ugh, why am I always cold?

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 10/20/2008 6:49 AM (GMT -7)   
Since it started to get cool, and rainy, i am always cold and it sucks,people think Im crazy. It could even be like 16 degrees out, and a fire going in the house, and i still feel cold, im still covered up with a blanket, and again im looked at like im crazy.
This is frustrating let me tell you........
Im sure other people with fibro have had this happen, im assuming that fibromyalgia effects your circulation....
Also too, when i get cold, it takes a long time for me to get warm again, when i do get warm, it happens really strongly but only for a few minutes, and then right back to cold again.
Am I crazy? i must take off and put on my sweater about 50 times a day lol,
thanks again
 
p.s. Does anyone have or know if there is a link from fibromyalgia to endometriosis, the doc is sending me to a gynocologist, and thinks i may have endometriosis
 
 
Kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
-----------------------------------------------------


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 10/20/2008 7:11 AM (GMT -7)   
Hi Kelly,

I think that you have something linking fibromyalgia to circulation. I have always had bad circulation and I am cold a lot. But for the longest time when I was getting outside and moving around I was warm all of the time. But since fibro, it hasn't been that way.

I am sure that somebody will come along with some better answers, but I think that you are right about the circulation.

So maybe we do look crazy with blankets around us and a portable heater in our hand, but that is just the way that it goes.LOL...

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


garnetstar
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 10/20/2008 9:22 AM (GMT -7)   
Yeah, I've always been super cold my whole life too. My circulation is very bad, and when it gets really cold during the winter my fingers will go completely numb. My foot even did it one time! They also diagnosed me with Reynauld's Syndrome and I think that's a symptom. Also, are you hypothyroid? Sometimes that can do it too.

I had a recent ovarian cyst removal and the doc thought I might have had endometriosis when I was younger. I've been on birth control for about 7 years continuously though so that might have stopped it from spreading. I also have noticed a lot of FM people have gyno issues. I wouldn't be surprised if there is some sort of correlation between the two.

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 10/20/2008 9:28 AM (GMT -7)   
thanks Garnetstar:
I have no idea if i am hypothyroid? or if i have it for that matter.
My hands and feet do not go numb from being cold, the cold in turn sends radiating pain up through my feet into my legs, and finally up into my pelvis, and hips, its excuciating, sometimes happens from walking in a department store with just sandals on, in the summer............
I also dont know about the reynauds syndrome either, hopefully not, i dont think that i can handle anything else right now lol

The pelvic pain however, is also radiating, mostly in the ovaries and just above my vagina, sorry for being so descriptive, most times it feels like someone is sticking a knife inside my ovaries, it hurts real bad, in turn this makes me feel like i have to go pee, and then, when i do pee, before, when my bladder is filling up, it hurts, it burns bad, but i do not have a uti.......
thanks for any insights again, i feel like im just asking so many questions, it sucks, however i have learned a whole lot, and for that I am thankful.......
take care everybody,
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
-----------------------------------------------------


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 10/20/2008 9:48 AM (GMT -7)   
My doc told me it's the hypothalamus that is screwed up that causes our thermostats to be broken. I can go from freezing with a heater on to turning the fan on in a matter of minutes. I thought I was still having hot flashes but doc said no. I have been dressing in layers for years now. I can't function when I'm cold and it makes me sick when it is too hot.
 
Your doc should check your thyroid when they do routine blood work so I would call and make sure they are.
 
I do get some groin pain on right side sometimes. I have had my appendix removed and my ovaries have dried up nicely ( as my doc put it).
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


garnetstar
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 10/20/2008 10:09 AM (GMT -7)   
Yeah, I was actually experiencing a lot of pelvic pain and that's how they found the cyst. It was in my right ovary and was only about the size of a walnut. Now that I know that pelvic pain is a symptom of FM, and also I am still getting the pain too, I wonder if it was FM all along? I would definitely get your thyroid checked. When mine was off it felt like the cold was stabbing everywhere- it really hurt!

Strawstraw
New Member


Date Joined Oct 2008
Total Posts : 4
   Posted 10/20/2008 10:13 AM (GMT -7)   
I have endometriosis and fibro.  I suggest you do as much research as possible on endo.  You can have a total hysterectomy, and it still most likely will not get rid of all of it.  There is no real cure for endo.  Lupron is another possibility your doctor might give you.  The side effects are like you are in menopause.  My doctor didn't explain anything to me.  He just said this is what we are going to do next.  Screwing around with your hormones makes everything in life worse.  And don't be afraid to get a second opinion before a laparoscopy.  The Endometriosis Association is the leading researcher on endo.  They have three great books out.  I highly reccomend them.  I found them at my local library.  Using a heating pad or the clay heating things (so good) on my abdomen give me the best relief with a narcotic.  Good luck and feel better.

~Nicole~
 
Fibro-diagnosed 10-9-08, endometriosis, hypoglycemic, TMJ, chronic Epstein-Barr Virus, GAD, hip and knee reconstructions, nerve damage- entire left leg


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 10/20/2008 10:13 AM (GMT -7)   
that is exactly how it feels, my dad is the same way, also has fibromyalgia, and got a whole bunch of blood work done last week, and the doc already called him and told him he had to discuss the results with him, in an appointment,
thanks again, and take care lots
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
-----------------------------------------------------


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 10/20/2008 4:05 PM (GMT -7)   

Hi Kelly-

I'm cold unless it's 80 degrees out! Like Marlee said our thermostats are broken with fibro. I have a hard time adjusting the temp of my house now that the cool weather is here. I take my sweater on and off all day too- and if I really can't warm up I hop in a hot bath and that does the trick for me.  

GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 10/20/2008 4:22 PM (GMT -7)   
I get cold a lot too and my thyroid is fine...
some people just register lower temps, same as those that get too hot...
Just happens, don't let it worry you, except for the fibro we're all normal... eh...lol
Soft hugz to you.......
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 10/20/2008 6:51 PM (GMT -7)   
I get cold, hot and rarely in between. Everyday the pool is freezing when I enter it. sometimes I can be comfortable in the water and others my teeth chatter. Everyone else feels fine.

At home I can turn on the heat and the air conditioner on the same day.

Donnaeil

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 10/20/2008 7:13 PM (GMT -7)   
Mom1978...have you ever heard of interstitial cystitis? You might want to do some research on the topic. I'm not a doctor but I worked for a gyne and did a lot of research for him, for chapters he wrote for medical books, journals, etc. I hope you feel better soon

Fibromyalgia, Osteoarthritis, scoliosis, microdiskectomy C5/C6, bulging disks L3/L4, compressed nerve L5/S1, disc compression L5/S1, IBS, hypothyroidism (now FINALLY well controlled) Also angioplasty, and angiogram, high bp, well controlled, high chol, now normal, well controlled

 


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 10/20/2008 7:43 PM (GMT -7)   

Any suggestions for keeping warm in the winter.  It is still nice here in California, but them is starting to drop.  Last year during the coldest months our pge bill was $700 a month!  I cannot afford this again!!!!!  I am determined to take a shower without a space heater and maybe put a timer on my heating blanket, build fires to keep the bill down and wear layers to stay warm, but I am really worried about the cold.

Sue


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 10/20/2008 7:57 PM (GMT -7)   
Hi Sue, i really dread the cold every year, it sucks, and yes i must dress in layers, i freeze constantly, same as in the summer, i get extremely hot, and people look at me like im crazy then too, so i cant win for losing lol,
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
-----------------------------------------------------


Oregon Mom
New Member


Date Joined Nov 2008
Total Posts : 13
   Posted 11/5/2008 1:42 AM (GMT -7)   
I am freeezzzing all the time and it is embarrassing.  I too take a long time to warm up.  It seems as if I am easily "chilled to the bone".  I have endometriosis as well.   I have had endo surgeries.  The preganancy with my daughter cured me temporarily.  She is five now and the endo is just starting to come back.  Because of the endo, my iron is really low, causing me to be anemic.  I am not sure if the fact I am cold all the time is contributed to anemia or fibro (or both).  I had a doctor tell me once that "it is just a girl thing" - grrrr.
Medical Conditions:
Type 1 Diabetes - diagnosed 1982
Fibromyalgia - diagnosed 2006
IBS-Endometreosis
 
 


Corinne44
Regular Member


Date Joined Nov 2008
Total Posts : 98
   Posted 11/9/2008 11:45 AM (GMT -7)   
I get cold really easy too once it starts to get cold outside.

jhawkfan
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 11/9/2008 6:04 PM (GMT -7)   
I am sitting in a perfectly warm house right now with flannel pj's on and I am under an electric blanket!! LOL!! This is my first cold season with Fibro and I am not thinking it is going to be a good one. It is almost like I am cold to my bones! Once I get that cold, it hard for me to get warm again. My doctor also told me that "my thermastat" was broken and that many people whith Fibromyalgia have a hard time controlling their body temps! I am thinking I need to talk my husband into moving away from chicago!!

Corinne44
Regular Member


Date Joined Nov 2008
Total Posts : 98
   Posted 11/10/2008 2:04 PM (GMT -7)   

I keep telling my husband I need to go to Florida or California for the cold months. lol

 

Corinne


julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 11/10/2008 11:54 PM (GMT -7)   
My first fibro flare was in January of this year. I don't really remember being overly cold last winter, and I think the summer was pretty good. However I am in a full flare that started about a month ago. I completely understand where you all are coming from. I live even further north than Chicago! We get alot of snow and wind and cold. I'm totally dreading it. I too dress in layers, and usually peel the outside layer no less than 4 times a day. Tonight I'm in polarfleece pjs under a blanket, with heating pad on my back, and my nose is freezing! Often, I find drinking something hot will help.

Sorry I don't have any answers. I told my husband that I'm moving to Texas to live with his mom, or to Arizona to live with relatives there! I did read that those two states, along with California are amongst the favorite spots to live for fibro-mites!
*Severe Spinal Stenosis, ACDF Surgery Levels C5-7, Jan 07, Degenerative Disk Disease, Osteoarthritis,  Dx'd Atypical Migraines & Neuropathy Jul 07, Dx'd Fibromyalgia April 08,
GERD, Insomnia, Undiagnosed Inflammation with Elevated Sed Rate, C-reactive Protein
Mom to 2 College students +1 Exchange Student in Germany, stepMom to 2 marrieds, 8 stepGrands and my third job is being a pastor's wife.


finallypainfree
New Member


Date Joined Dec 2008
Total Posts : 10
   Posted 12/19/2008 11:52 AM (GMT -7)   
Before I had my thyroid checked I was freezing all the time. Did your doctor ever have it checked?
Positive thinking brings a positive life!


honeyprincess21
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 12/19/2008 12:08 PM (GMT -7)   
Yes, there is a correlation between endometriosis and fibromyalgia. And I have both, lucky me lol. I know that if you have endometriosis, your risk of having fibromyalgia or CFS doubles or triples...it's a ridiculously high rate. I really hope you don't have that because it's not fun. Let me tell you though...if you DO have it, PLEASE do research before you undergo ANY kind of treatment. They will have to do a laparoscopy to diagnose the endometriosis (it can only be 100% diagnosed via visual inspection thru a lap). Before you have this done, please make sure the person performing the surgery is really well versed in endometriosis. The best way to have endo removed is to have it excised...there are all kinds of different ways but excision gets deeper into the endometrial implants. DO NOT let a doctor talk you into a hysterectomy OR having a baby as a "cure" as there isn't a cure. Women who have had children and/or hyst's still find that their endo can come back. And if your doctor recommends putting you on Lupron, RUN!!!!! There are class action lawsuits against the corporations making Lupron as it has really messed up a lot of people. It can happen after even one shot. The biggest pitfall with Lupron is that it can affect your bone density and that's not something I'm guessing you'd want to have along with Fibro.
 
If you have any questions or need anything, please let me know. I will do my best to help. You can post on here or you can email me directly at honeyprincess21@yahoo.com ...please don't be offended if I don't write back right away...I'm so bad at checking my email.
 
Good luck to you!
 
PS - I am the same way as you with the cold. I am always FREEZING and then when I finally get warm, I feel like I'm roasting to death. But only for about 5 minutes because then I'm back to freezing again. I did read that frequent temp changes are a symptom of Fibro...but then again, EVERYTHING seems to be a symptom of Fibro!
Endometriosis since 2002 diagnosis via laparoscopy
5 laparoscopies for Endometriosis from 2002 - present
Anxiety since 2004
Post Traumatic Stress Disorder since 2005
GERD since 2008
Fibromyalgia since 2008
Colonoscopy - 2008
Endoscopy (EGD) - 2008
 
Currently in Physical Therapy for Pelvic Floor spasms. Also for lower back, hip & thigh muscular problems.
 
* Baclofen
* Xanax for Anxiety
* Fish Oil Capsules
* Iron Pills
 
!!! At my wit's end with being "broken" !!!
 


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 12/19/2008 12:13 PM (GMT -7)   
yah i have had it tested before a few times, it always comes back just fine lol
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
-----------------------------------------------------


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 12/19/2008 12:20 PM (GMT -7)   
hey there, well just to let you all know, i went to the doc today, and he told me that the results for the pelvic ultrasound was normal, there was nothing at all in the ultrasound, does this mean that I dont have endometriosis? Im so sick of this cycle, he says, "well you have a whole slew of symptoms, but nothing is diagnosed except the fibromyalgia.
I also have had bleeding twice during intercourse, a lot of blood too, and it was not my period, because i had no spotting between the two times that we had sex, in 4 or 5 days,
I dont get it, the doctor didnt seem to concerned by that,
ugh, I wish I could just figure out whats wrong with me.........
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
-----------------------------------------------------


honeyprincess21
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 12/19/2008 12:55 PM (GMT -7)   
Hey there :-)

Just because the ultrasound comes up clean, does not mean you don't have endo. The u/s will mostly show if you have cysts or something like that. Endo MUST be diagnosed via laparoscopy. There are no tests or anything that they can run that is 100% other then the visual confirmation from the exploratory lap.

A good place for info on endo:
http://www.centerforendo.com/

If you do find out you have it, you can send your records there for the doctors to review FREE of charge. You do not have to agree to have surgery there, but those docs are some of the top in the nation, so I would get their opinion before you try ANYTHING if you find out you have it. Don't let anyone try to remove any of it or put you on anything until you fully research everything. There are a TON of doctors out there that are miseducated about endo, just like they are about Fibro.
Endometriosis since 2002 diagnosis via laparoscopy
5 laparoscopies for Endometriosis from 2002 - present
Anxiety since 2004
Post Traumatic Stress Disorder since 2005
GERD since 2008
Fibromyalgia since 2008
Colonoscopy - 2008
Endoscopy (EGD) - 2008
 
Currently in Physical Therapy for Pelvic Floor spasms. Also for lower back, hip & thigh muscular problems.
 
* Baclofen
* Xanax for Anxiety
* Fish Oil Capsules
* Iron Pills
 
!!! At my wit's end with being "broken" !!!
 


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 12/19/2008 4:40 PM (GMT -7)   
Hi, the doctor asked if i had ever had a stomach scope, and i said no, would this be a laparascopy? or something different?
just wondering, and thanks again!!
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
-----------------------------------------------------

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Sunday, December 11, 2016 7:02 AM (GMT -7)
There are a total of 2,736,309 posts in 301,366 threads.
View Active Threads


Who's Online
This forum has 151462 registered members. Please welcome our newest member, barbarwhit.
231 Guest(s), 3 Registered Member(s) are currently online.  Details
mrs. george, reminder, U B Tough


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer