Hi Everyone, am new and might have FM

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garnetstar
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 10/15/2008 8:46 PM (GMT -7)   
Hi! I just wanted to say hi, and I have to say, your board has been extremely helpful! Thank you! I'm 24, and have been tentatively diagnosed with fibromyalgia. I have an appointment with a rheumatologist on Friday, so hopefully we will find out what the cause is of all the symptoms I've been having for the past few years. When I was in high school, I remember being super tired all the time, but thought that maybe I was stressed or had overexerted myself. I was finally diagnosed at age 19 with hypothyroidism. I was also having major problems with dizziness, to the point where I had to take meclizine every few hours to keep from getting sick. Well, recently, the fatigue and dizziness came back, along with something new- PAIN. The pain was centered around my pelvic area, so I went to a gyno and the told me I had an ovarian dermoid cyst. I had to go to New York in August, and when I was there I almost fainted after walking a short distance. I chalked everything up to the cyst, and continued to take Vicodin for the pain. Well, after my surgery, my symptoms got worse. Now, I was dizzy, in pain from the surgery, and generally, and was now getting migraines and super tired! To make a long story short, I've gone to an ENT, my primary care doc, and some other docs, and now have to see a rhematologist. My primary care doctor pressed on some trigger points when I was there and they hurt pretty badly!

I'm trying to hang in there but it's really hard. I'm fortunate to have a mom who has FM, and an aunt as well. My boyfriend is trying to understand, but it's difficult for him to understand how I can be in pain ALL THE TIME. People at work have been pretty mean about it, one of my managers told me it was all in my head. I work in retail, and they don't get how it can be difficult for me to stand, and walk around all day. I get really confused now and "foggy" when I'm ringing people up, and they keep having to send me home. I feel bad, but hopefully my trip to the rheumatologist will clear things up a bit. i'm almost hoping for a diagnosis, so at least I can say I'm not crazy.

Thank you guys for all the help!

MEG25801
Regular Member


Date Joined Jun 2008
Total Posts : 204
   Posted 10/16/2008 3:08 AM (GMT -7)   
Hi garnetstar
 
Welcome to the fibro board!!  I'm fairly new to it and also to Fibro.  All the people here are wonderful.  There is a thread at the top called Fibro 101 and is very helpful.  It has a list of the symptoms as well as other things.  Read it when you get the chance.  Any questions you have, ask...the great people here are really good to answer everything they can turn
 
Take care
 
~Missy~
Diagnosed with Panic Disorder(16 yrs ago)-GERD(12 years ago)-GAD(16 yrs ago)-IBS(12 years ago)-DDD(6 years ago)-Arthritis(since teenager)-Controled HBP(2 years ago)-Diagnosed with fibromyalgia 9-29-08.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol~Lyrica


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 10/16/2008 9:52 AM (GMT -7)   
Hey garnetstar! Welcome! I am far from new to fibro (30 yrs and counting). I'm glad you came here and hope you will post often.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 10/16/2008 2:37 PM (GMT -7)   
Hi, Garnetstar, and welcome!  I see you have been sent to the Fibro 101 thread...the second thread on the forum.  You will find links to good info about fibromyalgia.  There is a link called "Doctors Respond to New York Times Article."  Click on that and read it.  There are learned doctors explaining fibromyalgia.  Perhaps print that out and pass it on to the "it's all in your head" crowd. 
 
Fibromyalgia can run in families.  I have a first cousin that has fibro and probably had other relatives that had it to but were misdiagnosed.  You can have all the symptoms you mentioned with fibro.  I really hope you have a great rheumy that will diagnose and help you. 
 
Meanwhile, we are here to help you.  Read, read, read, and ask questions.  We are here to help you to live a full and enjoyable life with fibromyalgia.  I'm so glad you joined us and I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


garnetstar
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 10/16/2008 4:55 PM (GMT -7)   
Thank you everyone! I will definitely check out the Fibro 101 section, and will keep you posted on what the doc says tomorrow! Cross your fingers!

GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 10/17/2008 5:35 AM (GMT -7)   

Hi garnet and welcome!

I know it's hard for people to understand what we are going through. I was one of them until I got fibro. I would hear about fibro and knew a couple gals with it but I had no clue really what it was like. I don't expect other people to understand this anymore because they can't- but I do expect people to have some compassion. And it sounds like your coworkers have none. So sad!

Wish you luck with your rheumy appointment today. Let us know what happened.

GamJill

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 10/17/2008 5:54 AM (GMT -7)   
Hi Garnet and welcome. I hope you get a dx. But don't expect people to understand it. Those in your family that have fibro will be the only ones that can understand. That's what is so great about this forum, everyone of us understand each other. And we are always here for each other.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40595
   Posted 10/17/2008 8:02 AM (GMT -7)   
Hi Garnetstar,

Welcome to the fibromyalgia forum. I can see that you have already gotten a lot of good advice. So I just wanted to let you know that everybody here is very kind and compassionate. Most of all understanding.

I hope that you are having a wonderful day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


garnetstar
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 10/17/2008 10:41 AM (GMT -7)   
I feel so bad when I think about how I used to treat my mom. Sometimes I think I deserve the other people saying things because of how I treated her. My dad always used to call her a hypochondriac and I was right there with him. Now that I might have FM, I don't know what he'll say. Two fakers in his family? Hard to believe. Well, I'm off to my appointment now, I will post when I get back!

garnetstar
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 10/17/2008 7:42 PM (GMT -7)   
Ok everyone, sooo... I have FM. My rheumy says that he just wants to rule out lupus and other things before he can give me a 100% diagnosis, but that I pretty much have it. I guess I'm kinda relieved, but I'm pretty bummed out. Bleh. If I'm in this much pain now, what does the rest of my life look like? And how is my work going to react to this? I guess there are just a bunch of questions to answer now. We'll see.

MEG25801
Regular Member


Date Joined Jun 2008
Total Posts : 204
   Posted 10/18/2008 3:25 AM (GMT -7)   
Sweetie I felt the same way after I was diagnosed a month ago.  Relieved but bummed.  I've gotten in to a routine now and I am fine.  You will be too!!!  I guess I am one of the lucky ones because unless I am in a flare, Tylenol and heat takes away the normal pain and Lyrica takes the burning pain away.  Plus the Lyrica helps me get a great night's sleep so I am feeling better because I am sleeping better.  The best advise I can give, is to KEEP MOVING!!  On the weekends when I am off work I feel worse than I do during the week because I am not moving around as much...so keep moving and so stretching exercises.  Did he prescribe anything?
 
Give it a couple days and your outlook will be so much better
 
~Missy~
Diagnosed with Panic Disorder(16 yrs ago)-GERD(12 years ago)-GAD(16 yrs ago)-IBS(12 years ago)-DDD(6 years ago)-Arthritis(since teenager)-Controled HBP(2 years ago)-Diagnosed with fibromyalgia 9-29-08.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol~Lyrica


garnetstar
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 10/18/2008 10:41 AM (GMT -7)   
The rheumy prescribed me some Prednisone, and I took the first dose last night. I don't know if it was from that or not, but I got a severe hot flash and when I tried to go to sleep, I woke up constantly during the night because of pelvic pain, leg pain, and having to go pee! I'm going to try to take the second dose before I go to work today and see if the reaction is the same. Other than that I have directions to call my regular doctor for Ambien, something like Lyrica or Neurontin, a referral to the Chronic Pain clinic, and to ask about my work issues. I'm going to have to tell my work today about my diagnosis. Hopefully they'll take it well, someone I work with has CFS and they accommodate her pretty well. I guess I'm in the middle of a flare up right now, I'm going to try to take some tylenol or excedrin before I go to work to at least get through the rest of the day. Thank you for being so understanding!!!

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 10/19/2008 8:35 PM (GMT -7)   
Welcome to the group Garnetstar,
Sounds like you are on the right track toward taking care of yourself. I am new to fibro, too (a few months) and am still figuring out this new thing: pacing myself. Try not to push yourself when you are in pain.
Best,
Sue

MEG25801
Regular Member


Date Joined Jun 2008
Total Posts : 204
   Posted 10/20/2008 2:24 AM (GMT -7)   
And DON'T go horseback riding...I am sooo sore today...BUT IT WAS STILL WORTH IT LOL
Diagnosed with Panic Disorder(16 yrs ago)-GERD(12 years ago)-GAD(16 yrs ago)-IBS(12 years ago)-DDD(6 years ago)-Arthritis(since teenager)-Controled HBP(2 years ago)-Diagnosed with fibromyalgia 9-29-08.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol~Lyrica


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 10/20/2008 7:03 AM (GMT -7)   
Garnet your rheumy rxd prednisone for fibro??? Steriods do not help fibro and some that have been put on them says it makes it worse.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


garnetstar
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 10/20/2008 8:44 AM (GMT -7)   
Yeah, he wanted to make sure I didn't have Lupus or anything else. He said that if the symptoms get worse, to get off of it, so I did! Lol. I'm just waiting for some lab test results to come back to rule out Lupus, and then we would try the next course of treatment. I hope it starts soon, because I had to call out sick again today, and my boss sounds super mad.

PS: I tried horseback riding once and it made me hurt so bad I wanted to pass out for two days! Yuck, I will never do that again!

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 10/20/2008 9:52 AM (GMT -7)   
In that case Garnet I'm glad you got worse on the steroids. smilewinkgrin
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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