Fibro, Costo, and Pain Management. . .

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Green Grove
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Date Joined Oct 2008
Total Posts : 2424
   Posted 10/19/2008 5:21 PM (GMT -7)   
Hi. . . I'm a newbie and interested in how all of you manage your pain. . . I've read through some of the threads, but many of them are older, and I am not sure how some of the new techniques are working for some of you at this time, because of the advanced age of the posts :)  Anyway, thought I would start a new thread, so maybe some of us can learn from you. . . Thank you so much :)  Samuel
Dream as if you'll live forever. . . Live as if you will die today. . .
James Dean
 


Green Grove
Veteran Member


Date Joined Oct 2008
Total Posts : 2424
   Posted 10/19/2008 5:32 PM (GMT -7)   
Fixed some of my options :) lol. . . This site is wonderful :)
Dream as if you'll live forever. . . Live as if you will die today. . .
James Dean
 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 10/20/2008 8:34 AM (GMT -7)   
Hi Samuel and welcome. I'm glad your reading back post. Have you read the fibro 101 thread, second on first page.
 
I take 100 mg of amitriptyline which seems to help some with the pain, I take 4000 mg of tylenol a day, I use moist heat in many forms and if it gets too bad I use TENS unit to interrupt the pain signals to the brain. I also stretch and move as much as I can.
 
My rheumy said he would not recommend lyrica for me cause my pain is not that bad but I have had three doctors tell me to try cymbalta which I still haven't had a chance to try.
 
I'm sure you will get lots of info on what other people use.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 10/20/2008 10:13 AM (GMT -7)   
Hi, Samuel, and welcome!  I see Marlee directed you to the Fibro 101 thread...the second thread on the forum.  You will find a ton of info in that thread that can help you.
 
I use ibuprofen, Tylenol, and malic acid/magnesium supplements for my pain and fatigue.  There is a link, in the Fibro 101 thread, all about malic acid/magnesium supplements and how they work in the body.  They don't work for everyone, but they might be worth a shot.  Read the link and see what you think.
 
Hot showers and moist heat are great for fibro.  You also need to keep moving.  If you sit or lay too long  you will be stiff as a board.  I do light stretching exercises.  There is a link about them in the Fibro 101 thread, also.  I also walk as much as I can and just keep moving.  I do have to pace myself so I don't create more pain due to overworking the muscles.  I also like light massages from a therapist that knows all about fibromyalgia.  They really make me feel better.  A deep massage would kill me!  wink
 
I'm sure others will come on with their suggestions.  Meanwhile, ask questions and read back posts.  There is a lot of info in those.  I'm so glad you joined us and I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Green Grove
Veteran Member


Date Joined Oct 2008
Total Posts : 2424
   Posted 10/20/2008 11:11 AM (GMT -7)   

Thank you all so much for the extra info. . . Sure is nice to meet you :)  I've been reading so much material on here doing research for myself and other family/friends, that I'm a bit overwhelmed right now :)  Plus I've been flaring up with the seasonal change, so it's back and forth on the computer for me. . . I've been taking MSM for about two weeks now, and it seems to be helping me more than any other drug. . . Plus the alternate heat and ice has been helpful. . . Again, thanks :)  I will be posting more up on MSM as I see how it helps me. . . I hope it might be the answer for many people that feel this crazy pain all the time :)  Thank God for you all. . . it is nice to get to know others that can help you and vice versa :)

Take care now,

Sam


Dream as if you'll live forever. . . Live as if you will die today. . .
James Dean
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 10/20/2008 11:40 AM (GMT -7)   
Sam, you will find that what works for one doesn't work for another with fibromyalgia.  That makes it tough for us.  We have to keep trying things to see what helps us.
 
I tried MSM and I might as well have been taking sugar pills.  A nurse that had fibro highly recommended them to me because they helped her so much.  They didn't work for me, but the malic acid/magnesium does help me. 
 
I really hope the MSM does work for you.  If it does, please let everyone know about it.  That's just another choice for our members.  Take care and I hope the fibro settles down for you.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 10/20/2008 12:23 PM (GMT -7)   
Hey Samuel: Yu might want to review the post and responses to Tilly a fifteen year old with Fibro. Quite a few members replied with suggestions about what works for them. I wake up very early, 5 AM. Not for any particular reason, that's just when I wake up. I don't work presently, I am at home caring for my dad who has Alzheimers. He usually doesn't get up untill 7AM or so. maybe that's why I wake so early, to get some me time. When I first wake up I'm in terrible shape. Stiff as a board, I hobble to washroom and then dig out my meds. Synthroid, (Hypothyroidism). Also I take 75 mgs. of zoloft, usually 2 Tylenol 3's although before I do that I rub linament into my hips and lower back in order to assess how bad it is, that day. If I don't need the tylenol 3's (2), I take 1 and 1 OTC tylenol. I also take a muscle relaxer, get heating pad on my back, put coffee on. By the time coffee is ready, so am I. I can now go out for a light walk around our property with our dogs. Here is when I assess how much activity I will be able to manage that day. Sometimes after my walk, I'm feeling much better and am rearing to go, so I decide on a project for my Dad and I for that day. Laundry, outside work, inside cleaning, building a birdhouse or such or go over to do chores on my Dad's old farmhouse which is in bad shape. If I am in agony (flare) I take 25mgs. of Amyltriptilene, lay down and wait for it to kick in. Then I do light housework, cook or bake something, answer mail, light duties. I always take 100mgs. of Amyltriptilene at bedtime often with a muscle relaxer. Getting a solid nights sleep works wonders. I try to be patient and kind to myself. I try to understand my limitations. I try to care for myself as I would care for a sick child . This happened once in the past month. I slept the day through and then worried I wouldn't sleep that night. I went to bed as usual, took my Amyltriptilene, and slept through the night also. I must have needed it because for three days afterwards, I got quite a loy accomplished. I hope something here might be of benefit to you.

GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 10/21/2008 7:17 AM (GMT -7)   
Hi Sam and Welcome-

My pain management at present is Tylenol 4,000mg. a day and Darvocet for backup. When my fibro hit hard almost six months ago I could have been on a Morphine drip! I have a prescription for Lyrica and have not started it yet. I go to PT and have been taught some Yoga exercises, pilates, and deep breathing. Also my therapist does Myofascial release massage. I had horrible pain after my appointments for days but now I only have pain the day after. It got worse before it got better.

I know we are all such individuals and we just need to find what works best for us. I know you will like it here, they are a great group to belong to. Lots of experience and they genuinely care!

Nice to meet you! GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 10/21/2008 8:16 AM (GMT -7)   
Gamjill: I noticed you said you take 4000 mg. of tylenol each day, as well as Darvocet for breakthrough. My doctors, both present and past said 4000 mg. of tylenol per day is the absolute maximum before liver damage. The Darvocet, ending in cet, also contains some tylenol does it not? I'm wondering how you manage both because that would put you over the max for tylenol for the day. Can you straighten me out on this issue, please. Thank-you
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