regular Member

Date Joined Aug 2008
Total Posts : 320
   Posted 10/16/2008 12:04 PM (GMT -6)   
Hi Shaney! I am sorry to hear of your husband's disease's. I can certainly udnerstand why you don't feel free to discuss pain with him. Poor thing. It must be tough working all those hours and feeling so bad. I sometimes feel like I can't possible work another 40 hr week, let alone 65+. Alot on your plate for sure.

Fell free to grumbla and whine all you want. We all do it from tiem to time.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
When I am weak, then am I strong

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